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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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New Member
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HAS ANYONE GOTTEN THEIR RSD FROM AN IV INFILTRATION?THAT'S HOW I GOT IT AND AM NOW SUEING THE HOSPITAL BUT HAVE HAD MANY OTHER COMPLICATIONS SINCE ALL RELATING BACK TO THE RSD OR THE MEDS I'M ON FOR IT..........I UNDERSTAND THAT GETTING IT FROM AN IV IS THE MOST PAINFUL FORM.......AS IF IT WAS NOT PAINFUL ENOUGH NO MATTER HOW YOU GET IT.........BECAUSE OF THE SUIT I'M ALSO HAVING A HARD TIME FINDING DOCS THAT WILL TREAT ME( THEY DON'T WANT TO GET INVOLVED I GUESS)..........THANKS FOR ANY RESPONSE
FROGLADY4662@aol.com FLORIDA |
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#2 | ||
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I do know someone who got it from a blood draw- Your not alone....if that helps
Debbie |
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#3 | ||
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Yes, I too got Rsd in my right hand, wrist and arm from an IVpush. Nurse knew nothing about RSD. She should never have put the IV in my hand. The DR. said you should stay away from hands and feet of rSD patients. Unfortunately, he didn't inform her of my condition. Within minutes I was in pain and it continued to get worse. Now I have constant pain in this limb and it affects typing, driving, etc.
I have had multiple medical conditions caused by DR.s However, I have never sued and never will - too many repercusions as you will find out. In fact all of my RSD and FM are caused by Dr. procedures. I too am scared of blood draws as I have severe allodynia and hyperalgesia. Just anything invasive and non invasive is scarey. Best of luck to you. Sorry this happened to you. Beware of needles in hands and feet if you have rsd - especially an IV push. Sydney |
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#4 | |||
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Senior Member
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But did get hurt by a doctor oops. It has made getting treated by any doctor almost impossible. I hope you are able to get something for all your troubles besides a hard time.
I wish I would have been able to get something, it would have made all this trouble, and life changing pain a little more easier to take. I think the worst thing they are doing to me currently is not helping me with SSDI. It is very hard to get social security when the docs are trying to protect one of their peers. I thought I might have to move out of state just to get fair treatment ![]() Im not sure if getting it from an IV or needle is the most painful way to get it. Try having them block the bloodflow to your whole leg for a week, talk about pain! All the muscles and nerves, soft tissue dying on you, and then have them tell you they might have to take the leg ![]() Im still not sure if having the leg is better, or if they should have cut it off ![]() You can read my story on my website, the link is in my sig. ![]() I wish you luck, and stay strong, keep up the good fight!
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. Gone Squatchin |
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#5 | ||
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My rsd started from a blood test 6 years ago. We tried to sue but came up against the same things I'm sure you're coming up against- no dr's want to get involved as they have to deal with the blood collection company and they're all in each others pockets. We settled out of court but the lawyers took most of the money. It was a total waste of time and effort. Although I did recently read of a person in the US who had the same thing happen and they sued and got millions, so maybe google that and see if there are any parts that could help you in your case.
I was very scared of needles afterwards, and had to have psychological help to be able to have more blood tests. I've had to have a lot of iv's too, as I had three ketamine infusions, (they move the needle every 2-3 days of the 7 day procedure, plus give you two bloodtests that week) plus two childbirths since my rsd started, so I haven't been able to avoid them. But now I get local before I have an iv go in (as they often have to dig around a bit as those veins are shot), and they only use my left arm, there's no way I even let them put the blood pressure cuff on my rsd arm. I wish you luck in finding a pain specialist who will treat you, and that you get some pain relief. Good luck in your lawsuit. x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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#6 | |||
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Junior Member
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I didn't get RSD from an IV... BUT having to do with the wonderful and mysterious world of nerves... I had a treatment about 3 years ago that required an IV. I was treated at a teaching hospital so the doctor asked if it was ok if med students were about to start my IV and of course i had no problem because being stuck with needles was the least of my worries. But due to their lack of aim they hit nerves in both of my hands leaving 3 fingers on each hand numb to touch. I can still move them but i have no sensory feeling in them. I have just started getting tingling in my fingers for the past few weeks though so maybe thats the sign of recovery on my fingers at least.
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#7 | ||
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Junior Member
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Hi Froglady,
Sorry to hear about your injury. Mine is from a venipuncture injury as well, but happened while I was donating blood almost two years ago. The (inexperienced) nurse was in a hurry and took out the sensory branch of my radial nerve in my right forearm. The initial symptoms never went away, worsened significantly ~6 months after the injury, then spread up the arm and to my neck and right half of my head. Symptoms are primarily in forearm and upper arm/shoulder. I've also read that venipuncture RSD/CRPS injuries can be among the most painful and long-lasting. I think it's because the nerve takes such a direct hit. I fortunately haven't had the experience of Dr's not wanting to treat me. I think it's because the injury happened at a blood donation center, not at any facility associated with my HMO, so I would guess that everyone treating me feels a bit insulated from the legal issues. I have a good lawyer, and will file an insurance claim (or lawsuit, if necessary) when we have more of an idea what the long-term consequences will be for me, probably within then next 6 months. He tells me I have a very good case, mostly due to the circumstances (i.e. obvious negligence) surrounding the injury, total lack of followup & documentation on the part of the blood donation center, and my very detailed records from day one. My symptoms spread last winter, and appear to be getting worse (although it's hard to tell, because as we all know, symptoms change all of the time). It's soooooo frustrating that I don't know what will happen in the future with this. I'm probably going to be having surgery (hysterectomy) this spring for an unrelated problem. Based on what I've been reading in this forum, I plan on writing "NO IV THIS ARM" all over my right arm before going into the hospital. The thought of a needle in my injured arm makes me very anxious. I hope you find a good Dr. that will treat you. I also wish you well in your lawsuit. I'm the LAST person I ever thought would every file a lawsuit (sometimes I'm too darn nice about everything), especially against a nationally known blood donation organization,no less. However, as I'm sure you're feeling, I'm so angry about what this has done to my life, that I want some sense of justice. Anyway, I'm blabbing on. Please let us know how you are doing. Annie |
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#8 | ||
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New Member
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i have had the same thing happen to me and i would like to settle out of court.i have lined up and attorney just in case. how old were you when it happened. how much should i ask for. i have no idea how much treatment is because it happened while i was pregnant and i just had my baby
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