Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-14-2009, 08:25 AM #11
daniella daniella is offline
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Did you ask your doctor why after so many he is choosing to do more? I know my one block made me worse but even if it did nothing that plan was to not continue them. I would ask and also about other treatment you could try
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Old 08-14-2009, 09:29 AM #12
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I really hope you find something that gives you some relief. I totally agree with the others on here who have said "why keep doing them if they aren't working?". My RSD didn't spread until after my second nerve block. Within days of the effects wearing off, it spread up my leg and into my knee. My doc said he doesn't do more than a two or three if they aren't working. He said some doctors will do 20 or 30 of them, and there is NO reason for them if the first few didn't have the desired effect. Talk to your doctor and tell him/her your concerns about continuing the blocks. Good luck.
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Old 08-14-2009, 03:02 PM #13
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Sorry to hear that the nerve block didn't help you, Kate! I agree with what the others said about now probably being a good time for you to try a different treatment seeing as though it looks like they are no longer working for you - theres no point in going through all of that if you aren't getting any relief!

I didn't have good results from my nerve blocks at all. The first one I had, my doctor injected directly into my RSD leg and it affected my coordination (I was left wheelchair bound for 13 months). My Doctor didn't know at the time unfortunately that you should never inject into an RSD limb. A few months later, I had to have an infected ingrown toenail removed on my RSD leg and my doctor did a ring block which caused me to develop really bad myoclonic spasms. My doctor told me that my nerve are REALLY 'wound up' and that I must stay away from any procedures to all of my RSD limbs if at all possible.

I hope you start feeling better soon and you are in my thoughts!
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Old 08-17-2009, 06:54 AM #14
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..positive energy sent your way,Kate
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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