Sanctuary for Spiritual Support This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-21-2010, 05:31 PM #1
southie's Avatar
southie southie is offline
Member
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
southie southie is offline
Member
southie's Avatar
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
Frown Special Request ... not for me

... rather for my son ... as the Neuro had said years
ago when my son was Dx'd with Epilepsy, "Like mother,
like son..."

Recently, he had went to the Physician and to the
Doctor's astonishment, he has the exact same cardiac
problem as I have ... MVP (Mitral Valve Prolapse) with
Regurgitation, that goes along with his high Blood Pressure.



Which I could repeat what the Neurologist said years
ago ... "like mother, like son..."

While my son and I have so much in common in many
ways and differing in other ways; it is mitochondrial.
They have yet to test him on this.

Meanwhile, he is also a Proud Papa and a married man,
in his mid-20s. It is scary for one to know one being a
mirror-image of the other; but how much has yet to be
determined. Even more so upon his own beloved child.

Pray for both of them or keep them in your thoughts
please! Thank you so much!

__________________
Sharon

.


" Vujà Dé - The feeling you've
never been in here before!"

Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
southie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Chemar (03-21-2010), Darlene (03-22-2010), Dejibo (03-22-2010), DM (03-29-2010), SandyC (03-21-2010)

advertisement
Old 03-21-2010, 06:47 PM #2
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

You got it.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (03-24-2010)
Old 03-21-2010, 07:54 PM #3
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Prayers being said, Southie!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (03-24-2010)
Old 03-24-2010, 08:36 PM #4
southie's Avatar
southie southie is offline
Member
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
southie southie is offline
Member
southie's Avatar
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
Heart Update

My son is now scheduled to see a Cardio-Surgeon
shortly, one of my Cardio-Surgeons who is on my
team (they work at both Hospitals, but he is being
sent to the other Hospital). There may be a possibility
he might have to undergo some surgical procedures
soon, which is very puzzling because throughout all
this years (HMO Physicians) had been ignoring him
and his complaints of chest pains and deeming it as
"psychological".

I thank you for your prayers ... God is moving!
__________________
Sharon

.


" Vujà Dé - The feeling you've
never been in here before!"

Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
southie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (03-25-2010)
Old 03-25-2010, 12:51 AM #5
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Thumbs up

My thoughts and prayers are with you and your family.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (05-23-2010)
Old 03-25-2010, 02:02 AM #6
Brokenfriend's Avatar
Brokenfriend Brokenfriend is offline
Elder
 
Join Date: Nov 2007
Posts: 5,438
15 yr Member
Brokenfriend Brokenfriend is offline
Elder
Brokenfriend's Avatar
 
Join Date: Nov 2007
Posts: 5,438
15 yr Member
Default Dear Southie

I'm saying a prayer for your family also. BF
Brokenfriend is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (05-23-2010)
Old 03-29-2010, 03:18 PM #7
DM's Avatar
DM DM is offline
Legendary
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default

Hey Sharon~ Just seeing this now, but am sending prayers for your Son, you and your family. Hope things get better soon. take care
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (05-23-2010)
Old 05-23-2010, 07:22 AM #8
southie's Avatar
southie southie is offline
Member
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
southie southie is offline
Member
southie's Avatar
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
Default Updattee

The reports are in, my son has the same
mitochondrial that I have; his cardiac is a mirror
reflection of what I have - in my records in his age had
been compared ... just too eerie.

A few folks have met me in person, and are
aware of scars - one of them on my left shoulder
due to rotor cuff and then some, surgery from
years ago - with the Orthopedic Surgeon found
what could not be seen on MRI; the damages were
far deeper and much more severe. It is scary to
know that my son has the same thing where now
the Hospital is using mine (Radiology) in comparison
with his. Just too spooky; most likely will have the
exact same surgery as I have on the left shoulder.

The next phase is Neurology, whereas - they are
considering an option of booking my son and I
together in VEEG (Video Electroencephalogram) for
a few days, for they did find some of my old, old EEG's;
which they are going to use that for comparison plus
being hooked up on the machine to monitor the both
of us and ?????? Well, at least my mother and son had
indicated that was their plan; while I cannot have brain
surgery - had the golden opportunity years ago, blown...
However, he can - maybe.

They are even more concerned to the fact that he
and his wife's own child is a mirror image of myself,
nearly 90% after grandma, yet, only 10% after "daddy".

Sounds something out of a Stephen King Thriller, however,
it is quite interesting to see all the Physicians / Specialists
now teaming up with life - after years and years of degrading
and demeaning me (??) ...

While they know what the mitochondrial is, however, the
problematic issue is - I am adopted; is what make things
now complicated. Learning now that even though it is
excessively rare, however, there are several types of mutants,
as well as several types of variants, for added insult - there is
even a maternal variants on top of it; the only way they would
really know is via an autopsy.

They are going to try again for the DNA/Genetic - all three of
us together at the same time with all the answers and results
coming back about the same time (Since the lab work goes all
over the USA), that part has to wait until the child is older.

Does this bother me, a little bit - but I have to keep my eyes
upon the Lord, knowing that He makes all things beautiful in
His Time.
__________________
Sharon

.


" Vujà Dé - The feeling you've
never been in here before!"

Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
southie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Darlene (05-24-2010)
Old 05-25-2010, 12:20 AM #9
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Bless your heart!


When it rains it pours! You are in my prayers.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southie (05-25-2010)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A special request for all posting here Chemar On the Lighter Side 1 05-15-2009 04:55 PM
Special memories of Special People Twinkletoes Coping with Grief & Loss 7 03-03-2009 12:36 AM
Jo 55 is special richard d Thoracic Outlet Syndrome 9 10-10-2008 06:23 PM
Special message HopeLivesHere Reflex Sympathetic Dystrophy (RSD and CRPS) 0 03-31-2007 02:48 PM


All times are GMT -5. The time now is 03:25 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.