i am going for a block on mon yaaa.my doc saud last time that i dont hae rsd that i should learn that i have crps. i thought it was the same.i am coming up on one year.i am understanding that if it hasnt spread by than it wont is this true

tied and in pain to day

RSD and CRPS are the same thing! CRPS is the newest name for RSD. I really wish that doctors would come up with just ONE name for RSD/CRPS so that it doesn't confuse people even more!!!

Unfortunately, RSD can spread at any time. Some people go years without it spreading and then it suddenly will and others can go forever without it spreading. Everyone with RSD is different and no two people will react the same. Personally, my RSD spread within 4 months from my left leg to my right arm and then spread to my other arm at the beginning of this year after an injury.

I wish you the very best of luck with your block and hope you get the pain relief you need and deserve!! I didn't respond well to the blocks but some people believe that they can put any spreading to a halt so hopefully that will be the case for you!!

Take care and please keep us posted! You will be in my thoughts and prayers on Monday!

Alison

i want to thank you for sharing your storie .I thing i was going on the why me boat.I needed to see what is in front of me.my first block was realy bad.the went in my neck and i had a horrible time.But the next time it was in my arm.The one I am having mon is in my arm.Last time it lasted 3 days the insurance company (which it is work men comp) almost said it ant worth it toke 4 months.I sry i am tired but thank you I would be interested in making a blog i should learn

Dear Robert,

I have had 7 Stellate Ganglion blocks in the neck, and they were very hard for me, too (I'm a wuss!). All of us at one time or another get on the "why me?" boat, see the thread titled "RSD and your Emotional State." I just had a horrible flare that lasted 3 weeks or so and cried all the time, please know that you are not alone. Come visit us any time, there are wonderful people here that will always try to help you feel better.

BTW, where did you end up going for treatment?

Don't let WC push you around. They are evil and will hurt you every chance they get. I sincerely hope you have a good lawyer to help you.

I can't help you on the blog, I haven't even managed to get my facebook page with pictures on it, I need my teenagers to help me and they have intense social lives going on at the moment.

XOXOX Sandy

Hi rtmcmahon631 and Welcome,
I'm sorry you have rsd. Some of us use the old term and some the newer term. But it's the same pain. A lot of us have had spread, mine didn't come right away. I wasn't diagnosed for 4 years. It came after surgery. I had a couple breast tumors removed. Right away I had swelling and pain, then frozen shoulder. The fluid they drew out of my arm was lime green, which I now know means infection. My surgeon passed me off to a rehab Dr. and physical therapy. It took 100 treatments and I did 100 massage therapy on my own. They told me not to be surprised if it went to the other shoulder. I thought ,that sounded odd. We moved from Oregon to Arizona and guess what. it moved to the other shoulder. more therapy. got my shoulder back. So I really had two remissions. About another year or so I was water skiing and felt my left hand pull a nerve.
Was misdiagnosed with rheumatoid arthritis. But that didn't make sense, the RA test was negative. So I then went back to Oregon to a Orthopedic sports injury hand specialist. RSD diagnosed in 1 minute, backed up by tests. It's now full body.
Going back to my breast biopsy, that's when my RSD started. The surgeon didn't even want me around,he passed me off to a rehab dr. to oversee the physical therapy.
No one even mentioned the word RSD. There is a statue of limitation of 2 years in most states from the time of neglience or 2 years from when you find out about the injury or ommission of care.
Delay of treatment is common with workmans comp insurance. Don't let them delay treatment for months on end. You loose the opportunity of possible remission. A lot of WC patients get their own attorney to make sure they are cared for. Some states allow lifetime medical care for RSD patients. You need to know your rights. It would be good to have a WC attorney familiar with RSD or at least one concerned enough to research it and it's lifetime effect on a person.
I hope the best for you. You deserve the best of care and sometimes the only way to get that is to have an attorney be your advocate, fighting for your rights. Most people are really helped to deal with a life altering challenge like RSD, with the help of a psychologist,psychiatrist. The last 5 years I have had one I see once a month. When my parents died, I saw one weekly for two years. So please get someone in your corner to help you get the best possible care available. RSD is a very expensive disorder to have, especially if it goes full body.
I wasn't able to work for years, but now am going to try to help with our home business. READ READ READ This is a wonderful group of people that collectively have a world of knowledge and truly understand what RSD is like.Please know that we care and just ask for help or any questions. Take care, loretta

thank you for taking the time to answer . i went on the web and got a lawyer that said in the title the have done some rsd than come home and they where on tv funny i now see them all the time.i have been seeing the ker some thing treatment i am going to read more

I want to say thank you for replying to me i am going to take the time and write all my things down before i go this is the first time in 4 months i have seen some one and it is getting worse i dont sleep more than 4 hours lol went to the drug store and got some sleep pills started with 2 three nites later i tried 6 nothing i think the made me more awake i know that it is not funny but it was.this doc said no operation on my elbow and we will see about a normal life. He said alot of people live with a torn tenate and have a normal life.lol i have to think the dont think what they say to people before they say it.again thanks