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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | |||
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Debbie, Re: The RSD Pins, the only thing I regret with the pins was not having RSD actually put on the pins. I have all of of the original information and samples that was sent and have been thinking about seeing what the cost would be for them to ad RSD to them.. Now days there are so many different pins out there for so many things, and not many know about the RSD. I also thought about having cards made up to attach them to. You know how other pins are attached to little cards and it tells about the pin? Well something like that would work too.
Oh how I miss the old "Faces of RSD" website. I wish I had a dollar for every hour Mike and I spent on the phone during the making of that website. You know we should try to start that back up.. I had thought about it, but then remembered how long and how much work it was. Poor Mike just gave up and didn't even do anything to the site after his wife died. I haven't talked to him in forever, but often wonder how he is doing. After his wife died suddenly I think he was really in a deep depression. The website was neat though, being able to see a face and read the story of how that person ended up with RSD. Well it is time to chill for the rest of the evening, if I can find a good movie..LOL I hope you all have a safe holiday weekend. Love, Janet |
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