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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-17-2009, 06:36 AM
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Hopeful,
I see a psychologist every 2 weeks to deal with my life changes because of RSD/CRPS. It has made a huge difference in my perception of the major changes that have taken place since my dx. I had to stop working because of the daily med cocktail I have to take to ease the horrid pain. The meds calm the burn and deep aches, and the by-products from the meds make it impossible to focus on anything for a prolonged period of time. I attempted to do a job(2 months) that was suppose to be sedentary(Ha!), and it did not work out. That was a very difficult step for me, to stop working and stay at home. This all after achieving a dual masters degree in fine arts and psychology. At first, I was so angry about working so hard for my education, and the pedigree of my degrees...as in, "what was the point?" I no longer feel that way, as my education enhances who I am.  Keep your chin up 
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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08-17-2009, 07:46 AM
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#12 | ||
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Hi Sherrie, could you explain what the organ involvement is? How it is diagnosied? And how it is treated. I too have full body, have been told some symptoms are organ related but do not understand. any explanation wouold be appreciated. thank you cz
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| "Thanks for this!" says: | Dew58 (08-17-2009) |
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08-17-2009, 06:05 PM
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Hi I don't think if I answered you on this. The way mine were done is a series of out patient treatments. First 2 weeks of mon-fri and then the two day treatments are given two weeks after that, then a break for 2 more weeks and 2 days of rx then a break for a month and 2 days of rx. then a break for 3 months and 2 days of treatment. Then they decide what to do next. The rx's are given in a infusion room with other patients. I hope that answers your question.
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08-17-2009, 06:42 PM
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Hi,
I haven't started with a therapist yet. Did you get one who deals in people with illnesses? I understand having to work out of necessity. That is what makes it so scary, wondering what will happen if I can't. I think I need to stop getting a head of myself. I find it hard not to think ahead. But these messages are helping me a lot. Before this I did not get much of a chance to talk to others with RSD. I'm finding this site can be a wealth of information and support. I hope first you get a handle on the pain and burning and then are able to go back to your walking and hiking. I am going to pick up some Epsom salt tomorrow and give it a try. The burning is my nemesis also. I use that word hope so much my daughter told me I should get a tattoo that says hope. I told her I don't think I'll be getting any tattoos!!!!! |
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| "Thanks for this!" says: | Dew58 (08-17-2009) |
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