Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-08-2009, 12:33 PM #31
JohnM JohnM is offline
New Member
 
Join Date: Sep 2009
Location: Hackettstown, NJ
Posts: 1
10 yr Member
JohnM JohnM is offline
New Member
 
Join Date: Sep 2009
Location: Hackettstown, NJ
Posts: 1
10 yr Member
Default RSD, Help

I have RSD in my right foot and leg after a car accident that fractured my spine. I was diagnosed in 2006 with RSd, It has gotten so much worse, I'm ready to check out!
JohnM is offline   Reply With QuoteReply With Quote

advertisement
Old 09-08-2009, 08:07 PM #32
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

Quote:
Originally Posted by JohnM View Post
I have RSD in my right foot and leg after a car accident that fractured my spine. I was diagnosed in 2006 with RSd, It has gotten so much worse, I'm ready to check out!
So sorry to hear about your pain. I see that this is your first post - because it's tacked on an older thread a lot of people might miss it....you may want to start a new thread to capture the most attention.

Have you joined the RSDSA yet? Check out their website at RSDSA.org. It's has a lot of great info. Do you have a doctor yet? Are you looking in North or South Jersey - (I'm originally from S. Jersey, can't remember where Hacketstown is)?

There are a lot of good people here that will be willing to help you with your questions...you've come to a great place.

Peace, Sandy
SandyRI is offline   Reply With QuoteReply With Quote
Old 02-08-2010, 09:47 AM #33
stephen0204 stephen0204 is offline
New Member
 
Join Date: Feb 2010
Posts: 1
10 yr Member
stephen0204 stephen0204 is offline
New Member
 
Join Date: Feb 2010
Posts: 1
10 yr Member
Default RSD Doc

Could you send me the name of the doctor who has RSD that you suggest to see? His phone an dcity as well. Thanks
Stephen
stephen0204 is offline   Reply With QuoteReply With Quote
Old 02-08-2010, 02:01 PM #34
Kakimbo Kakimbo is offline
Member
 
Join Date: Sep 2009
Location: Galena, MD
Posts: 280
10 yr Member
Kakimbo Kakimbo is offline
Member
 
Join Date: Sep 2009
Location: Galena, MD
Posts: 280
10 yr Member
Default

Hi IHS.

I have a wonderful ortho in Dover. Also a very caring Neurologist. I use a pain doc out of Philly, but would not recommend him. I am starting treatment at John's Hopkins in Baltimore next month. I finally feel like I can be hopeful for pain relief. PM me if you want more info. Good luck!

Kim
__________________

.

.
Kakimbo is offline   Reply With QuoteReply With Quote
Old 02-08-2010, 04:39 PM #35
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

If you still need, see Dr. Robert Knobler.
He specializes in RSD and MS. He's a Neuro, Ph.D.
(REAL SMART/SHARP)!

I (After 7 years of nonesense) finally got to Dr Schwartzman, and Dr Knobler was his partner @ Jefferson.
Dr Knobler now runs the Knobler Institute of Neurologic Disease.
Ki.I.N.D.

(I just walked in the door from a visit with him).
Wonderful people

PM me, and I'll send you his address. He's in Fort Washington, PA, Right off the TPike.

Phone.
215.643.9045

You may feel free to use my name, (Pete Woj.)

This man has taken me further than Dr S. or any other Doctor I've EVER had!
I've sent many, many folks to him, and they are ALL happy, even driving all day!
Worth the trip.

BTW, He takes NO INsurance!

Be WEll!

pete
AintSoBad is offline   Reply With QuoteReply With Quote
Old 07-31-2010, 10:37 PM #36
RsdnScared RsdnScared is offline
New Member
 
Join Date: Feb 2010
Posts: 2
10 yr Member
RsdnScared RsdnScared is offline
New Member
 
Join Date: Feb 2010
Posts: 2
10 yr Member
Default im soo scared i cannot find a understanding doctor

HI Im from Long Island and I have had RSD CRPS type 2 and for over a year now and the pain has not subsided and cannot good medical care please help !!!!



