Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-04-2009, 04:13 AM #1
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
Default hearing

Good morning to you all.

I am curious if any of you have problems with your hearing or, more precisely, with understanding speech.
I have had tinnitus in both ears for about 22 years now and it gets a little worse every year.
Having a conversation is very stressful and watching TV or listening to music is not the pleasure it used to be. I might as well watch a silent movie or listen to an instrumental performance rather than a song.

The only way I can follow a conversation is, if there is no background noise and the person is speaking very slowly and and enunciates very clearly.
I have seen an otolaryngologist and had ear tests done and the verdict was, loss of high-frequency hearing but, I seem to hear high musical notes quite well.

In the accident that caused my RSD I also sustained a brain-injury and I now wonder if the hearing or understanding problem is RSD related or due to the brain-injury. It seems to me that the brain does not process the input from the aural nerve fast enough and gets overwhelmed by the constant stream of signals.

If any of you have any experience with this or any ideas, I'd appreciate your input.

Thank you.

Woodsman
woodsman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AintSoBad (08-06-2009), Dew58 (08-04-2009), loretta (08-04-2009)

advertisement
Old 08-04-2009, 10:01 AM #2
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
10 yr Member
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
10 yr Member
Default

HI ,,, I will keep you all lifted up in prayer,,,,,,,,,,bobber
bobber is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-04-2009, 10:05 AM #3
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
10 yr Member
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
10 yr Member
Default

Its not uncommon for older people ,,exspecially the elderly,, to lose the ability to hear high pitch sounds,,,exspecially smoke detectors,,i know alot of elderly family memebers and friends, that have this problem,,,bass sounds they can hear,,or may be a little hard of hearing ,,but its not uncommon as we get older not to be able to hear high pitch sounds,,personally,i would think it would be the other way around,,but its not,,i would still seek the advice from your dr,,,good luck,,bobber ,,,,,,,,,,,plus its dangerous to them and you when driving or walking thru a populous place,,and not able to hear a smoke detector,,,they do make devices to flash lights in your house when your smoke detector goes off,,,and or change the sound,,,good luck
bobber is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-04-2009, 11:29 AM #4
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,686
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,686
15 yr Member
Default

I wonder too if it might be some sort of cognition issue..
foggy brain type of thing..??
which could go back to the brain injury.
Is it only sounds that are a problem, or comprehending what is being said?

When my RSI/TOS was at it worst I had trouble following conversations in a crowded places or large groups, I couldn't multi task at all.
I had to focus on one thing at a time, it was kind of like I had ADD & a bit of Alzheimer's for awhile..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-05-2009, 12:56 AM #5
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

Hi woodsman,
I have had tinnitus in my right ear for about 15 years...it is a constant screeching sound..when i first noticed it, I almost had an anxiety attack because it was constant and there is not way to escape it..

After i started neurontin the tinnitus has become worse, much louder..
During the day, the noise of the day drowns out some of the tinnitus, but at night it is deafening...i have a selection of C.D.s that I listen to as I'm trying to fall asleep.

just wondering if your issues might be related to any meds you might be taking..
hope4thebest
hope4thebest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-05-2009, 04:01 AM #6
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
Default re: hearing

Good morning.

Thank you for your reply hope4thebest.
The tinnitus may be part of the problem and that may be related to medication.
Initially I took large amounts of Tylenol3, Talwin and Atasol30 but, I soon realized that those meds did not do a thing for the pain and I gave them up in 1984. After that I took Anaprox, 275mg three times a day for 23 years but quit that as well after my heart attack. When I stopped taking Anaprox, I found that this med had not done a thing for the pain either; Anaprox may have caused the heart attack since I don't have atherosclerosis.

Jo*mar, you may be right on the money with the "cognition issue", that has occurred to me as well.
Some problem with sounds may be related to the tinnitus; the phone seems to be ringing at the same frequency as my ears so that I have trouble hearing that. When it comes to speech though there seems to be another issue.
If it were loss of high frequency hearing I should have more trouble understanding women than men but, that is not the case in all instances.
Watching TV I can understand some female newscasters quite well and some males not at all. TV adds, where the volume is kept at a constant amplitude, I can understand without problem. The highest note on my keyboard is C7 at 2093 Hertz, well above the limit of a woman's speech and I can hear that even at low volume so, high frequency hearing loss does not seem to be the problem.

Turning up the volume is no help and only leads, eventually, to pain.
If someone speaks slowly and clearly I have no problem following the conversation especially when there is no background noise. If two people speak at the same time I am lost so, cognition seems a more likely culprit than hearing.

bobber, you are correct of course that, as we get older we lose some hearing but, I am only 65 and other than speech and the telephone I don't seem to have a problem hearing sounds. I sing in two choirs and would expect to have a real problem with learning new songs if my hearing were impaired. The problem I have is, understanding what is said and, remembering and concentrating.
Maybe it's a combination of RSD and brain injury and I will just have to live with it. The Otolaringologist I saw was no help; when I told him that something in my head, around the ears, felt swollen all the time, he very curtly said, " nothing is swollen." It seems that Doctors around here are not interested in pursuing any difficult problem; it interferes with looking after their, admittedly very high patient load.

Anyway, thank you all for your input, I appreciate it.

woodsman
woodsman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bobber (08-07-2009), Dew58 (08-06-2009), loretta (08-05-2009)
Old 08-05-2009, 03:24 PM #7
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default

Howdy bro,

I have some serious hearing problems too, and it feels like my ears are stuffed up. At first I would always be messing with my ears as if there was wax build up. Also there is the annoying constant tinnitus, and I would also get a roaring sound every so often that would lead to a round of vertigo.....that was always fun.

