I should also add that the treatments dont always work :(

And it looks like he tried to make it work for you, but it didnt work, and he is surprised at the fact that it didnt. It probably does in most cases, and that is why we dont see them on the forums as Jo stated.

[QUOTE=Dubious;544086]My last visit with my surgeon who perfromed the surgery which started my whole RSD experience, told me something very interesting last week. I am 15 months out from a horrible shoulder surgery.

He said, "I really don't know what to make of your RSD; I've had several RSD patients over the years and they ALL got better after stellate ganglion blocks."

I was speechless.

Has this been ANYONES experience with their MD? You were fine after stellate blocks? Everyone get better?

I'm curious...
hi i had my surgery on may6 2009 3 days after the surgery i go in to to see the doctor he tells me i have rsd because because my foot is sensitive 2 touch ,heat,and cold he tells me im so sorry i have a good doc i can send you to he sends me to pain management she says its rsd they give me all these pills they dont help alot of narcotice pills im so sick of pills i get lots of electric shocks in my foot so now all i do is go see pt and they hurt me even more the pain management doc says they want to schedule me for a nerve block to my spine i read on the internet that its not 100% effective so i cancell the procedere dont think i can take any more pain because im always in pain 24/7 i hope you get better soon

Hi,
 

My RSD started with TOS surgery but it still took 3 years to get a diagnoses. My PCP and PA had only had 1 other RSD case in their 20 years each of practice, the same with the TOS so they sent me out to so many Drs. to help diagnose me, including other TOS surgeons, Ortopedic Drs. Neurologist, Rheumotologist and so on. Finally a friend on the TOS forum called me and she told me what she thought I had. I researched it and then went back to my TOS Dr. who sent me to a great hand surgeon and he diagnosed me right off the bat. It's funny what different Drs. we all are diagnosed by.

My point being, how long has your PCP been in practice, when he says several, how many is that, 3, 4 in how many years time.

I had blocks after the 3 years period and they helped me a lot, I also had lidocaine injections which I just read in the Ladies Journal of June that Paula Abdul had them and that's what got her better.

I do consider myself in remission. I still have things like the cold feet and hands and my fingers spasm up off and on but other then that I am doing good. We have an Anesteologist here that I have seen work wonders with RSD patients with blocks, no matter how long they have RSD.

I am thinking your Dr. might not have had that many patients with RSD and how many have moved on to PM Drs. that he didn't know about.

Ada