Quote:
Originally Posted by RSD_Angel View Post
I have a GREAT doc that i see if you are willing to come up to NY!!! He even had RSD himself so he knows exaclty what we are talking about!!

Let me know if you want his name and everythng!


Amber
RsdnScared is offline   Reply With QuoteReply With Quote
Old 08-01-2010, 06:32 AM #37
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
Default

Quote:
Originally Posted by RsdnScared View Post
HI Im from Long Island and I have had RSD CRPS type 2 and for over a year now and the pain has not subsided and cannot good medical care please help !!!!
I have seen on this site a doctor who I believe is out of Stony Brook. I believe she is a women. A fellow RSDer who does post I this site knows her name. Her NeuroTalk name is Debbiehub, PM her she will be glad to give you the name I'm sure.

If you want to travel into the city you have Daniel I. Richman, MD, Semih Gungor, MD and the whole pain department out of the Hospital for Special Surgery located 69th and York right on the East River. Russel Portnoy, MD out of Beth Isreal, Union Square, Dr. Hertz, out of St. Lukes,he's very good but did not like St. Lukes, 57th and I believe 10th ave. all the way on the West Side.

Thats all I can think of. Good Luck.
gabbycakes is offline   Reply With QuoteReply With Quote
Old 08-01-2010, 12:45 PM #38
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
Default

Hi RSDAngel...I live in NY and have RSD. Could you tell me who your doctor is?? I would really appreciate it!
kelseypm@hotmail.co is offline   Reply With QuoteReply With Quote
Old 08-01-2010, 01:12 PM #39
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by alaska49 View Post
I have experience with a doctor in NYC his name is DR Richman and he is at the Hospital for Special Surgery. He is in thier pain department. I just got done with a procedure with him in which he also did the 5 day in-patient ketamine and he was wonderful.

Niki
Hi Niki,
I too have RSD and am being seen at the hospital for special surgery. I am seeing Dr. Waldman there. How did you like Dr. Richman? I am about to go for the 5 day ketamine...can you tell me a little about your experience? What did it feel like? Where there any bad parts? Can you describe what it was like those 5 days?
And most of all...did it help? How long did that last? How are you feeling now?

Thank you so much. I am so scared for this whole thing I would love the support and knowledge of what it was like!
Best,
Kelsey
kelseypm@hotmail.co is offline   Reply With QuoteReply With Quote
Old 08-01-2010, 01:21 PM #40
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
kelseypm@hotmail.co kelseypm@hotmail.co is offline
New Member
 
Join Date: Aug 2010
Posts: 3
10 yr Member
Default Question for Alaska49

Quote:
Originally Posted by alaska49 View Post
I have experience with a doctor in NYC his name is DR Richman and he is at the Hospital for Special Surgery. He is in thier pain department. I just got done with a procedure with him in which he also did the 5 day in-patient ketamine and he was wonderful.

Niki
Hi Niki,
I too have RSD and am being seen at the hospital for special surgery. I am seeing Dr. Waldman there. How did you like Dr. Richman? I am about to go for the 5 day ketamine...can you tell me a little about your experience? What did it feel like? Where there any bad parts? Can you describe what it was like those 5 days?
And most of all...did it help? How long did that last? How are you feeling now?

Thank you so much. I am so scared for this whole thing I would love the support and knowledge of what it was like!
Best,
Kelsey
kelseypm@hotmail.co is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Full recovery from RSD/ CRPS InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 95 09-21-2017 03:58 PM
Herbs/ natural remedies for RSD/ CRPS? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 31 07-04-2015 09:11 PM
High Blood Pressure from RSD/ CRPS? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 32 09-26-2009 06:01 PM
just an aside re steroids and CRPS-1 fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 1 12-26-2006 07:52 AM
new article--incidence of CRPS Annie Poo Reflex Sympathetic Dystrophy (RSD and CRPS) 0 11-27-2006 07:47 AM


All times are GMT -5. The time now is 11:51 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.