Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-19-2007, 08:34 PM #21
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Default hi there..

Ohh a cruise sounds so good Roz.. I have a friend with fibro that just went to dominica republic and she says her pain was gone the whole trip and that it returned aprx 1 hr before landing in western canada on the return trip.

The hospital misplaced the doplar ultrasound form aparently.. good thing it's not an emergency.. they scheduled me for late monday when I called today to see why they hadnt called with an apointment yesterday AM as they were suposto.

The lump is not as big as it was.. I think it enlarges or ingorges when I push up using my palm (pressure?) looks bruised too right after I do it.. the bruised look gets worse throughout the day, but it is smaller and almost normal colored in the AM.

So I am just trying not to use that arm much but using it as normal as possible at the same time so that the stiffness does not set in.

Take care and thank you all for your well wishes, I am starting to feel more myself again, I just need to keep my stress down as I feel it directly effects my heart as it's happenin.

sandra
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Old 01-24-2007, 07:54 PM #22
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Default

Hi Sandra,

You're sure going through it, aren't you? I'll be praying too.

It sounds like "Hopeliveshere" hit on one thing you have. I agree with Ada, too, that when we have more than one thing then doc's get "confused", understandably, and just try to find ONE thing to name. It's the way they're trained.

I'm sorry about the mean/rude cardio doc you had! We've all been through at least one "nasty" doc attitude!

I'll be praying for you too!

Gentle hugs,

Denise
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Old 03-08-2007, 02:11 PM #23
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Default nother update same disaster.. lol

I was sent to see a vascular surgeon about the radial artery mess.. another ulreasound was done in specialists office (nice ubderstandin doc) he did things bracing both sides of my wrists etc.. the Radial artery is totaly blocked from the angeogram.. its a good thing I also have an in same hand the ulnar artery, this explaines why I get so much pain when I wrest my wrist on the outside wrist base.. and why it is that hand usualy puffed up every morning and the acheing I have had so much worse in both arms than was there before the procedure.

The vascular surgeon is also a dr who does blocks and deals with RSD ansethetic procedures aparently... he looked at my right arm hand and wrist lots and he said that he is going to sugest/recomend that I get a satelite upper block through my rt neak.. As this inciting event had just happened and it may help at this point for these symptoms before they increase.

he said he would write my doc an extensive letter of what he see's and suggests..

hugs,
Sandra
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Old 03-08-2007, 03:32 PM #24
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Default Chest pains - fibromyalgia can mimic heart conditions

Just a quick note of info. I had chest pains several times. Fortunately I have Janet Travell's book on Fibro. - which I have. I looked up the chapter on the chest Sure enought - fibro can mimic heart problems. Trigger Point Injections were a "God Send". No heart problems. Just needed the TPI's.
Much relief - haven't had them in many years now.
Also, there is an article by Devlyn Starlyn about Fibro. patients and surgery. She recommends procaine injections at the site of the incisions prior to surgery and to lessen the risk of scar tissue and trigger point pain developing and causing further problems. Just trying to help. I know what it is to suffer with chronic pain of fibro and RSD.
Sydney
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