Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-17-2009, 07:52 AM #1
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Seizures, brain Shudders and RSD

Hi I wanted to share this incase it helps someone else and saves you some time. I am in years 6 of my rsd, full body have had every treatment in the world literally including coma in Germany. Last year I began having seizures. Terrible ones. they mimic petite grand mal. The brain shudders are terrible and painful. The seizures continue, I am conscious through them , they most happen at night and in am just as I am waking. I have had one during day. I wrote dr. Schwartzman he said they are not seizures in the traditional fashion it is the rsd corrupting my central nervous system causing these events. If I could find the email i would quote him exactly. They have become so frequent and severe that over the past 6 months i have managed to get all the way from Cat scan of the brain- results nothing- to mri of the brain- nothing to the ulitmate test MRA of the brain with contrast- results perfectly normal. So Dr. Schwartzman was right. I was sure he was wrong and i had developed epildepsy from the coma- alot went wrong. I thought this might be helpful to anyone else suffering these seizures and brain shudders. It is alwasy the rsd. very depressing in a way as nothing can be done. Please post if you have these too and what meds you are taking and if it is working thank you cz

Last edited by CZZ74; 08-17-2009 at 07:54 AM. Reason: spellling
CZZ74 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AintSoBad (08-17-2009), cindi1965 (08-22-2009), fmichael (08-19-2009), renhenne (12-11-2010), Yukiko1980 (11-16-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
brain injury, nightmares, seizures? meowrie Sleep Apnea & Sleep Disorders 10 10-21-2009 04:35 AM
Seizures coley11 Epilepsy 1 08-04-2009 04:18 PM
brain shudders Fran E Peripheral Neuropathy 4 07-25-2009 07:22 AM
Brain Cooling Reduces Seizures Porkette Epilepsy 2 03-05-2009 05:53 PM
seizures nanavic New Member Introductions 7 05-14-2008 01:05 AM


All times are GMT -5. The time now is 04:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.