I see Dr Louis Spagnoletti, he's located in Marlton NJ and he is fantastic. I was diagnosed in Sept 2004, and have been seeing Dr Spag since Oct 2006, was seeing a doc prior to him that called himself a pain mgmt specialist but was afraid of the dea or something, expected to try to control my pain with very low level drugs and trigger point injections. By the time I got to Dr Spag I was in pretty bad shape. Since I've started with him, he's worked very closely with me (with me, not to me) to get a cocktail of scripts that worked to control my pain to the degree that I could work a full time busy job and even occasionally do some things around the house, after work, etc. Over the last few months my condition has worsened, and about 3 weeks ago the same level of symptoms I had at onset recurred. Dr Spag got me immediately in to see Dr Rosen (in Jenkintown PA) and I'm scheduled for my first symp lumbar block next Wed. In the meantime heavier scripts to help with the pain and to sleep. I would recommend Dr. Spag to anyone having chronic pain issues, and after seeing Dr Rosen yestersday I would highly recommend him as well. Having spent way too much time with a less than stellar doc, I know how important it is to form a relationship with a dr that knows RSD and chronic pain.

Des

Hi Nikki,

My son is being treated by Dr. David Sherry at the Children's Hospital of Philadelphia - we are still waiting to get into his physical therapy program - it's hard to get in to see him, but it's worth a try. If you find anyone else in the area, please let me know - just in case things don't work out with Dr. Sherry.

Thanks,
terry

Hi Amber,

If you could send me the Drs name in NY that you are talking about I would greatly apperciate it. My daughter has had RSD since 2004. Thank You so very, very much. Please feel free to contact me.

Hi All,

I have read here that some believe that Dr. Schwartzman is retired. I am a patient of his and just saw him in Jan 08 and spoke to him about 3 weeks ago and have an appt in July 08.

Yes, he is very hard to see he has over 3000 patients so you can imagine. It is worth the wait. I was sent there by my main Pain Doctor and they have worked together to get me better. He is very compassionate I had some problems with the ketamine and his sincerity was genuine.

We all have to remember RSD does not have a cure or at least I have never heard of one, remission yes so see the best if you can....



Ann

I think what you said about the old boy network is generally so true , but I have not found this to be true with RSd. Since there is no known rsd cure, thees doctors, most of them in non profit settings are all working on their own methods and ofter wont even share information- they have such pressure on them to publish. its part of their profession. I cant wait for the day when they all are sharing and the sooner the better for all of us.
I look for the most respected and frankly the doctor I feel I will have the best communucation with. To me it is a bonus if it is non profit. Most of these doctors have devoted there lives to something that have few successes and very small rewards along the way. There is a great deal of frustration for those of them that truely care- that they can not help those of us that are suffering. So I look at their education, where they work , If I like them and If they are trying something that I havent tried already. Hope you are still doing well. CZ

My father is suffering badly from RSD after a recent shoulder surgery. Could you please give me the name of that doc? I see that you live relatively close to me, but I would travel to the end of the earth and back to get this cruel, nasty disease under control for my father!

if your under 18 dr.sheery at the childerns hopstial in philly is amazing and i her dupont hospital in de had a docter that dose this too but you have to be under 18

Amber , Please send the name of the MD you are seeing.

Also, does anyone have any experience with any MD's in NYC?

My sister has RSD for 14 years and until 1 month ago was being managed pretty well w/ dilaudid in her implanted pain pump and working out every day. She has started having severe pain in her foot and it is traveling up to her pelvis and rectum.

I have experience with a doctor in NYC his name is DR Richman and he is at the Hospital for Special Surgery. He is in thier pain department. I just got done with a procedure with him in which he also did the 5 day in-patient ketamine and he was wonderful.

Niki

Hi KStrong and WELCOME to NT!!!

Amber hasn't logged in since May.

You may want to repost your question as it's own thread so that more people will look and may be able to help you.

I wish you the best...

Abbie