Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-31-2009, 10:16 PM #11
loretta loretta is offline
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Hi hope4thebest,
How about asking the WC for a small portable spa? It's not impossible. I've heard of it being granted. An attorney could definetly give them a nudge. I wasn't injured on WC, injured by a jerk of a Dr. I didn't sue. Didn't have the emotional energy. I have paid out of pocket tons of money for massage therapy and about to start HBOT-probably $10K
I've been paying $250 an hr. to the best Dr. who has helped me beyond works. Keep me out of a wheel chair. My toes started curling up and didn't touch the floor. He had me in our heated pool every day doing exercises. In about 4 months my toes were touching the ground again. I have decreased different meds and feel my pain from anxiety and stress have decreased by other methods of relaxation.
Hope WC gets you a small spa. They come in 110 electric and do wonders. My girlfriend has one.
Take care, loretta
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Old 07-31-2009, 11:50 PM #12
hope4thebest hope4thebest is offline
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Hi Loretta,
thanks for the information..I have followed your posts and you are amazing at all the activity you do...I know you do a lot of relaxation methods..i try to do that as well....I meditate and I'm in a series of classes that teaches relaxation techniques...I also have a few C/D's (pain management) that I listen to at night while trying to fall asleep that really help. I like candles and have enjoyed them for years as i find them so soothing.

Can you tell me the name of the portable spa that your friend has...I'll look it up on the internet and see what it's like !!

it's great that you'll be able to undergo hbot treatment! I truly hope you get some relief from them...you have been through such an ordeal for so long, it is time for you to get some relief long-lasting !!

I have a silly hbot question!!! would it ever be possible to give just a limb hbot treatment ? rather than the whole body....I envision some kind of mini container that you could place just an arm or a leg into, and get the oxygen treatment directly to the limb!!!

Great idea, isn't it?? I've often wondered if that would be feasible or effective!
You are very fortunate to have such a caring and conscientious doctor!
Have a restful week-end!!!
Hope4thebest xox
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Old 08-01-2009, 06:25 PM #13
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hope4thebest,

the theory of HBOT, ªwhich some others here could explain better than I, is like this:

You're breathing under pressure.
This permeates Oxygen into your muscles "Under pressure".

I took my children to the FLA keys, and my son and I got certified for open water diving.
Now, I'm off course,
but,
at the end of that first (Physical day) as opposed to classrom stuff,
I thought, having simple rsd and tos, (as opposed to my tbi and discs now),
I'd NEVER be able to get out of bed the following day.
WRONG!
I woke up first, got my kids fed, and we were off on the first boat!
Again!
All day, four dives! (tanks).
Now, the Keys aren't deep. But, i got down to about 40-50 feet, and more. (33 feet is considered an "atmosphere", so at 33', you're @ two atmospheres of pressure, understand?)
So,
the air you breath in, is permeated doubly into your muscles and nerves.
I'm not sure if Oxygen is considered a narcotic, but I have it connected to my CPap machine, and I need a prescription.

So, then again, the third day, I was able to get up at dawn, and put on all the equipment , go out and pass the course.
My son took a bit longer, and my daughter was too young.

Anyway, it was quite an adventure, as I rose from the "bottom", I looked up, and my daughter was snorkeling. (supervised of course), and I was the only one who could see a Barracuda, as big as her! swimming parallel with her, an arms length away. (Dam!) that's panic!
The 'cuda looked her over, and swam off.

If you ever get a chance to get certified for diving, do so. (I'm pretty sure the "Y's" all have programs for this!
You can just get a tank of air, visit the closest deepest place or pool you can get into, and just sit on the bottom, and breathe you tank. Even the pool at the "Y".
Swim a little if you can. (This REALLY has an advantage over HBOT, it works your muscles, and the oxygen gets in deeper).

But, It's pretty nearly the same as having HBOT treatment.
After a days diving, I was invigorated, and ready to do Anything!

Diana, I hope will add to this for me, I think she's more qualified than I.

Thanks, and enjoy, (if you can)!

Pete
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Old 08-01-2009, 07:00 PM #14
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well, i don't feel so crazy now! thks to all.........
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Old 08-02-2009, 03:16 AM #15
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Hi Pete,
So would it be at least helpful to oxygenate by breathing in some oxygen from a mask or the little nostril apparatus, or does it have to be under pressure...I'm trying to figure out another way to get more oxygen in the system...
(Of course when I'm driving on the freeway I try and hold my breath now and then so I don't breath in the fumes through my A/C vents...!!!!!!)
That's great how the dives gave you more energy and made you feel so invigorated!! Are you still able to do that?
(Scary story about the barracuda....they have narly teeth!!)
Hope4thebest
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Old 08-02-2009, 05:10 PM #16
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I have had both..swelling with pain..less swelling and more pain. It is not a " To Swell or not to swell", mindset that causes pain.

I agree with Mike, as I am in a WC case with my CRPS I. It's like pulling teeth to get anything done through the WC system. Look up WC in dictionary: search DELAY

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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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