NeuroTalk Support Groups - RSD and small nerve neuropathy

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD and small nerve neuropathy (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/97617-rsd-nerve-neuropathy.html)

Hopeful,

I see a psychologist every 2 weeks to deal with my life changes because of RSD/CRPS. It has made a huge difference in my perception of the major changes that have taken place since my dx. I had to stop working because of the daily med cocktail I have to take to ease the horrid pain. The meds calm the burn and deep aches, and the by-products from the meds make it impossible to focus on anything for a prolonged period of time. I attempted to do a job(2 months) that was suppose to be sedentary(Ha!), and it did not work out.

That was a very difficult step for me, to stop working and stay at home. This all after achieving a dual masters degree in fine arts and psychology. At first, I was so angry about working so hard for my education, and the pedigree of my degrees...as in, "what was the point?" I no longer feel that way, as my education enhances who I am.
http://i25.tinypic.com/2zsv8cp.jpg
Keep your chin up:hug:

Sherrie, Hi I have a question for you

Hi Sherrie, could you explain what the organ involvement is? How it is diagnosied? And how it is treated. I too have full body, have been told some symptoms are organ related but do not understand. any explanation wouold be appreciated. thank you cz

Quote:

Originally Posted by SBOWLING (Post 551292)

Welcome to NT, sorry you have a need for us.
I have fullbody RSD with organ involment.
I water walk at the Y twice a week and take an exercise class. All in the water you are weightless and there is no pain. I like the cool pool on the days my skin is on fire it cools the burning. I do the classes in the theraputic (spelling ?) pool.
I have tried a lot of meds it took a while to find what worked for me. I tried the out patient Ketamine it didn't work me good luck to you on that.
It's had to not let RSD rule your world. I decided a long time ago I would not allow my life to be defined by this condition.
I have a great group of doctors my Chiropractor is a God send. I pray a lot. I believe my conditon is an answer to prayer (weird I know). I use to be very active in the community and worked a full time job and raise two great kids. I use to pray to God to slow my life down so I could work more for him. He put the breaks on. I have had the opportunity to do some wonderful things. If God brings us to it he will give us what we need to get through it. He tells us that in the Bible and his word is true.
Take care and again I say welcome.
Sherrie

Ketamine treatments

Hi I don't think if I answered you on this. The way mine were done is a series of out patient treatments. First 2 weeks of mon-fri and then the two day treatments are given two weeks after that, then a break for 2 more weeks and 2 days of rx then a break for a month and 2 days of rx. then a break for 3 months and 2 days of treatment. Then they decide what to do next. The rx's are given in a infusion room with other patients. I hope that answers your question.

Quote:

Originally Posted by SunshineGirl (Post 552286)

How do they administer a series of Ketamine treatments??

Hi,
I haven't started with a therapist yet. Did you get one who deals in people with illnesses? I understand having to work out of necessity. That is what makes it so scary, wondering what will happen if I can't. I think I need to stop getting a head of myself. I find it hard not to think ahead. But these messages are helping me a lot. Before this I did not get much of a chance to talk to others with RSD. I'm finding this site can be a wealth of information and support. I hope first you get a handle on the pain and burning and then are able to go back to your walking and hiking. I am going to pick up some Epsom salt tomorrow and give it a try. The burning is my nemesis also. I use that word hope so much my daughter told me I should get a tattoo that says hope. I told her I don't think I'll be getting any tattoos!!!!!