Dubious -

On further review, I'm not sure some of the press releases about the Tesla 9.4's ("resolving individual cells") are worth their hype. In fact, I'm relieved that I didn't site them as gospel.

Turns out the the voxol (the resolvable element of the 2-D slice being imaged) for a 9.4 Telsa is 0.2mm x 0.3mm x 0.2mm or (0.2 cubic mm) ["A Computational Atlas of the Human Hippocampus from Postmortem 9.4T MRI," PA Yushkevich et al at p. 7] http://picsl.upenn.edu/caph08/papers/slides15.pdf while that of the 1.5 Tesla is approximately 3 cubic mm ["The Basics of MRI," JP Hornak, Chapter 1 (INTRODUCTION) - Tomographic Imaging] http://www.cis.rit.edu/htbooks/mri/inside.htm, differing only by a power of 15 of so.

And a power of 15 is of course nothing to sneeze at. In fact, if you open "A Computational Atlas of the Human Hippocampus from Postmortem 9.4T MRI," which came out of Penn's Department of Radiology last year - basically slides for a PowerPoint presentation - you can see comparisons between images taken with the Tesla T1 and two versions of the T2 on page 3, with another from the 9.4 on page 7. And while the 9.4 is clearly a great improvement, cellular it isn't. That said, just as there were significant differences between two versions of the T1, there may be with the 9.4 as well. But all of this is well above my (former) pay-grade.

Mike

Oh my goodness! I am sooo glad this has been posted. I haven't said anything to my neuro or my GP and PM drs. about brain shivers (shudders) I didn't know what they were and now I do!! I have them the most when I am flaring and yesterday was a really bad day. Now, I can express what is happening to me and my kids and husband can't blame it on the meds.

They tell me to "take a pill" when I am grouchy and yesterday the brain shudders drove me so crazy that even the dogs were tip-toeing around the house for fear of setting me off. Today is much better. I haven't been able to afford the meds that I need as I don't have full insurance coverage until next week and I thought it was that, but I have them whether I have my meds or not.

So, once again someone has confirmed that I am not going crazy and I thank you so much!!

Cindi, this makes me so happy I posted this,as the reaction of my husband was exactly the same as your family's like it was my fault. It has noting to do with your meds( in all honesty at first I thought, did I take something out of ordre by accident, or something twice) but it just kept happening way too often. I am so happy I can give you some relief and hopefully help you on the road to some answers too. I am dilegently looking for my post to dr. schwartzman so that I may share with everyone what he said they are exactly, I will post as soon as I can. It was very hurtful to me to be unconscious on the kitchen floor, bruised and frightened and have my husband Mad at me. It was the last type of treatment I needed. I hate RSD. this is why I want to live alone. Im tired of others being tried OF MY PAIN! Again glad this post could help Cindi. Although Im sure your family was nicer than my husband! Sincerely, CZ

Loretta, I am 4 - 5 years into RSD. I spent the ENTIRE summer of 2009 in a hospital due to "seizures & fainting". I would get shock feelings in my face, lips, brain and arms down my hands and then seize. My husband took me to the ER. They did ALL kinds of tests and even an EEG (which showed nothing). My doctor said that it was in my head due to my pain. I was diagnosed with Conversion Disorder (a mental disorder) by my PCP. They sent me to a therapist (which in the long run has been a good thing). My therapist, to this day, has not agreed with the diagnosis of Conversion Disorder. I have always wondered if these "seizures" were complications of RSD. I am so greatful to hear that I am not alone and NOT crazy!!! And at the same time, so very sorry to hear that others have to go thru the same thing.

My docs did put me on 2 different types of seizure meds that stopped the "seizures". I am planning on talking to the Dr's at Mayo Clinic when I go on the 28th. Thank you ALL for this info I can not tell you how much peace you have given me!!!

May God Bless you with Peace and Pain free sleep

Renee'

Thanks for writing this!
I'm going to see Dr Knobler, (Dr Schwartzmann's ex parter, from Jefferson) this Wednesday. And, I'm having such difficulty, trying to describe what's going on with me!
I need him to write a letter (his wife called me a few weeks ago, about some other business, and she caught me during a crying spell. She immediately took the reigns, and wanted to do whatever could be done, so they're going to write a letter to me, to or for, the court. (divorce issues). Anyway, I was supposed to fax or email her something, and I'm just stuck!
I can't come up with the words, to describe what's going on with me!
(Understand, I have RSd, Tos, Tbi, etc.) so the tbi gets in the way of the pain , and v,v.
I probably have six or so letters started on this computer. As soon,
as I try to 'think", I get confused. "Flooding" is horrendous, if any of you know what that means to a tbi person, it's like a computer with not enough RAM. The little clock will spin, until it crashes the computer....
It drives me NUTSO!
I can't even go into it all here, or, I'll wreck my afternoon.
But, I DO know of what you speak!
Dr S. is Correct! I do believe.
Now, I add a TBI to to RSD, and what gives???
AGH!

