Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-21-2009, 10:53 AM #1
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cindi1965 cindi1965 is offline
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Join Date: Jul 2009
Location: West Virginia
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cindi1965 cindi1965 is offline
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Join Date: Jul 2009
Location: West Virginia
Posts: 375
15 yr Member
Default Finding this forum has done wonders!

Hi, I am new to the board, but was diagnosed with RSD last year after having a severe staph infection. I am sooo glad I found this forum because it makes me feel like I ma not going crazy. I have been to so many doctors that just keep testing me for this and for that after my GP referred me for RSD. I have been treated so badly by doctors that I am very leery about going to anyone for tests. I also have mild cerebral palsy and I actually have had doctors tell me that I didn't look like I have CP. I have had it since birth and had surgeries to correct my walking. I have RSD in my left leg, which used to be my strong one and it is slowly but surely spreading to my right leg and right arm. I am on Lexapro, Xanax,Amitriptiline,Vicobrofen,and Baclofen. I can't take any of the seizure meds and Topamax made my eyes swell shut. So, they are trying to regulate the meds that I am already on. My pain doctor is hesitant at giving me the pain blocks because of my CP. Thanks for listening and I look forward to reading everyone's stories. My family also thanks you because this forum has helped me soo much
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Dew58 (07-24-2009), DianaA (07-21-2009), loretta (07-21-2009), nancyinLA (07-21-2009)
 


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