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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Did some research last night on com and found out thru BCBS that a scs cost about 57,000$ and the $7200 to maintain it annnually ?? I can't believe this.. Does anyone know for sure? No wonder my pm is wanting to install one in my spine?? OMG
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#2 | ||
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I've heard a LOT of horror stories regarding the SCS (see "lost mary" posts from last year). My PT also saw a few real messed up cases here in RI. I've never had one, and based on what I've heard, I doubt that I would ever consider one. They are expensive, invasive, often cause infections, and can cause your RSD to spread. Docs recommend them because they make a lot of $$ off of them. Just mu humble opinion - it will be interesting to hear if there are any positive stories out there... Sandy |
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#3 | ||
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as in my last post to from galean,,,,ask your dr if your in SIP pain or SMP pain,,,if blocks in the back make you worse[if youve had them ] chances are you are in sip pain and that inplant will makle your rsd spread,,,SCS and pain blocks while your in sip pain make it spread[as it did for me] but by rule of thumb,,if you are still in smp and the blocks work,,your a canadiate for surgery,to remove the pinched pm nerve or to install the scs,,,ask you dr,as for me,,im not getting one,,,,,,,,,,the blocks and the TENS unit,,make mine inflamed and spread like poison ivey,,,,,procede with caution,,,,and as for the infection,,there are a few ladies on this board who did get a infection from an scs
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#4 | ||
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Senior Member
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I've heard too many negative responses to take a chance on getting one and more complications. I'm in 14th year, and full body, haven't even had a Dr. suggest one. Take care, loretta |
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"Thanks for this!" says: | Dew58 (08-17-2009) |
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#5 | ||
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"Thanks for this!" says: | Dew58 (08-17-2009) |
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#6 | ||
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New Member
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SCS didn't work for me. Long story. Lot's of pain, multiple procedures and different units. The worst was the crushed hopes. The docs were fine- they wanted to help me but the darn thing just didn't work for me. I have a pump now.
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"Thanks for this!" says: | Dew58 (08-17-2009) |
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#7 | |||
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The cost doesn't surprise me, it is the doctor's suggestion to attempt this procedure, after such a short time in consideration of other proposals to ease your pain.
![]() Hang in there, Dew
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#8 | ||
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Yes that is all she is offering.. Makes me wonder if she thinks I really have rsd or bs----- her.. But according to my body bone scan of my foot. It was all highlighted up for osteoporosis..
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"Thanks for this!" says: | Dew58 (08-17-2009) |
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#9 | |||
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Magnate
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Hi SunshineGirl,
I knew that the SCS was a LOT of money after speaking to some of my other online RSD friends as some had had to take out a loan etc to be able to fund it. I agree with what the others have said about it probably being too soon to consider the SCS. It sounds like your doctor is trying to push you for it rather than try any other treatment options that are less invasive first. I know most doctors get so much money back for implanting an SCS so that is probably why you doctor is wanting to try it so soon. My mum and I have spoken to my doctor about the SCS before and he said that he wouldn't even consider it unless I was over the age of 16 (i'm only 14 at the moment) as it is far too invasive. He also said that in my case, he didn't think it would work and could possibly make me worse (I had a HORRIBLE time with the nerve blocks so my doctors thinking is that I would probably have a similar reaction to the SCS). Over here in the UK, they will only do an SCS if you have tried every other procedure. I wish you the best of luck with your decision. Don't let anyone force you into doing something you don't want to - it's YOUR body and only YOU can make the decisions! Take care! ![]()
__________________
To the World you may be one person, but to one person, you may be the World. |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
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#10 | |||
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my husband and i both have rsd...........mine is in remission so to speak............ my pain is very tolerable.....................
he has an scs which was $64,000.00 but he is very glad to have it........it has only relieved a small amount of the pain, but it has given him the use of his left arm...........he was unable to lift a coffee cup, take a shower, wear his ring, and the color changes were awesome................but with the scs he is able to use his arm................he still has pain, but says he is grateful for the scs..............................he is now going for more leads, to cover the right arm now too...................... do lots of research, and don't allow anyone to talk you into something YOU are not comfortable with............
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. claudia . |
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"Thanks for this!" says: | Dew58 (08-19-2009) |
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