Best Wishes for being well!

Pete
asb

Pete good luck to you. I hope you are able to finish your letter and that you are given the help you need there. Let us know and take care, cz

I am going to chime as the "view from the other side".

I have epilepsy and RSD, and have had the epilepsy long before the RSD/CRPS.

One of the things you learn very early on in epilepsy/seizures, is that an MRI/CT scan ONLY picks up structural changes in the brain, and most people with epilepsy and seizures have perfectly normal scans. My MRI's and CT's have all been fine. Another thing to remember--- if you've had an EEG, that also came back "normal", is that EEG's usually only show seizures/epilepsy if you are actually having a seizure during the EEG. Some of my EEG's have been normal, some abnormal and I definitely have epilepsy.

Plus, Not all seizures result in loss of consciousness or "convulsing". There are several types (simple partials, atonic, myoclonics) that do not result in loss of consciousness, but rather a "funny feeling", twitching, weird sensations, dizziness, fogginess etc.

My suggestion is to not be so quick in blaming the RSD/CRPS. If you haven't already, please get a referral to see a good NEUROLOGIST (a neuro specializes in the brain, a PM dr treats pain-- I would never let my PM dr touch anything to do with my seizures/ epilepsy). He/She can guide you in the best direction. I would ask for an EEG, sleep deprived EEG and a thorough work up. The last thing you need is to be dealing with seizures--- that could possibly get worse, especially if not properely treated.

On another note, some pain medications and supplements are also known to cause seizures, so, a Neurologist would be able to help figure out if that is what is causing them....

Good Luck, but please don't give up and automatically assume its the RSD/CRPS before investigating more !

L2L

thank you for this post, as I know somethingis wrong, I had another bad one yesterday, my husband found me on the kitchen floor unconscious, so either i am having seizures or something is suddenly dreadfully wrong with myy meds. Im frightned, frustrated and trying to hang in there, I remember being like a ping pong ball banging around the kitchen trying to hang on to consciousness and then blacking out at the stove and falling. I remember the begining. See why it is hard for me to belivie im not having seizures of some kind. actually it was more like a ball in a pin ball machine, I could have been seriously hurt instead of just some bad bruises and a couple of bumbs on my head. We cant seem to find out what is happening. But I have not had any of the tests you recommended. Im trying to hang in there, thank you again. cz

[QUOTE=CZZ74;553059]thank you for this post, as I know somethingis wrong, I had another bad one yesterday, my husband found me on the kitchen floor unconscious, so either i am having seizures or something is suddenly dreadfully wrong with myy meds. Im frightned, frustrated and trying to hang in there, I remember being like a ping pong ball banging around the kitchen trying to hang on to consciousness and then blacking out at the stove and falling. I remember the begining. See why it is hard for me to belivie im not having seizures of some kind. actually it was more like a ball in a pin ball machine, I could have been seriously hurt instead of just some bad bruises and a couple of bumbs on my head. We cant seem to find out what is happening. But I have not had any of the tests you recommended. Im trying to hang in there, thank you again. cz[/QU



Hello, I have been re-searching (Seizures) I am so sorry you have these, but I am also glad I found someone else, having this same thing as I do.
I can be in the kitchen and I will fall, & my husband has came in & helped me up. I have had about 10 of these *THINGS* The last one I had was off & on for 5 days....This scarred me so much....I have fell off my toilet & hit my head on my glass shower door... The last time I had this happen, I lost a whole day,I don't remember anything of that 1 day.
And I move things, Vitamins etc & the next day I have to hunt to find the things I moved.
I have read alot about Narcolepsy & Catapletic and it does sound like these *SPELLS* that I am having. You might want to look at Brain Talk for it.
I have noticed that if I miss alot of sleep,& don't take a nap, I have one of these, *SPELLS*
I have made an appointment to see my GP Doctor, she treats me for my RSD
its in my left foot, from a fall, but has spread to my right foot also, they are
red,swollen,warm to the touch & painfull.
I sure would like to talk with you, I will try & set up my P. Message here.
Hope to hear back from you. Take Care, Ladybug10435

so glad i've found someone w/epilepsy AND RSD!! i've had epilepsy - like u - for many yrs before RSD. Had 2 grand mals at the outset, then petite mals, then pretty much controlled until RSD! i take Tegretol XR 200mg 4 times/day, Tegretol XR 100 mg at nite, & 80 mg Phenabarbitol at nite just 4 epilepsy. For 16 mos. i've taken 1500 mg Neurontin, 10 mg Lexapro 4 RSD and Ativan for "impending" seizures. i see a PM dr, psychol., orthoped., OT 4 therapy, & neurolog. 4 seizures. all my drs work together before trying new meds. i'm blessed. i agree w/ur entire message!! anyone having seizures needs a good work up by a neurologist. wishing all of u a pain-free night!