SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
View Poll Results: Do you have a SCS or Pain pump?
SCS? 121 85.21%
SCS?
121 85.21%
Pain pump? 13 9.15%
Pain pump?
13 9.15%
Worked well for me 38 26.76%
Worked well for me
38 26.76%
Works somewhat / partially 44 30.99%
Works somewhat / partially
44 30.99%
Didn't work for me 9 6.34%
Didn't work for me
9 6.34%
Had to have it removed 13 9.15%
Had to have it removed
13 9.15%
Had medical complications 15 10.56%
Had medical complications
15 10.56%
Had mechanical malfunctions 10 7.04%
Had mechanical malfunctions
10 7.04%
Still in but turned off 17 11.97%
Still in but turned off
17 11.97%
Other issues explain in a post please. 20 14.08%
Other issues explain in a post please.
20 14.08%
Multiple Choice Poll. Voters: 142. You may not vote on this poll

Reply
 
Thread Tools Display Modes
Old 11-23-2014, 02:26 PM #81
AngieG AngieG is offline
New Member
 
Join Date: Nov 2014
Posts: 5
8 yr Member
AngieG AngieG is offline
New Member
 
Join Date: Nov 2014
Posts: 5
8 yr Member
Default My Doctors are pushing SCS any good news stories here?

I have been diagnosed with CRPS. I'm on very high amounts of opioids (Fentynal patches). I've been on high, high opioids for 2 years and my Doctors are pushing me to get a SCS. They claim that taking these high doses of pain meds isn't sustainable. Does anyone here have a successful SCS story with RSD or CRPS ?
AngieG is offline   Reply With QuoteReply With Quote

advertisement
Old 05-03-2015, 11:48 AM #82
Frankie071 Frankie071 is offline
Junior Member
 
Join Date: Mar 2012
Posts: 8
10 yr Member
Frankie071 Frankie071 is offline
Junior Member
 
Join Date: Mar 2012
Posts: 8
10 yr Member
Default Scs

Hi. I have a SCS implanted in buttock, and find it
excellent(on 3rd now) but due to spinal disease progression, I'm depending on paravertrabal nerve block and cervical epidurals to control upper spinal pain,spasm,loss of power etc. Minimal use of steroids in either injective procedures,performed with radiology.
I would like to know if anyone has a pain pump in situ for upper spinal pain?
Thanks in advance!
Frankie071 is offline   Reply With QuoteReply With Quote
Old 05-17-2015, 04:15 PM #83
caligirl4ever22 caligirl4ever22 is offline
Newly Joined
 
Join Date: May 2015
Posts: 1
8 yr Member
caligirl4ever22 caligirl4ever22 is offline
Newly Joined
 
Join Date: May 2015
Posts: 1
8 yr Member
Question do it or not?

Hello, I am posting in hopes that my husband and I can get more testimonials regarding the spinal cord stimulator. My husband has been on the trial for almost a week (coming off on Tuesday) and so far he seems to like the effect it has on him. I am just somewhat worried about having the implanted SPS permanently. I want to think positive but also want to know the reality of it once the procedure is completed. Are there people out there who can truly say that the SPS has really worked for them? Please help us on making our decision easier. Thank you .
caligirl4ever22 is offline   Reply With QuoteReply With Quote
Old 05-17-2015, 04:34 PM #84
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Default

Quote:
Originally Posted by caligirl4ever22 View Post
Hello, I am posting in hopes that my husband and I can get more testimonials regarding the spinal cord stimulator. My husband has been on the trial for almost a week (coming off on Tuesday) and so far he seems to like the effect it has on him. I am just somewhat worried about having the implanted SPS permanently. I want to think positive but also want to know the reality of it once the procedure is completed. Are there people out there who can truly say that the SPS has really worked for them? Please help us on making our decision easier. Thank you .
Hi Caligirl...
Can we start with this: What exactly would you say your concerns are? From your message you have a lot of questions perhaps turmoil surrounding this so let's deal with that and see if we can help both of you.

For the record I've had my SCS now for 2.5 years...and love it!

