DEW,
I hope you're not responding to me. Or, if you are, it may be mistaken.
I have no tests to do, or anything else further, except my next appt. with Dr Knobler.
If you are asking someone else. I apologize!

Love to you!
Pete

Sorry DEW!
Maybe you are speaking to me.
If so,
I've finally got my answer!

I used to be a "professional witness" for many things in my profession.

Now, I cannot help but get "tripped up" in testimony!
Ask me many questions, rapid fire, and my brains just "spins out"!

Now, Dr Knobler has me covered for that, Understand, he hasn't "covered me" for the sake of "covering me".
He has the facts, to know,
that I
actually just
"screw up" under hard examination! (questioning).

I'd never, in my wildest dreams, think that there was an explanation!
But, back in the 80's, I remember thinking, there is "No Way" these doctors can Dx my burning pain!
If you need the "Best Care",
You must be able to cover the "Best Doctor's" Fee's.
I see my doctor's fees,
as being as important as food, light, rent, etc.....

He is a Good, God Fearing man,
and I respect him,
with all of my heart!


LORDWOOD!
Are you here?
Are you listening?
I so hope you can get to see, Dr. Knobler!


Love to all,
Pete
asb

Oh my goodness! I am sooo glad this has been posted. I haven't said anything to my neuro or my GP and PM drs. about brain shivers (shudders) I didn't know what they were and now I do!! I have them the most when I am flaring and yesterday was a really bad day. Now, I can express what is happening to me and my kids and husband can't blame it on the meds.

They tell me to "take a pill" when I am grouchy and yesterday the brain shudders drove me so crazy that even the dogs were tip-toeing around the house for fear of setting me off. Today is much better. I haven't been able to afford the meds that I need as I don't have full insurance coverage until next week and I thought it was that, but I have them whether I have my meds or not.

So, once again someone has confirmed that I am not going crazy and I thank you so much!!:D

Dear Cindy, I am so happy I posted this for you too.
 

Cindi, this makes me so happy I posted this,as the reaction of my husband was exactly the same as your family's like it was my fault. It has noting to do with your meds( in all honesty at first I thought, did I take something out of ordre by accident, or something twice) but it just kept happening way too often. I am so happy I can give you some relief and hopefully help you on the road to some answers too. I am dilegently looking for my post to dr. schwartzman so that I may share with everyone what he said they are exactly, I will post as soon as I can. It was very hurtful to me to be unconscious on the kitchen floor, bruised and frightened and have my husband Mad at me. It was the last type of treatment I needed. I hate RSD. this is why I want to live alone. Im tired of others being tried OF MY PAIN! Again glad this post could help Cindi. Although Im sure your family was nicer than my husband! Sincerely, CZ

I have these too
 

:confused:[QUOTE=CZZ74;553059]thank you for this post, as I know somethingis wrong, I had another bad one yesterday, my husband found me on the kitchen floor unconscious, so either i am having seizures or something is suddenly dreadfully wrong with myy meds. Im frightned, frustrated and trying to hang in there, I remember being like a ping pong ball banging around the kitchen trying to hang on to consciousness and then blacking out at the stove and falling. I remember the begining. See why it is hard for me to belivie im not having seizures of some kind. actually it was more like a ball in a pin ball machine, I could have been seriously hurt instead of just some bad bruises and a couple of bumbs on my head. We cant seem to find out what is happening. But I have not had any of the tests you recommended. Im trying to hang in there, thank you again. cz[/QU



Hello, I have been re-searching (Seizures) I am so sorry you have these, but I am also glad I found someone else, having this same thing as I do.
I can be in the kitchen and I will fall, & my husband has came in & helped me up. I have had about 10 of these *THINGS* The last one I had was off & on for 5 days....This scarred me so much....I have fell off my toilet & hit my head on my glass shower door... The last time I had this happen, I lost a whole day,I don't remember anything of that 1 day.
And I move things, Vitamins etc & the next day I have to hunt to find the things I moved.
I have read alot about Narcolepsy & Catapletic and it does sound like these *SPELLS* that I am having. You might want to look at Brain Talk for it.
I have noticed that if I miss alot of sleep,& don't take a nap, I have one of these, *SPELLS*
I have made an appointment to see my GP Doctor, she treats me for my RSD
its in my left foot, from a fall, but has spread to my right foot also, they are
red,swollen,warm to the touch & painfull.
I sure would like to talk with you, I will try & set up my P. Message here.
Hope to hear back from you. Take Care, Ladybug10435

Ladybut Ill be in touch. ill pm you.
 

[QUOTE=Ladybug10435;568139]:confused:Ladybug, pm me your email, Ok. look forward to talking with you, cz

Brain Shudders
 

I am new to Neurotalk and I have a fairly recent diagnosis of CPRS/RSD. I want to thank you for this discussion. I am on so many meds is rediculous, so I am not discounting the fact that it could be one of the many.
Yesterday toward late afternoon, I had several episodes of a wierd sensation in my head. I had a sense of presure on the lt/rt of my head at the temples, then I would ear a popping and sizzling sound, then the room would spin. It got so bad I sat on the floor. I got really sick at my stomach. I really thought I was going to pass out. Just as I was feeling better, my husband came home and took me to urgent care, they knew nothing about RSD. Today I have a funny head ache and I feel just a little topsy. Does this sound familiar to any one? Thank you, Yukiko

Loretta, I am 4 - 5 years into RSD. I spent the ENTIRE summer of 2009 in a hospital due to "seizures & fainting". I would get shock feelings in my face, lips, brain and arms down my hands and then seize. My husband took me to the ER. They did ALL kinds of tests and even an EEG (which showed nothing). My doctor said that it was in my head due to my pain. I was diagnosed with Conversion Disorder (a mental disorder) by my PCP. They sent me to a therapist (which in the long run has been a good thing). My therapist, to this day, has not agreed with the diagnosis of Conversion Disorder. I have always wondered if these "seizures" were complications of RSD. I am so greatful to hear that I am not alone and NOT crazy!!! And at the same time, so very sorry to hear that others have to go thru the same thing.

My docs did put me on 2 different types of seizure meds that stopped the "seizures". I am planning on talking to the Dr's at Mayo Clinic when I go on the 28th. Thank you ALL for this info :D I can not tell you how much peace you have given me!!!

May God Bless you with Peace and Pain free sleep

Renee' :grouphug:

I also had a seizure
 

Jimbo,

Of all of the symptoms I have endured the balance and falls are right up on there on the misery scale. Sometimes I would walk through a room and duck my head because I thought the ceiling was going to hit me. Part and parcel was not being able to judge where something was when I reached for it. It was clear to me that proprioception issues were worsening as my CRPS progressed. I now have a service dog who alerts me to falls before I even know they are coming. The thing that greatly improved my balance, however, and has reduced my falls is tDCS. Prior to tDCS I was keeling over sometimes several times a week. I feared that it was only a matter of time before one of those falls either ignited a new source of CRPS, or caused severe injury. Although I still fall I have not fallen in two weeks.

Hope this helps!