I have been getting some serious muscle twitching/spasms also. It is very weird to feel this. I pray for relief for all of us. No one should suffer like we do.

So sorry your having the spasms. They can be pretty bad at times. I've had rsd now for 10 yrs. At first my foot wouldcurl up so tight and my husband would have to try and get the foot straight again. Now i get them when i take off my brace at night. My doc raised my oxycontin dose from 20 mg. To 80 mgs and this has helped alot.not so happy about taking such a high dose, but it has done wonders for the spasms. I hope you can find something that workes for you.

Sue k

I've had rsd 21 yrs. the first 4 yrs. I jerked almost constantly, pt, surgery , drugs didn't help. massage therapist convinced me to see a chiropractor. He used a hand activator that gently tapped neck. Shockingly I quit for hours. i went every day, then every other day for couple of mnths, finally once a month. It was painful because my other muscles hurt because they had been out of alinment for yrs. but it worked,( I rarely jerk now, sometimes muscle spasms) also made colon and bladder problems.bearable.( don't know how that worked but loved it) my leg was also shorter and a little curled and it made it better too. he retired and i used massage and reflexology but finally saw reg chiro and he keeps me going. I saw him for 6 mths before i let him touch my neck.(if tapping made me quit jerking, popping might make me start back) but it didn't ( still grosses me out when he does it.) I've been seeing him for abt 6 yrs, he even massages neck and back so ins pays for it. I know Chiro isn't for everyone but it has been a miracle for me.

I find Soma (muscle relaxer) and Xanax to be very helpful with the spasms when it gets very violent & won't let up. I take these along with my pain meds.

Hello
I have full body RSD and I get spasms all over daily, I noticed the spasm's when the RSD was first spreading into diffrent areas of my body.. the spasm's were like a precurser (literaly I cursed), back then my doctor's and wcb denied spread was possible. I take baclofen as well and it helps alot.

On another note to let you know, this post was actualy started a few years ago so always look at original posting dates if you are expecting an answer from the origional posters.

Vanessa (this post's origionator) has since gone into remission.
She was a very helpful suportive young woman around here and we miss her dearly, I hope she is making a wonderful healthy life for herself.

hugs and keep your hopes up,
Sandra

Nice to "meet" you, Becca. Wow, you've had RSD for a while...

Since you are around my age, I was wondering if I could ask you a few questions??


For how long did you have RSD before being diagnosed?

When you were first diagnosed, what did you do (what medication, PT, OT, etc)?

Were you told you would/ woudn't fully recover? What did the Doctors think of your case?

You mentioned you had a nerve block done. Did your Dr. try everything (s)he could before doing that? Was it sucessful? How much pain are you living with now? Is it getting better, worse or staying the same? Has it ever completely went away and then came back?

Sorry for so many questions. I hope you don't mind. I wanted to ask someone my age these questions to see what they did, and what they were told by their Dr.. Thanks!

Just wanted to thank everyone who responded to my post! It is nice to meet you all, too. This board/ everyone on it has been a help to me in my search for answers to the many questions RSD brings.

All I want for Christmas is to be pain and spasm Free. I get so bad that I cry yes a man that cries. my story **

Hi Jeffrey and WELCOME to Neurotalk!!

You've found a great place with wonderful, caring people!!

I've been battling RSD for 5+ years and understand the crying!! I never imagined that pain like this existed... now almost every day I can redefine what a pain level of 10 means.

It's okay for a man to cry.... RSD just bites!!

Please feel free to roam around and join in anywhere!!!
Ask questions if you have them and help others where you can!

I hope to see you around the boards!!!

Abbie