Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-11-2009, 11:46 PM #1
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Hi All,

Will you please keep me in your thoughts and prayers tomorrow, I am having my 2nd sympathetic nerve block.

Thanks and hugs to all,

Kate
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Old 08-12-2009, 01:46 AM #2
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Hi Kate,
I've had six without sedation..
Try and go in in a relaxed state...they played some music for me during my blocks..that was helpful!! Maybe you can bring some of your own soothing music that you like if they will allow that!!
My lumbar blocks took about 20 minutes to half an hour..before you know it, it's done!
Let us know how it goes!!

Take good care!
I'll be thinkin' 'bout ya!!
Hope4thebest (((((( hugs))))))
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Old 08-12-2009, 10:58 AM #3
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Sending thoughts. I hope you get relief.
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Old 08-12-2009, 10:02 PM #4
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I will keep you in my prayers. I think the nerve block is my next step. Hope all goes well for you!
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Old 08-12-2009, 11:32 PM #5
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I will keep you in my prayers. I think the nerve block is my next step. Hope all goes well for you!
Hi Kate,

I have had 7 blocks since my CRPS DX last June 08. They always help me, for 2 or 3 months anyway! Hopefully your issues are ones of SMP that will respond to the blocks favorably. I do have a complication from the last one that is unrelated to CRPS. Prayers and best of luck to you!
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Old 08-13-2009, 03:13 AM #6
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Hope you are doing well since your block
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-14-2009, 01:42 AM #7
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Hi All,

Thanks for all the prayers and good thoughts. You are all greatly appreciated. This is a great group of people who are very supportive and helpful.

Anyway since having RSD I have had one sympathetic nerve block on the left and one on the right. In total I have had 8 or 9 ESI/nerve blocks from 2003, the sad part is I had never had a ESI/nerve block hep me. I always hope and tell my usband to hope maybe this is the one that will do the trick.

After talking to my husband I don't think or really want another ESI/Nerve block again. But you never know, I will never give up on having hope that something someday will work.

I know I need to tell my story from 2003 until now in the introduction area to make it easier for all of you since your missing over 6 years if pain history.




Thanks,

Kate
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Old 08-14-2009, 01:59 AM #8
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Thinking of you, Kate.
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-14-2009, 05:37 AM #9
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Kate,

This one didn't help either? Maybe it's too soon to tell... or... I hate giving up hope on things too, but maybe there are other things out there for you that you haven't tried yet. I'm wondering why they keep doing the blocks if they don't work...

Hang in there!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-14-2009, 07:21 AM #10
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Quote:
Originally Posted by baseballfan View Post
Hi All,
I had never had a ESI/nerve block hep me. I always hope and tell my usband to hope maybe this is the one that will do the trick.

Kate
Kate,

Yes, that sometimes happens. Treatments that the doctors say "always help" do not a thing for us RSDers. I have had a few cortisone injections given by orthopedic physicians that do absolutely nothing. Only the topical anesthetic feels good.

After eight or nine blocks, I would personally agree that it is time to move on to trying something else. Either the doctors are missing the nerves altogether, or it just does not work for you. Why take the time and effort for an end result of nothing?

Hoping for better futures for you,

Mike
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