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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-17-2009, 10:20 AM | #11 | |||
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I think it's about 10.000 euro (AFAIK) under our health care system, and it's not refunded at all for CRPS type 1. It is completely refunded for CRPS type 2. So unfair! You have to be at a stage where there is no longer a thing that works or it's not even considered.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Dew58 (08-17-2009) |
08-17-2009, 11:31 AM | #12 | ||
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In Remembrance
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I agree with Bassman, and dealing w/tos.
Although these things are lots of money, it gets spread around. And, that IS the way the medical community does it. But, that's our system in this country. And, it's not gonna change drastically, anytime soon. So on one hand, you can think the doctor, a "salesman" and looking for extra income. Or, you can think he just wants to get you to a more normal life, because he's seen this over and over, and knows the eventual trail it will take. Stop the pain now. It was said here and I agree, everyone needs to have a good relationship with their doctor, (My doctor, I could invite to dinner), and do the best for YOU. RSD/TOS or any of these pain maladies are not cut and dried. Get tight with your doctor, and make your decision! Asking here is a good idea too, of course! Good luck! And, Good Feelings, Pete |
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"Thanks for this!" says: | Dew58 (08-17-2009) |
08-17-2009, 11:47 AM | #13 | |||
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Senior Member
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September 27, 2007No comment, other than to acknowledge that this involved a product line separate and apart from its SCS products, although according to its last SEC Quarterly Report (Form 10-Q) the two lines are curently in the same division of the corporation, and Medtronic is, I am informed, at least one of if not the dominant player in the SCS industry. And although the suit was subsequently dismissed on the grounds that the plaintiff was not a ture "whistle blower," where the court found that it had copied the allegations of two other lawsuits filed within the preceding 18 months, which the government subsequently settled with Medtronic, see, also: January 24, 2006http://www.nytimes.com/2006/01/24/bu...gewanted=print Last edited by fmichael; 08-17-2009 at 12:18 PM. |
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08-17-2009, 12:11 PM | #14 | |||
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Magnate
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Hi SunshineGirl,
I knew that the SCS was a LOT of money after speaking to some of my other online RSD friends as some had had to take out a loan etc to be able to fund it. I agree with what the others have said about it probably being too soon to consider the SCS. It sounds like your doctor is trying to push you for it rather than try any other treatment options that are less invasive first. I know most doctors get so much money back for implanting an SCS so that is probably why you doctor is wanting to try it so soon. My mum and I have spoken to my doctor about the SCS before and he said that he wouldn't even consider it unless I was over the age of 16 (i'm only 14 at the moment) as it is far too invasive. He also said that in my case, he didn't think it would work and could possibly make me worse (I had a HORRIBLE time with the nerve blocks so my doctors thinking is that I would probably have a similar reaction to the SCS). Over here in the UK, they will only do an SCS if you have tried every other procedure. I wish you the best of luck with your decision. Don't let anyone force you into doing something you don't want to - it's YOUR body and only YOU can make the decisions! Take care!
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To the World you may be one person, but to one person, you may be the World. |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
08-17-2009, 03:40 PM | #15 | |||
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my husband and i both have rsd...........mine is in remission so to speak............ my pain is very tolerable.....................
he has an scs which was $64,000.00 but he is very glad to have it........it has only relieved a small amount of the pain, but it has given him the use of his left arm...........he was unable to lift a coffee cup, take a shower, wear his ring, and the color changes were awesome................but with the scs he is able to use his arm................he still has pain, but says he is grateful for the scs..............................he is now going for more leads, to cover the right arm now too...................... do lots of research, and don't allow anyone to talk you into something YOU are not comfortable with............
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. claudia . |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
08-17-2009, 07:23 PM | #16 | ||
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I had my SCS put in 1 yr. ago this month. I tried everything and was a hair away from a wheelchair. i had bc/BS and it paid most of it. Mine was done by a neurosurgeon,and is not the same type that pain DRs put in. In short-i have had much relief-can put on a shoe and go for short walks now. I still have sensitivity and other issues that still pop up. Hope this helps
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"Thanks for this!" says: | Dew58 (08-19-2009) |
08-17-2009, 08:21 PM | #17 | ||
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Thanks everybody for the advice//
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"Thanks for this!" says: | Dew58 (08-19-2009) |
08-17-2009, 11:38 PM | #18 | ||
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i just came back from my pain med clinic 2day,,They called the surgeons office in albuguequer,,at first they said if i wanted a consultation on a scs,,i was given a date to see them in 1 week,,then they called my dr office back saying im out of net work and the surgeon would need the whole amount of front in cash to do the scs, and wouldnt take my insurance ,,,,,,,,,,,,,,,,,,,,,,,,i guess that God just gave me my answer,,,,,,,,,,,,,,,,,,,,
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08-18-2009, 02:14 AM | #19 | ||
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In Remembrance
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We're all in sad shape.
And, to have these predatory drug/medical equipment/insurance companies, all add their nickel's worth to our problems, contorts the facts. We should be able and allowed, to make decisions, based on our own best interests! Of course, that's in lala land. But, if our own doctors won't lead us in the correct direction, what hope do we have? Pete asb |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
08-18-2009, 05:12 PM | #20 | ||
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Pete
Thats why my hope is in God alone,,,,read what he says about trusting in man isaiah 2:22 your friend in Jesus christ our Lord,,,,,bobber,,,,,,,,,,,P.S ,,,,,,, pete do you remember the lyrics to the song "War pigs" [black sabath] |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
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