I used to love to listen to music too, and now that joy is pretty much gone because it just doesnt sound right, the bass sounds like it is distorted. I have the same problem hearing people as you do. If we are in a busy place I can almost forget it (I just sit there with this cheesy grin ), or if a TV is playing in the background, this too will make it nearly impossible to understand what people are saying.

I do believe the RSD has added to the effects of the troubles by somehow affecting the nerves in the ears. My ear nose and throat doc says it is highly possible as my hearing drastically got worse since getting the RSD. I have had the meniere's for about 30 years, and since RSD have had the most trouble with it.

I guess there really isnt much they can do to help it, and the darn hearing aids dont really help either because we hear the sounds coming in all fuzzled up, and it hurts LOL.

I wish I had some ideas on how to help, or what you might try, but im kinda in the same boat. Have tried all the little gadgets from TV, and trun the TV up with little luck. Got tired of saying "huh", or "what was that again", or my favorite...."SPEAK UP!".
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-06-2009, 02:14 AM #8
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

Hi Allen!
My mother is severely hard of hearing..also has severe tinnitus in one ear...
She had a hard time hearing the T.V. and would crank the volume up to where her neighbors were "enjoying " the same show...
I got a pair of speakers from Radio Shack and hooked them up from the t.V. to a little table next to where she sits...now all she has to do is control the volume on the speakers and she can hear the T.V. perfectly from the speakers!!
I hope this helps!!

hope4thebest
hope4thebest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-06-2009, 05:48 AM #9
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
woodsman woodsman is offline
Junior Member
 
Join Date: Aug 2009
Posts: 11
10 yr Member
Default right on Allen

[QUOTE=allentgamer;547948]Howdy bro,

I have some serious hearing problems too, and it feels like my ears are stuffed up. At first I would always be messing with my ears as if there was wax build up. Also there is the annoying constant tinnitus, and I would also get a roaring sound every so often that would lead to a round of vertigo.....that was always fun.

Hi Allen.
You describe the problem very well Allen.
The stuffed up feeling, the roaring and the vertigo. I frequently lose my balance
and stagger like a drunk. When I lie down, I have to start out on my left side. If I try to lie on my back, I get nausea and everything starts to spin. After lying on my left side for a while I can turn onto my back without problem.
I have told my ENT about the RSD but he didn't respond; doesn't have a clue or doesn't want to deal with it like most other Docs.
I will just have to grin and bear it it seems.

hope4thebest,
the solution you found for your mother sounds like an idea worth trying. I'll see what I can find here in the line of speakers and try it myself.

Thanks for your input.

woodsman
woodsman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (08-06-2009)
Old 08-06-2009, 12:30 PM #10
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

Hi Woodsman,

I suffer tinnitus as a result of a reaction to a drug that was administered to me for my RSD (IV Pamidronate) apparently a very rare side effect, the story of my life. I also developed vertigo now mostly triggered when I travel on planes, trains or boats which is often. When I first got tinnitus it was like a loud roaring motor inside my head. I could not hear what anyone was saying to me over top of the motor noise in my head, it was very frightening. The doctor gave me a course of prednisone, along with 20 sessions in a HBOT chamber. My vertigo started after the HBOT dives. Ultimately between the 2 treatments it calmed things down but the tinnitus kept coming back sometimes quite significantly other times just a low buzzing sound.

My ENT specialist did not want to keep giving me prednisone because of my history with RSD bone loss and rare side effects.

He offered me a little known treatment that stopped the loud roaring noise in it's tracks. He gave me 3 treatments of a steroid injection directly into the eardrum. At first I rejected it for fear of the pain but I honestly got to the point where I was loosing my mind so I decided to go ahead and try the injections and I'm very happy I did as it has made a big difference for me. (now I know why Van Gogh cut his ear off, they say he suffered from tinnitus too). Apparently one of the few treatments that offer any significant relief from tinnitus is IV lidocaine, which I also have every 3 weeks

Now my tinnitus is mild a very low buzzing sound that still comes and goes but no where near as bad as the loud motor, mainly it is intensified typically when I have a head cold or when I fly.

In the end I did lose part of my hearing in the high frequencies so I can related to the frustrations you have with background noise causing confusion. I don’t like to be in loud places trying to have a conversation.

The question is was I predisposed to tinnitus because I have RSD or is it my RSD that causes it to flare up? I recently read that it is now thought that the noise originates in the brain and not in the ear, as was previously believed. If the ear is damaged by exposure to loud noises or certain medications (including aspirin), the brain may try to compensate and end up producing electrical signals that a person hears as a ringing in the ears. .

Here is a link to the Mayo Clinic that discussed causes of tinnitus.
http://www.mayoclinic.com/health/tin...SECTION=causes

MsL
Mslday is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SSD Hearing, do you need to be there? Piruka Social Security Disability 3 05-09-2014 11:06 AM
alj hearing jr45511 Social Security Disability 10 12-13-2009 09:03 PM
alj hearing stan Social Security Disability 1 05-30-2008 08:35 AM
ALJ Hearing msarkie Multiple Sclerosis 5 02-13-2008 02:06 AM
SS Hearing jllenrad Reflex Sympathetic Dystrophy (RSD and CRPS) 4 08-28-2007 11:11 PM


All times are GMT -5. The time now is 07:07 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.