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Old 01-08-2008, 02:00 PM #11
arthurhlevine
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arthurhlevine
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Default stooping is oe thing, quitting is another........

You sound to me like you aren't actually wanting to "quit" anything at all
Alls you are wanting to do is "stop" seeing doctors and take your personal medical matters more under your own control....

If you want to stop, that is your business, it might be that you are better off emotionally and, I guess "spiritually", psychologically looking to and for yourself for the answers that so far evade you....Maybe not...Only you will ever know...

But, you must be aware and prepared to discover that maybe what is wrong with you forever remains a mystery to you and all others too. And that it's really nobody's fault that what is wrong with you and how to effectively treat "it" can not be resolved. Sometime that's just the way it goes.......sometimes you just gotta go with the flow and ride with the tide......

Read, read some more, and then get serious about reading some more....
Start a collection of everything neuro related that you can find....
Ask lots of questions, and then read and collect some more neuro stuff.......

Get a dog, and then walk and talk to the dog, along with whatever version of the great creator you choose to subscribe to, every day.

See a good shrink.....Finding one might require an effort, but they're out there..... Sometimes learning how to live with somethings offers more promise than alleviating "it" might entail........

If you just want to stop seeing doctors....
Nothing at all wrong with that.....
That sounds almost just like me....

You might want to stop here.......Especially if you think that little except sweetness and honey might follow, they don't.......I think the above is pretty reasonable and I try to approach all things in life in a similar way.....I did say "try"....... I have a few other thoughts that to me anyway, the above doesn't interfere with what is the below either.....
Be forewarned.....I apparently tend to look at most things in life a tad bit differently than most folks do.......And am absolutely comfortable with what I think, and with what anyone else might happen to think about whatever it is I might happen think about something.
Nothing really very bad at all below though....
-------------------------------------------------------------

>>> " I talked to my PC, and I informed him that I wanted to take more charge of my medical decisions, and I wasn't going to go to every doctor he could think of just on a hope and a prayer. It's not that I'm giving up really, but after all this time I think it would be more helpful for me to concentrate on learning to live with my condition intead of constantly aggravating it with new doctors. He didn't really disagree with me, as long as I would agree to go see one more specialist whose practice is 120 miles away. After that he said he would be willing to work with me more to manage my symptoms, and let me decide when I needed to see someone new." <<<
Bad news, but that, to my way of thinking (subject to being way off base and skewed far from what most might consider to be realistic and reasonable), is that that is a response that is exactly what is called: >>>disagreeing<<< with you.... Tell him if he will eschew any further referral/etc fees and refund all referral/etc fees on/with/from/due-to YOU that he has received in the past five years you'll go, otherwise tell him "NO!"
Let's see he doesn't disagree with you, but only IF you: >>> "agree to go see one more specialist whose practice is 120 miles away" <<<
Were I you I would tell that physician to go and (put bad thought here) and find me another PCP immediately.

Whose life is it you are living anyway? Yours or his/theirs?
How on earth does anybody know what is really happening to you except for you.....
The physicians really doubt you too don't they? You fail to fit into their pharmaceutical cure all fantasy land and so they figure you are a prime candidate for endless rounds of more and more useless testing, even tests already done several times, and that benefit none or nothing save their own personal financial situation.

I took this evoked response test once that involved wiring me up from foot to head and shocking me with copious quantities of rather large zaps of zero amp hi-voltage, like a stun gun attack. I told the neuro's that for several days I felt better than at any time since waking up late 05/02 and that I wanted them to do it again, and if it had the same result the second time, I wanted a good zapping on a somewhat regular basis. They, all save one neuro (and him I see in February!) say that there is no positive anything possible from such a "treatment" regime.
"How do you know" I have asked them all, and NONE of them have anything even close to a reasonably sound medical or scientific answer to offer, nothing even remotely close. They all admittedly have absolutely no idea about why or how anything does/doesn't/will/won't with me, and yet they are absolutely certain that the "shock treatment" had no effect at all on me, with nothing except their all knowing wisdom and experience to guide them.
I have told them all that if I say that I sustained a rather dramatic response and heightened sense of awareness and ability then THAT IS EXACTLY WHAT HAPPENED TO ME!. It is me that had the experience and me that reports the results..NOT THEM!!!!!
And therefore I AM RIGHT and THEY ARE WRONG!

And for your new "PC", I would suggest that you find yourself a 40 something woman physician that has had several kids (they make the best and most "intuitive" physicians around IMHO) and leave the bargain making doctor alone for good.
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Idealist (01-09-2008)

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Old 01-08-2008, 03:54 PM #12
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Hi Idealist
Man I'm totally surprised ya actually found a doc that ISN'T tellin' ya it's all in your head & is willing to keep working with you & getting you more tests! It's usually quite the opposite! So many docs are ready to jump to the conclusion that if a few tests showed nothing, it's mental/emotional, whatever & wanna hurry up & getcha on meds! Lol! Been there! Lol! They found out differently tho! I know the round after round of docs, tests, trips, crappola gets old fast, and I sure don't see any harm in a respite from it, especially from the standpoint of your much needed stress release. However, since your doc see's reason to continue on the quest and you've already gone this far, I imagine you've been able to rule out a lot of things & might be fairly close to getting answers, so I hope you don't quit. An epiphany may be just around the corner! I suggest praying for answers & guidance for you & your doctors. It was only thru God's intervention that I was at long last able to receive disability which I sorely needed. God walked me thru the entire process and it was awesome because my doctors were unaware of my decision to go forth & apply at that point & they were saying & doing things which made it apparent to me that they somehow knew...and were helping me. I always call the process I went thru "connecting the dots" because that's what it was like, I prayed to God for guidance and I followed His lead. There were times I didn't have enough faith and God pushed me to do what I had to do, even tho I was rebelling at it! Pray for help, God hears our prayers & will help you!
Good luck!!!!
Hugs!
Critter
P.S. Don't resign yourself to learning to live with whatever ails you if you don't have to!!!!
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Old 01-08-2008, 03:55 PM #13
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What a beautiful reply Cheri! You're a genuinely lovely person, inside & out!!
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