If you still need, see Dr. Robert Knobler.
He specializes in RSD and MS. He's a Neuro, Ph.D.
(REAL SMART/SHARP)!

I (After 7 years of nonesense) finally got to Dr Schwartzman, and Dr Knobler was his partner @ Jefferson.
Dr Knobler now runs the Knobler Institute of Neurologic Disease.
Ki.I.N.D.

(I just walked in the door from a visit with him).
Wonderful people

PM me, and I'll send you his address. He's in Fort Washington, PA, Right off the TPike.

Phone.
215.643.9045

You may feel free to use my name, (Pete Woj.)

This man has taken me further than Dr S. or any other Doctor I've EVER had!
I've sent many, many folks to him, and they are ALL happy, even driving all day!
Worth the trip.

BTW, He takes NO INsurance!

Be WEll!

pete

I was told i have red/crps almost a year ago and still cant find a doctor i need help.....thanks betty

I wish I had the answer for you, Betty.....I live in PA and have seen doc's that know about it and I'm still waiting.....I don't want you to have false hope and i don't want you to feel alone....But the fact is, having RSD/CRPS is like waking up from a coma in a foreign country....RSD / CRPS defies all Medical logic and Medical testings....Showing nothing's wrong....You'll run into professionals that will tell you it's all in your head...They'll tell you that you need to be more positive....They'll tell you that you need to try harder and the truth is, they don't know what their talking about...It is not all in your head....Fact is, your nerves are in overdrive, lying to your brain....But those that think they know it all will tell you so much crap that will leave you wondering if you're nuts....And you'll feel nuts...Trust me on that one....I'm flat bonkers....I'm just really careful who I say that to and who I say that around......Because I'm dealing with workman's comp and if they can say I'm just flat nuts they will....Which scares the beegeebers out of me....They even tried to prove in "their" court of law that I am depressed because I lost a child back in 1981....Not because I have severe pain that they can't comprehend......I want you to know you're not bonkers....You'll just feel like it....I want you to know your brain is a liar to you....I want you to know RSD / CRPS is very real....I want you to know, to avoid stress at all costs....I want you to prepare for when the barometer is in any range under 30....I want you to know some of the pain creeping up on you is a limb going cold and to put a heating pad on that area.....I want you to know, don't push things physically because you feel good today....Cause RSD / CRPS will get you back within 24 hours, with a vengeance....I want you to know that gravity is the enemy that facilitates RSD / CRPS pain....I want you to know that when one is in water, up to their throat...The water takes off 75% of body weight and will help to diminish pain temporarily.....I want you to know that if you have something you're planning on doing Friday.....Rest Wednesday and Thursday so that you may enjoy Friday....I want you to know that life as you know it is different now and friends may not come around much, as time goes on....They can't understand pain....They only think they know pain...But they don't....I would rather have a c-section once a year, without anesthesia for the rest of my life than have RSD / CRPS pain....They'll (friends and family) do the best they think they can, for awhile....But they'll feel bad that they can't take the pain you experience away or they'll get tired of helping out....And become, once again, selfish....And think they don't have time....It won't be anything you've done....Cause I know you're doing the best you can....I can tell you, I'll still be around....Because I understand the pain you deal with....I understand how hard life has become....I understand how tiring it is to hurt all the time...And I'll understand the depression you experience is from living in constant pain....And I won't take 2 years to come back to this site again....As being able to see there are other's out there that are in similar shoes I wear, quite possibly might help me more than I know....I regret anyone has to deal with RSD / CRPS....If you happen to find a Doc that is humble enough to admit he / she doesn't know much about RSD / CRPS, but is willing to learn about it and see you at the same time.....I believe that would be a good thing....It might be frustrating on occasion, but it's a whole hell of a lot better than nothing....I wish there were more I could do...But I also am still in search of a Doctor that factually can and will help, with regards to RSD / CRPS...Not that I don't have a few now...It's just that only so much has been done that factually does help..I believe we never stop looking until there is no more pain....I'm also in search of a friend or friends.....Many soft hugs ~!~

Hey fireball,
I am in pa and am looking for a dr whose worked with rsd, im in the same boat as you are.with comp if you can personal message me with a suggestion id truely appreciate it! Also im sorry to hear what you are going through! At least we all have each other to turn to someone who actually understands! Best of luck and hope to hear from you soon!

I don't know how to message you....Frankly, I'm doing well to be able to find my way back to the site and way really surprised to get your message.....I have facebook and yahoo....But a bit hesitant to put my info out here...Thanks for the surprise....

I'm searching to figure it out though.

Help. im looking for an rsd/crps support group in the phila pa area. i have the most wonderful drs. who have treated and diagnosed me 12 yrs ago. I would see no other. they listen to everything and most of all allow my input into all my care. they have done wonders for me. Dr. Philip Sasso and the S.E. pain management team have saved my life.

But now i need something new. people!!! with same disease to talk and compare things with. In person. face to face. A support group who knows were ive been and where im going. ive been all over the net trying to find one near me but cant.

Please if anyone knows of meetings or groups in the Philadelphia/ buck county area please i need one.
So much happens with this disorder sometimes the only ones who truly understand is someone who has walked in my shoes.

when i was dx. it was still a new disease that had to be explained to each nurse or dr who treated me for anything. i carried the only explanation of rsd research with me each hospital adm. there was only one site on the internet that spoke of it. so it was a lonley road. but now im so excited to see thats all changed. and its time i not be alone anymore suffering. but find others for support and to give suppot back. pls. let me know if anyone knows of any in my area. with much love understanding and a burn for a cure as well as knowlege to give and learn. SUSAN

However, I truly hope you do find a group. community is important. Rsd - those three letters have never meant so much to me then when i was told it was my diagnosis also..... I wish you good luck, fortune, and better health. soft hug

Try Dr. Todd Bromberg in Doylestown 215-489-9170

I am a new member here with a 16 year old daughter who was diagnosed with RSD - now referred to as AMPS (Amplified Musculoskeletal Pain Syndrome) @ 3 years ago. We found a program at Children's Hospital of Philadelphia run by Doctor David Sherry. To make a very long story short, my daughter was treated inpatient and is very close to a full recovery.