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Old 02-22-2007, 02:05 AM #11
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Kathy,

I'm so happy for you and I hope some good comes of this for you!

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Old 02-23-2007, 06:18 AM #12
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I hope it all works out for ya
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Old 02-27-2007, 10:11 PM #13
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Default Kathy,

Hi,
This is KMEB - from original BT and now NT too.... that sounds so promising! I'm still hovering in the were sure you have amyloid but cant nail it down field - am now having progressive cardiomyopathy along with severe neruopathy and gastroparesis (all symtoms of course)... finally saw an amyloid "expert" last month and he did some tests - and is going to work with my GP to do more biopsies, etc....
I know they are doing and more and more research in this area - heres hoping this may be an answer for you... sending good thoughts....
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Old 03-03-2007, 08:28 PM #14
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Thanks ((kmeb))

It's so good to see a post from you. You've been on a long road with this. I'm glad to see you're still hangin' tough. I hope and pray a definitive diagnosis can be found for you, along with effective treatment.
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