Hey Kate,

I agree with what the others said about different doctors having different opinions. My Doctor told me that I nearly have full body RSD (my RSD is currently in my left leg and both arms).

My PM Doctor said that he classifies full body and internal differently. For example, if someone came with RSD in one of their limbs and internally, he'd say that they have internal RSD and if someone came with pain everywhere, he'd say that they have full body RSD.

I'd speak to your doctor and see what he / she says. I really wish doctors would all agree with eachother rather than every one having different opinions lol!!

I hope you start feeling better soon! You're in my thoughts!

Alison.

PS: I read your Blog and really enjoyed it! Your kids are all adorable!

Thanks Alison. I read yours too! It's nice to be able to read other people's blogs about how they juggle their RSD with their family life. xx

Thanks for all the replies. I'm sad to hear so many of you are dealing with this through your full body. I count myself very lucky that after 9 years with this monster I still only have it in two limbs, not all of them. Big hugs to all of you. xx