Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-15-2009, 07:13 PM #1
lexiemae1 lexiemae1 is offline
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lexiemae1 lexiemae1 is offline
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Angry rsd doc in Arkansas or Mo!

Still looking for a doc in Arkansas and Mo.. Would like to find one who specializes in RSd and pain management.. and high blood pressure and kidney probs... Anyone know anyone.. Seems like doctors here where I live in Arkansas aren't even concerned a little bit about helping me get well. And I am only 46.. Need to keep working and I am so frustrated,, Got a heart doc, gp, kidney doc, pain management doc. But can't seem to get them to come together to help me.. I am at the end of my rope and then besides all of this it takes a month to even get close to seeing one of them and then 6 weeks to get tests results back.. This SUCKS!!!!!!!!!!!!!!!!!!
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Dew58 (08-17-2009), loretta (08-16-2009)

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Old 08-16-2009, 12:21 PM #2
loretta loretta is offline
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Originally Posted by SunshineGirl View Post
Still looking for a doc in Arkansas and Mo.. Would like to find one who specializes in RSd and pain management.. and high blood pressure and kidney probs... Anyone know anyone.. Seems like doctors here where I live in Arkansas aren't even concerned a little bit about helping me get well. And I am only 46.. Need to keep working and I am so frustrated,, Got a heart doc, gp, kidney doc, pain management doc. But can't seem to get them to come together to help me.. I am at the end of my rope and then besides all of this it takes a month to even get close to seeing one of them and then 6 weeks to get tests results back.. Th
is SUCKS!!!!!!!!!!!!!!!!!!
Hi SunshineGirl,
The only thing I can think of of is to goggle RSDSA and under Support on left part of page push Support, then at the appropriate place, put in your zip code. It will give you a support group leader's name and phone number You could then call him/her and ask for RSD Drs. name, phone number. If you can go to a larger city, look up the zip codes of larger towns you would be willing to drive to and do the same thing regarding the zip code for support leader.
Support groups usually have experience in the local Doctors, who is RSD educated and those that don't have knowledge.
Hope you get help soon. Take care, loretta
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Old 08-17-2009, 04:57 AM #3
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There must be a PM doc that can address your pain in your area. So much of RSD/CRPS and the pain meds bring on by-products that cause other medical issues;for example, high blood pressure,depression, anxiety, insomnia, muscle spasms.
Your family doc should be able to address any other issues not related to RSD/CRPS.

love,
Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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