Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-03-2009, 04:28 PM #1
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Default Hi from an old friend need help

Hi everybody !
I am an old friend of this site and haven't been on for a while. Things are going o.k. still hurt really bad with the RSD and TOS but I am getting trigger point shots and they seem to help every 2 months or so... But my reason for posting is I need some help ! I am finally moving to Florida in October and I would like to know if there is anyone who knows and Doctor's in Florida... Sarasota, Englewood, Port Charlotte area !! T

That is where I will be moving too and any help I could get is greatly appreciated ! I do read quite a bit and stay int eh weeds mostly now but I have been keeping up and Hi to everyone and I hope you all have a pain free time of it !
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Old 08-03-2009, 07:58 PM #2
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Hi Dolfinz and welcome back,
The warmer weather should be much better for you. I live in Arizona last 11 years. Was in Oregon. I almost went to Florida to Dr. Hooshmand. He is now retired, but spent years specializing in RSD. His website is still up and very knowledgable. Another Dr. I believe has taken over his practice. I'm not sure of the area-Port something. Anyway, you can get his address, phone number and name by going to www.rsdrx.com Hope the best for you. Take care and safe move, loretta
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Old 08-09-2009, 08:18 AM #3
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Welcome back.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-09-2009, 04:05 PM #4
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Thanks for the info Loretta and I did go to his website.. he is in Vero Beach which is on the East side... But I have been able to find a number of them in Englewood from the yellow pages ! A few friends of mine down there have also given me names.. If anyone else out there lives in Florida please let me know !
Thanks for all the messages welcoming me back !
Dolfinz
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Old 08-09-2009, 05:32 PM #5
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Hi Dolfinz,
Thank you for the nice reply. I thought of something else. If you go to RSDSA, you'll see Support I think toward the left of the page. Push Support and that will bring a page that has a spot where you put in your zip code. That will give you the closest places that have support groups. You will receive the name and phone number of a contact person. Going to a local meeting can be very encouraging and informative, plus you can ask who in the area is specializing in RSD and get some Drs. names. The support groups have Drs. pharmacists, therapists and others give speeches. This year, we had the RSDSA annual meeting at one of our local hospitals. We had 135 of us in attendance on Saturday, and Sunday was for local physicians, therapists, etc. They video taped it to make available a DVD. It only cost $10 to be a member. We had a scientist and I think 4 RSD Drs. It was very informative and also had a question and answer session.
Just a side note, I found my wonderful RSD Dr. in the yellow pages. I have had several Drs, but he is the BEST. My neurologist diagnosed me with generalized or full body RSD and suggested i see a phychiatrist to help me deal with all the spread. I didn't like his two suggestions, so looked in the yellow pages. I knew the first visit, this was the one.That was 5 years ago. Hope you find someone knowledgeable and compassionate too. Take care, your friend, loretta I live in Arizona am 61 had RSD 14 years-following surgery, then remission, then nerve pull in hand while waterskiing. Let us know when you get settled and find your Dr. Hope the best for you, loretta
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Old 08-11-2009, 01:08 AM #6
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Keep your chin up
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-11-2009, 07:45 PM #7
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Thumbs up Long time friend..

Hi Dolfinz,
I remember you, sory I am not from that area.. but I would also like to welcome you back, we have missed you hon.

hugs,
Sandra
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Old 08-12-2009, 06:45 AM #8
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Thank You Sandel... It's been a while but things are going good.. just in lot of pain since coming back to Mass. a couple of weeks ago ! It seems the colder weather really does effect me in alot of ways... hence the reason to move South !! Hope things are well with you and everyone else ! Thnaks for all the help !!

Dolfinz
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