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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-20-2009, 01:24 PM #11
edever34 edever34 is offline
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Join Date: Mar 2009
Location: Louisville,Ky
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edever34 edever34 is offline
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Thanks again all of you-i have cancelled this PT program- I agree with not letting ANYONE touch me again lol-THANKS
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Old 08-21-2009, 09:47 AM #12
MrPete MrPete is offline
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Join Date: Jul 2009
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10 yr Member
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Default Hot vs Cold
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Originally Posted by edever34 View Post
I really need help! I went to a new PT DR. yesterday and he started Anadine (led light therapy) the paddle type and I had a terrible flare up afterwards. I have RSD in right leg and foot. I had the "burning " under controll for several months and this treatment brought it back. I am supposed to go again tomorrow, But i really do not want anymore of these treatments. Has anyone out there tried these treatments?? I have looked thru old threads and cant find anything. I was going to PT agian because I am loosing flexibility in foot and have developed bad heel pain recently. Please let me hear from you all! Thanks
I have been following and reading there are some links were people used the light therapy and seemed to help a little. I would concentrate on how you do with WARM vs COLD. From your response to therapy I would guess that you are one who has a HOT version of the disease your pain is associated with being Hot all the time. and the (BURNING) pains that you get is like being burned by somthing HOT. Seems people with a HOT version respond bad to anything warm or HOT. Let me know if I'M on target with this.

Thanks
MrPETE
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Old 08-21-2009, 10:11 AM #13
Smoke_666 Smoke_666 is offline
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Join Date: May 2009
Location: South central Pennsylvania
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Smoke_666 Smoke_666 is offline
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Quote:
Originally Posted by MrPete View Post
I have been following and reading there are some links were people used the light therapy and seemed to help a little. I would concentrate on how you do with WARM vs COLD. From your response to therapy I would guess that you are one who has a HOT version of the disease your pain is associated with being Hot all the time. and the (BURNING) pains that you get is like being burned by somthing HOT. Seems people with a HOT version respond bad to anything warm or HOT. Let me know if I'M on target with this.

Thanks
MrPETE
I have the heat kind, and have found that cold is what sets me off, not heat. Using a hot shower spray seems to help, although at the time the water makes it hurt from the pressure, later it feels pretty good. Beware using cold, I have read and had personal experience that using cold or ice can really really be a horrid idea. I had an ice pack used twice on my knee before being dx'd and the pain then and later was unreal, and seems to have made it worse permanently. Be careful with the cold.
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