Hi all,
 

When I was in the Drs. office Friday mine was 98 underneath. It has been staying in the 70s. Before RSD it was always low.

Friday when I went in I was in a lot of pain due to hurting my finger and it and the weather bringing my RSD out in my arm and hand.

Mine seems to be pain related. I get really stressed when I am in so much pain I can't get it down.

Ada

Just reading this thread again. Blood pressure is controlled by the autonomic nervous system. CRPS/RSD involves the autonomic nervous system. The sweating is an autonomic response. The autonomic nervous system controls the things that happen "automatically" like your heart beat, your blood pressure, sweating etc. A cardiologist and a vascular physician/cardiologist both determined that my wildly fluctuating blood pressure was caused by CRPS/RSD. I had a full cardiac work up and have no heart problem. I get paroxysmal atrial fibrulation and have passed out from low blood pressure, breaking my nose on one occasion. I can have very high or very low BP throughout the day. Medication exaggerates the cardiac response so I am on no medication for CRPS. However as mentioned in my previous post, controlled breathing has stabilized my blood pressure to a large extent. The swings are still there but not as extreme. I haven't passed out in over 12 months.

Controlled breathing involves breathing out twice as long as in. The recommendation is for 15minutes at least 3 times a week. My GP says to do it for a few minutes up to five times a day every day. If I stop for any reason then the BP goes up.

jeisea
http://www.crps-rsd-a-better-life.blogspot.com

Pressure
 

The last few times I went to the doctor they said my blood pressure was slightly elevated. Not sure it was nerves because of my lack of fondness I've come to have for the doctors I've met or it's my medication or even RSD.

Good question!

Joan, you're in Massachusetts as well? Who do you see...if you don't mind me asking?

:grouphug:

Hey Nessa.

I have bp problems too. It didnt start until rsd. They dont know wen exactly after.

I dont think it is all medicine related. I had bp reach like 220/175. no family history (except my grandma who got it young, but she had 11 children and it developed during 11th birth and some relatives who dont watch their diet), not my heart and kidneys and stuff, not medicines (bc wasnt on meds wen dx w/ hypertension bc of stupid "specialist" who says no meds, your faking it, fight through it, etc. but im sure meds do affect it), not stress (was on darvacet (sp?) at er one time and bp still through the roof although, once again, im sure stress doesnt help it) not diet (im 16, HATE salt, and i am tiny). i 99.9% do think it is rsd related (.1% is incase it happens to be VERY coincidential). it might not be listed under signs/symptoms, but a lot of our issues arent listed either.

thats my opinion on this. hope this helps.

:hug::hug:

nikki

:eek:Gosh nikki.

I do hope they hospitalised you and ran lots of tests,with a Diastolic of 175 you were in extreme danger. It is almost unheard of at the rate. I hope it is all under control now.
Take care
Tayla:hug:

Hi Nikki,
 

That is extremely high blood pressure. I lost Bill to high blood pressure. You realy need to get that checked.

I had mine back down until this week and now it is back up again. I guess RSD does mess with the heart.

Ada

I have blood pressure problems caused by RSD and autonomic system problems. I get very low and very high blood pressure - it's normally too low and I have POTS. I pass out an awful lot (currently about 50 times a day) although this isn't always from blood pressure but also from pain/ neck/ whatever. I also have tachycardia and my pulse will go VERY high (170 bpm is worst reading I had) and then slow down tons (brachycardia). In the end the GP reckons that it is just pain/ RSD. I suppose it doesn't help that my mums side of the family all have very low blood pressure and my dads all have very high blood pressure.

Love ya Ness

Frogga xxxxxx

Yeah. Its under control now. That was 4-5ish months ago. It only reached that once and it put me in the er that night and at the top of the list in seeing the dr for my bp. I saw dr that next morning.

Frogga
You can stabilize the fluctuations in BP to a fair extent by practising controlled breathing. Resmet make a machine that takes you through a breathing exercise. You can do it yourself by working out how many counts you normally breathe in and breathe out twice that number. The research say if you do it for 15 minutes at least 3 times a week you will overall reduce high blood pressure. My GP recommends doing it for 3-5mins before breakfast, before morning tea, before lunch, before afternoon tea and after dinner. This has worked to stabilize my BP to a fair extent. Sudden exercise still causes a problem as does stress.

You can look this up on google. Hope it helps

jeisea
http://www.crps-rsd-a-better-life.blogspot.com

PS always seek medical advice before trying anything new.

Hi Ness

I've had the same thing with RSD. MY blood pressure would be very high and very low and fluctuate all day. Any stress and it went wild. Something like going to the toilet would send it up and then plummeting so that I would find myself unconscious on the floor. Even broke my nose once hitting the tiles.

Last year I was treated with Yamamoto New Scalp Acupuncture. After five treatments my autonomic system returned to normal. Crps symptoms also settled. I was so happy that I went fishing and ruptured my ligaments. The pain involved in that accident brought the whole thing back. Three months ago I had another series of Yamamoto treatments. I again had the same result and have been in remission ever since. This has proven to me that the cardiac stuff was CRPS caused as my cardiologist had said. I can't believe that it's all normal now. I just have to be careful not to have another accident.

Not sure where you are but I know that people in Japan, Australia, Germany and now America are trained in this. YNSA was developed by a physician to treat stroke patients. It's used for MS, Parkinson's and neurological problems including the treatment of CRPS.