Dear Vanessa -

The best RSD group in the country (outside of Boston, perhaps) is in Philadelphia. Dr. Schwartzman can take years to get into see. However, I understand from Roz on our board that Dr. Maleki is wonderful, and can be seen in far less time. For your reference, I saw Dr. Schwartzman now almost three years ago - flying in all the way from California - he had me hospitalized for a week on one treatment that didn't work, but he had to run before putting me into ketamine trials. Unfortunately, because of some other medical conditions that developed, I was unable to participate in the ketamine therapies.

If you are in their geographic area, I think it will be a big plus in being seen, especially in a primary treating capacity, which is what you want. Anyhow, here's their address:

Robert J. Schwartzman, M.D.
Jahangir Maleki, M.D.
Department of Neurology,
Drexel University College of Medicine
Drexel Neurological Associates
219 No. Broad Street, 7th Floor
Philadelphia PA 19107-1519
215-762-7090
215-762-3161 (fax)

Good luck!

Mike

___
P.S. Last I checked, the person you have to speak to in setting appointments, at least with Dr. Schwartzman, is Carol, who has absolute control over the scheduling calendar.

Hi Hon,
I remember you saying you are young. If I recall rightly you haven't had it that long as well. Make sure you share this information with them while trying to get an appointment. It could help.

I have seened Maleki MD who is wonderful. Hugs, Roz

Unfortunately, I am too young to be seen by Dr. S./ their group. That is who I had really wanted to see but we contacted their office and I am not able to see them there. I am not 18 yet, so that possibility is out for now. Maybe somewhere down the road I can see him, if I am still dealing with this.


Thank you for the replies.

Try Childrens Hospital in Philadelphia, they have docs who know about CRPS.
Lucky853

I must say that I found Boston to claim to have the best, but in actuallity I would choose to differ on that opinion!

Just had to add my 2 cents about this one,
Peace,
Lisa

Who do you feel is the best Dr. for RSD? Just wondering what your opinion is on that...

I saw Dr. Getson once -he was working ala Dr Schwartzman with the ketamine but his funding was cut- He was very nice and down to earth-here is the links to read about him..

Debbie

http://aolsearch.aol.com/aol/search?...ry=dr%20getson

I have a GREAT doc that i see if you are willing to come up to NY!!! He even had RSD himself so he knows exaclty what we are talking about!!

Let me know if you want his name and everythng!


Amber

...WOW you said in NY? I am living in NY and I have been trying to find one. Can you give me information please?

That would be wonderful. Thank you.

Emily

Could you please give me his name and everything??? PM me, if you can. Thanks so much!!