NeuroTalk Support Groups - Doctors for RSD/ CRPS in PA, NJ or DE?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Doctors for RSD/ CRPS in PA, NJ or DE? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/9830-doctors-rsd-crps-pa-nj-de.html)

Carol has quit **
She became so bad that she would sneak out of the office to avoid setting appointments She is gone.

Quote:

Originally Posted by fmichael (Post 53624)

Dear Vanessa -

The best RSD group in the country (outside of Boston, perhaps) is in Philadelphia. Dr. Schwartzman can take years to get into see. However, I understand from Roz on our board that Dr. Maleki is wonderful, and can be seen in far less time. For your reference, I saw Dr. Schwartzman now almost three years ago - flying in all the way from California - he had me hospitalized for a week on one treatment that didn't work, but he had to run before putting me into ketamine trials. Unfortunately, because of some other medical conditions that developed, I was unable to participate in the ketamine therapies.

If you are in their geographic area, I think it will be a big plus in being seen, especially in a primary treating capacity, which is what you want. Anyhow, here's their address:

Robert J. Schwartzman, M.D.
Jahangir Maleki, M.D.
Department of Neurology,
Drexel University College of Medicine
Drexel Neurological Associates
219 No. Broad Street, 7th Floor
Philadelphia PA 19107-1519
215-762-7090
215-762-3161 (fax)

Good luck!

Mike

___
P.S. Last I checked, the person you have to speak to in setting appointments, at least with Dr. Schwartzman, is Carol, who has absolute control over the scheduling calendar.

rsd/crps support group near me??

Help. im looking for an rsd/crps support group in the phila pa area. i have the most wonderful drs. who have treated and diagnosed me 12 yrs ago. I would see no other. they listen to everything and most of all allow my input into all my care. they have done wonders for me. Dr. Philip Sasso and the S.E. pain management team have saved my life.

But now i need something new. people!!! with same disease to talk and compare things with. In person. face to face. A support group who knows were ive been and where im going. ive been all over the net trying to find one near me but cant.

Please if anyone knows of meetings or groups in the Philadelphia/ buck county area please i need one.
So much happens with this disorder sometimes the only ones who truly understand is someone who has walked in my shoes.

when i was dx. it was still a new disease that had to be explained to each nurse or dr who treated me for anything. i carried the only explanation of rsd research with me each hospital adm. there was only one site on the internet that spoke of it. so it was a lonley road. but now im so excited to see thats all changed. and its time i not be alone anymore suffering. but find others for support and to give suppot back. pls. let me know if anyone knows of any in my area. with much love understanding and a burn for a cure as well as knowlege to give and learn. SUSAN:confused:

Not so sure for your area:

Quote:

Originally Posted by isuern1 (Post 931003)

However, I truly hope you do find a group. community is important. Rsd - those three letters have never meant so much to me then when i was told it was my diagnosis also..... I wish you good luck, fortune, and better health. soft hug

Quote:

Originally Posted by InHisHands (Post 53538)

Could you tell me if there are any Drs. in PA, NJ or DE that you would highly reccomend in working with RSD? TIA!

Try Dr. Todd Bromberg in Doylestown 215-489-9170

Miraculous Program for Children & Adolescents in PA

I am a new member here with a 16 year old daughter who was diagnosed with RSD - now referred to as AMPS (Amplified Musculoskeletal Pain Syndrome) @ 3 years ago. We found a program at Children's Hospital of Philadelphia run by Doctor David Sherry. To make a very long story short, my daughter was treated inpatient and is very close to a full recovery.

Quote:

Originally Posted by RSD_Angel (Post 55114)

I have a GREAT doc that i see if you are willing to come up to NY!!! He even had RSD himself so he knows exaclty what we are talking about!!

Let me know if you want his name and everythng!

;)
Amber

yes i would like this information

You might look thru this thread for some suggestions also.
http://neurotalk.psychcentral.com/sh...534#post348534

Two RSD Hospitals in One City

Hi there was a Doctor Knobbe I think thats right who had RSD and treated it . I live in Oregon (excuse my spelling) I went to the Hahnneman Hospital then when another Doctor saw me I think it is called the Thomas Jefferson Hospital ,other than UCLA (its in LA scary but great hospital) and UCSF and Stanford within a days drive (long Day) in San Francisco ,I have tried every trial from the sixties util the nineties ,I was a Rabbit
But I have had RSD 45 years
Gentle Hug
rsdno