Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-08-2009, 03:54 PM #11
gabbycakes gabbycakes is offline
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Join Date: Oct 2008
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15 yr Member
gabbycakes gabbycakes is offline
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Join Date: Oct 2008
Posts: 518
15 yr Member
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I am so glad some one talked about this subject, I have been having the "body jerks" for about a year and 1/2 have had RSD right upper extremity for 5 years and pretty much has stayed in that area. I have done 3 - 5 day ketamine infusions which they think have stopped it from spreading more then it has. When I am in a flare it does spread to my face and legs but only during a flare.

The jerks are so weird I also get them at night when I am in bed trying to relax. I always thought it was the medication. I am going to ask my doctor at my next appt. Thanks for the info.

Gabbycakes



Quote:
Originally Posted by Breezy55 View Post
CZZ74: I also have these tremors and body jerks. They usually come at night time for me. Have you tried any kind of pt? Also I wanted to know if you use any kind of swimming type of therapy? I am just asking you this because I know that it has helped me to relax my body which helps to reduce the jerks that I get. Which are mainly in my legs and in both arms.I do get tremors in my abdomen only when I get some type of a panic attack. Your right along with everyone else the worse thing is that this keeps you awake during the night. I't seems right when I am about to fall asleep then BAM-One of those jerks comes along. My problem is I can not take many meds because I have chronic IBS. I wish You the best! Breezy55
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