Sanctuary for Spiritual Support This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate.


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Old 06-16-2010, 12:44 PM #21
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Adding my prayers.
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Old 06-16-2010, 09:06 PM #22
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Kelly, Claire will be in my prayers!

I have friends that walked this journey with their son for 3 years. He was older(10 at dx and it was stage 4). It is a really tough battle on families because this dang cancer is so tough to figure out and beat.
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Old 06-18-2010, 02:59 PM #23
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My heart aches for them. I pray that God will guide the doctors and hold your family close.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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Old 06-18-2010, 05:04 PM #24
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Praying for Divine Intervention, Divine Guidance -- May ALL feel surrounded and comforted by Divine Love.
For Claire and Famiy, Medical Staff, too... For all they need, for as long as they need it!
~DejaVu
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Old 06-22-2010, 10:31 AM #25
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Got this short update:

"Well we received news today that all of the oncologist involved in her case all agree that she is high risk. Our oncolgist just got some conflicting info on her MNYC amplification."
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Old 06-22-2010, 11:19 AM #26
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(((((((((Kelly)))))))))

continuing to pray
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Old 06-22-2010, 11:28 AM #27
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Hugs and prayers Kel
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Old 06-22-2010, 02:07 PM #28
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Received a more thorough update. Please continue to pray:

"We heard from the oncologist and all of the physicians who have reviewed Claire's case agree that she needs to be treated as high-risk Neuroblastoma, stage 3. It is because her biology is unfavorable.

Sadly, this means that Claire will be treated with high-dose chemotherapy, surgery, radiation and other medications. This will all take place over a year. She is scheduled to have a central line put in this Friday, June 25, and will be admitted for her first cycle of chemotherapy the same day. We will be in the hospital for five days and then come home until the next cycle is administered. The cycles will be spaced three weeks apart. After five cycles, she will have some kind scan (MRI) to check the size of her tumor. If they can remove it surgically at that time, they will. The concern is that it is resting on her aorta and also the tumor is very vascular. Even if it is removed surgically, she will still have chemo, radiation and Accutane.

I am not sure about visitors while she is receiving her chemo, but I will find out today. I will post those restrictions on here. If we can receive visitors, we would love to so hopefully it will work out.

Please pray for Claire as she is given anesthesia again. After our scare on Tuesday we are concerned about her. We have her on some homeopathic treatments to help her through the chemo. Please pray that they will do their job and help protect her from the toxic chemicals.

We know that Claire is safe in the hands of her Creator, Jesus Christ. He is God over this cancer and He does not sleep or grow weary. He holds all things together by His powerful Word (Hebrews 1:3), even our little three year old. We completely put our hope in Him and this is where our strength comes from. Please pray for all of us to have faith and not give into discouragement."
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Old 06-22-2010, 02:16 PM #29
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Praying hard for them.
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Old 06-22-2010, 06:45 PM #30
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Remembering all in prayer.
Thanks so much for the updates.
~DejaVu
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