Got some good news about my niece. The Neuroblastoma is contained to the small tumor on her back. Nothing has spread to her bones, bone marrow or any other organ. Praise God! They go on 6/18 to the oncologist to map out a treatment plan. Thank you for the prayers.

So sorry to hear they are facing this. They will be in my thoughts and prayers.

Your little lady is in my thoughts and Prayers as are her loved ones. May the Special Angels wrap her in their beautiful wings and keep her safe.

Here's an update Claire's Mom posted about her progress:

"As it is, the tumor cannot be removed at this time because is too vascular. It is also running along her major aorta. The cancer will have to be treated more aggressively than we thought. She will still have chemotherapy but at a higher dose. She will have to be hospitalized for observation. We do not have the details yet about any of this.

We will meet the oncologist on Tuesday after her CT scan around noon. She will go over the treatment with us and what we can expect. They will possibly set her up with the surgeon for her chemotherapy port.

Please pray for us all on Tuesday as we try to comprehend all of the information. Pray that we will have wisdom and peace. Pray for our boys that they will be able to understand what is happening and trust the Lord."

Thank you for praying for her. She's such a sweet little girl....so innocent. She doesn't understand all that's taking place. I know that the Lord will take care of her.

adding little Claire to my prayer list. :grouphug:

oh Kelly, I am so sad to read this update but will be praying for Claire.

Praying especially for wisdom for the physicians to know how best to treat this, and hoping for a miracle......

:grouphug:

Kell...Im so sorry but will continue my prayers. Neuroblastoma is a tricky
cancer.:hug::hug::hug::hug:

Latest Update.......not so good. Please continue to pray:

Isaiah 42:6-8, "I, the Lord, have called you in righteousness; I will take hold of your hand. I will keep you and will make you to be a covenant for the people and a light for the Gentiles, to open the eyes that are blind, to free the captives from prison and to release from the dungeon those who sit in darkness. I am the Lord; that is my name! I will not give my glory to another or my praise to idols."

Well yesterday was a tense and trying day but He never left us alone. God continues to remind us that Claire's life is in His hands and no other. She had some complications from sedation yesterday and her vocal chords closed off her airway causing spasms. The doctor kept her oxygen going but warned us that if the spasm did not stop he would have to paralyze her and put her on life support until the medicine left her system. Praise be to God, He saved her and she came out of it with no side effects or future problems.

We also met with her oncologist around noon and talked about the stage of Claire's cancer and treatment plan. Right now she is stage 3 of Neuroblastoma, risk still uncertain.

Please, people of God, pray for Divine wisdom for Claire's doctors. There is a whole team of doctors being consulted at this time because they have never seen a case like Claire's. There is nothing to compare it to and so they aren't sure whether to treat her as intermediate or high risk. Her tumor just barely crosses the mid-line of the body. The amplification is also unclear. This means that the cancer is barely aggressive, but they still cannot determine. They are waiting to hear from COG (Children's Oncology Group) with their biology study and numbers. This will help them decide what to do.

The difference in intermediate and high risk treatment is significant. The concern is that if they undertreat her, they run the risk of the cancer coming back with a vengence. However, the risk and side effects from high-risk treatment are much greater.

The factors they are considering is that #1 she is completely a-symptomatic. She has nocomplications from this cancer whatsoever. #2 It has not spread anywhere else in her body even though it is "aggressive". #3 Her MNYC amplification # is between 5-8. The cut off is 8 for high-risk treatment. #4 The tumor is just crossing the midline of the body by a couple of mm.

The oncologist does not feel comfortable moving forward with the high-risk treatment until they hear from COG and another group of doctors they are consulting.

We will keep you updated as soon as we know.

You tell them we are praying really hard for this precious baby. :hug: