Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-17-2009, 08:49 PM #11
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Originally Posted by Coffeebean View Post
Penquin, have you been checked for a type of migraine headache that produces stroke-like symptoms. You have some of the symptoms. You can Google it to read about it.
I had never heard of these headaches and I looked them up and WOW! Now i don't feel so crazy/insane. I have a horrid memory, but i think they were called something like complicated-mirgrains and they sounds SO much like what i occasionally get. Thanks so much...i'm definately gonna have my doc look into it for me.
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Dew58 (08-17-2009)

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Old 08-17-2009, 08:56 PM #12
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Dew, thanks for the pyscho reminder. I should really know better, considering i have a bach. in pysch (not that that means I know everything, but i atleast have a -should have a - clue ) You're right, i'm probably trying to avoid this. The whole "if i ignore it, it'll go away" like an ostrich with it's head in the sand. Also, I should have kept my mouth shut! lol, today the burning really started. Mainly in my hip-flexor area and behind my knee...feels like it's being stretched beyond it's means. Anyway. Thank-you all for your ideas and inputs. Between yall and the book that i'm reading i feel that i will have atleast some "ammunition" to go talk to my MP (when and if i ever get my referall) about all of this. So WOOHOO! bring it on LOL
Thanks again
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Old 08-19-2009, 08:58 PM #13
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Originally Posted by Penguin View Post
Dew, thanks for the pyscho reminder. I should really know better, considering i have a bach. in pysch (not that that means I know everything, but i atleast have a -should have a - clue ) You're right, i'm probably trying to avoid this. The whole "if i ignore it, it'll go away" like an ostrich with it's head in the sand. Also, I should have kept my mouth shut! lol, today the burning really started. Mainly in my hip-flexor area and behind my knee...feels like it's being stretched beyond it's means. Anyway. Thank-you all for your ideas and inputs. Between yall and the book that i'm reading i feel that i will have atleast some "ammunition" to go talk to my MP (when and if i ever get my referall) about all of this. So WOOHOO! bring it on LOL
Thanks again
the best of luck to you - I've been sick for almost three years, and I just started with a psychotherapist a few weeks ago. I will llikely be with her for a long time - there is a lot to work out for me.

I haven't given up on getting better, I have a great PM doc, PCP and PT on my side and need to go about getting the best treatment possible in order to resume as much of my former life as I can. But in facing the fact that I am sick I've had a lot of problems - awful crying spells, despondant afternoons spent just staring into space doing nothing, feelings of worthlessness since leaving my job, etc. Combined with excrutiating pain that is not always well controlled. Stuff a lot of us have likely gone thru. It can be really, really tough.


I truly hope all goes well, keep us posted. XOXOX Sandy
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