NeuroTalk Support Groups - Muscle spasms/ twitching

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Muscle spasms/ twitching (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/9621-muscle-spasms-twitching.html)

Hi Jeffrey and WELCOME to Neurotalk!!

You've found a great place with wonderful, caring people!!

I've been battling RSD for 5+ years and understand the crying!! I never imagined that pain like this existed... now almost every day I can redefine what a pain level of 10 means.

It's okay for a man to cry.... RSD just bites!!

Please feel free to roam around and join in anywhere!!!
Ask questions if you have them and help others where you can!

I hope to see you around the boards!!!
:hug:
Abbie

Hello, and welcome! I, too suffer from constant spasms and muscle cramps (left buttock and both hamstrings). It seems that TONS of water, bananas and Potassium supplements and help. I take 40mg of Baclofen each day, and just started on CoQ10, which I buy at the local drug store. (My P.T. said that it helps your cells absorb oxygen, but it takes about three weeks to feel the benefits...) When I have a really bad set of spasms, I drink Odwella pomegranate juice. It's about $4.00 for a small bottle, but very much worth it. I have learned that lots of water and juice and lots of agonizing stretching seem to work the best. Good luck and welcome home!

I've had RSD for around 5 years, started in my left arm/hand, but has recently spread to my ankle and foot on left side. I've had the twitching and jerking for a long time now, at first it was quite subtle but now I couldn't hide it if I tried. I think someone else mentioned hot cups of tea/coffee - I've burned myself on a few occasions. A few weeks ago my leg was twitching and my slipper actually came off and hit my husband. No bad thing maybe!

Vanessa, I wonder if your pain doctor has ever mentioned Vitamin C to you? I was recently advised to start taking this in addition to my other pain medication. So far I can't say I've noticed a difference in my pain, but it's early days yet.

I'm pretty new to Neurotalk, but I know there are lots of helpful and very knowledgeable people here for you to talk to.

Take care :)

Quote:

Originally Posted by InHisHands (Post 52833)

Do you have any ideas of what to do for sensitivity to touch? That is a major problem for me. I am just SO sensitive. I am doing desensitization sticks at PT, fluido (ground up corn husks blown all over your arm w/ heat!) and whirlpool.

I am thankful that my Dr. found out I had RSD before it got worse, so that hopefully I can recover.

Thanks for the help. I must go now, my arms are had it! Typing is not easy, but I am trying to keep my hands moving and I'm trying to do as much as I can. :eek:

If your insurance will cover it, ask your Dr. about Hyperbaric Oxygen Therapy. I have had RSD in my Rt. ankle/leg and my lower spine for almost 5 years now. In September, I did 20 HBOT treatments, and my sensitivity is SOOOOOO much better. The deep, stabbing pains never went away, but the color and temperature are almost normal and my skin can tolerate normal stimuli like shower spray, my covers, and even my pant legs. This is a BIG improvement for me. Since yours was caught so soon, you might get even better results than I did. Lots of people have gone into remission after HBOT. Good luck, and hope you get some relief soon. :)