NeuroTalk Support Groups - How would u guys describe a flare exactly??

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- - How would u guys describe a flare exactly?? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/96447-guys-describe-flare-exactly.html)

Quote:

Originally Posted by Dubious (Post 548127)

My flare ups will be a reoccurance of the same symptoms that I had before the SGB's. Just not quite as severe. About every 3 months or so, I lose control (not that I had any) where my forearm will swell, the veins become distended for no reason, any pressure or light touch will hurt and then the burning kicks in.

The pain will progress into my hand and up into my upper arm and shoulder. It is sort of a reminder of a much, much more intense issue that I dealt with last year prior to the blocks. In short, I can say that the blocks cut the intensity, extend a lesser pain-intensity period, but on balance, at the end of 3 months or so, my arm and hand really hurts! The blocks are useful for 2-3 months, then it all starts over!

Ever see the movie "Ground Hog Day?"

Hi Dubious. I can so relate to that statement about "ground hog day".
The blocks worked for me in the beginning, but the doctors finally discontinued them. The Hyperbaric Oxygen Therapy works great. But again, it lasts about 8 months for me then I have to dive again. If not, I have to do maintinence dives like others on the forum who have chambers. My concern now is the repeated use of HBOT or where to find the answerr to that.
I really don't know what the answer to this million dollar question is.
di

Quote:

Originally Posted by DianaA (Post 548423)

How often and where do u go for the hbot??:eek:

Hi Diana,
What do you mean by repeated use of HBOT? Is there a downside to repeated use?
My Dr.'s two new clinics are open now and he said he was going to go in HBOT with his wife every day. His patients are having great success in the chamber. Healing from surgical procedures. And other ailments other than RSD. Just wondering about your comment about HBOT,

Hey Dubious--What a hilarious statement about Ground Hog Day! That is so funny!!!!!
I think I'll make a sign on my door and put Ground Hog Day. or better yet, I think I'll watch the DVD tonight.
We all have at least some part of Ground Hog Day come back each day. A sense of humor is so good for us. I read a book a long time ago, called You Can't Afford the Luxury of a Negative Thought. I remember reading it outloud on our boat on a lake. Our friends who are counselors laughed and laughed-we all did. Peter McWilliams is one of the writers.
He was involved in the 5 stages of grief when that came out a long time ago.
Happiness is an inside job.
Take care everyone, your friend,loretta

For me a flare ( which i have been experiencing this past week) is the terrible burning pain and redness and swelling in my RSD foot and leg, and then the burn starts in my right foot and leg, and my face and mouth burn....and I get very, very cold and dizzy.
What a combo ...the burn and the cold...:eek:

It could be a variety of things.....

1. the monthly shots that my foot doc administers directly into the nerves have worn off...

2....the warm pool aqua therapy ended, ( insurance...)and although it would aggravate the nerves in my limbs, it kept the swelling down...the edema is really bad in my RSD foot right now, to where if I push down on the skin, it doesn't bounce back up (ya know, like it does on the Pillsbury Boy...)

3. I cut back a little on my Neurontin, because it was making my brain feel like a bad foggy day in San Francisco.... forgetting words and losing files at work....and the weight gain is awful...

4. my worse fear is that the RSD is getting worse...

Hope4thebest