__________________
YEEEE-HAW!!!
Android-Andy

.
DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (07-18-2015)
Old 05-17-2015, 05:52 PM #85
EnglishDave's Avatar
EnglishDave EnglishDave is offline
Magnate
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
EnglishDave EnglishDave is offline
Magnate
EnglishDave's Avatar
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
Cool Smirk

Hi Caligirl,

While you are making the list of concerns Andy suggests you draw up, I would advise you to read through a few of the Threads here about Member's personal Journeys from Implant to Success or Failure.

You will learn a great deal from their experiences - as they unfolded.

Dave.
__________________
You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

The Sage - Emerson, Lake & Palmer.
EnglishDave is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (07-18-2015)
Old 07-15-2015, 10:03 PM #86
jeffntate's Avatar
jeffntate jeffntate is offline
Junior Member
 
Join Date: Sep 2013
Location: South East US
Posts: 38
10 yr Member
jeffntate jeffntate is offline
Junior Member
jeffntate's Avatar
 
Join Date: Sep 2013
Location: South East US
Posts: 38
10 yr Member
Default Prialt - anyone know this medicine

Anyone know much about Prialt, a medicine for a pain pump?
jeffntate is offline   Reply With QuoteReply With Quote
Old 11-03-2015, 10:13 AM #87
joeyphoenix21 joeyphoenix21 is offline
Junior Member
 
Join Date: Nov 2015
Posts: 10
8 yr Member
joeyphoenix21 joeyphoenix21 is offline
Junior Member
 
Join Date: Nov 2015
Posts: 10
8 yr Member
Default

Hi there

Not sure if I sent the quick message right, I'm brand new here. If you get both messages and could reply to this one that way I will get notified. Sorry!!

Anyway, if you do get a chance I would love to hear how you are doing with your scs. I also have nerve damage in my legs causing burning pain and would love to ask you a few questions.

All the best,

Joe

Quote:
Originally Posted by Rrae View Post
Oh Mary!
You have inspired many, let me be the first to say!
I too have horses and am so grateful to have met you as you were getting this life-changing experience. I prayed and prayed that the pump would be a success, so you can ride again.
Thank you for sharing your experience!!

I have done the trial SCS and will be getting the permanent put in on Feb 24th. I knew as soon as they turned the unit on while in the O.R. that it was gonna work for me. I have nerve damage to both legs and the 'tingling' covered over the burning pain I've been dealing with for upwards of 5 yrs.

I asked the Doc about the pain pump and he flat-out refuses to do them. Why? Because of the 'commitment' ! He actually said and I quote "Nope, because then you'd have to marry me" ! What a guy.
He's pretty arrogant. If it weren't for the fact that he's so good at what he does, then I'd definately be looking elsewhere.
I'm up against the wall with this, so I will submit to it and pray for the best.

I'm anxious to hear of other's testimonies, good or bad. I feel very strongly that people need to hear both sides of these. It's a very invasive and expensive procedure and alot of these docs (mine) seem to think they are a dime-a-dozen. It is a hard decision to make, but Like Mary says, we just want our lives back. !
That isn't too much to ask now IS it!

Rae
joeyphoenix21 is offline   Reply With QuoteReply With Quote
Old 12-27-2015, 05:08 PM #88
kservello kservello is offline
Junior Member
 
Join Date: Dec 2015
Location: Michigan
Posts: 15
8 yr Member
kservello kservello is offline
Junior Member
 
Join Date: Dec 2015
Location: Michigan
Posts: 15
8 yr Member
Confused Scs

Quote:
Originally Posted by keep smilin View Post
note than mine!!! I have the SCS..in since 9/08... Trial went fine..believed I was a candidate..permentant implant put in...not able to with stand the vibration of it..causes much pain..can not wait to turn it off.... and it caused spread of my RSD.... Leaving it in in order to help with good leg, it's RSD affected now too... but all in all..I was never given a choice... pump or SCS... leaves one with a sore back.. hip pocket and some limitations... I won't be bungie jumping, Mary.... sorry.. and SCS rep's are not to be found now!!! What the heck...

Good rest everyone and thanks for listening to my woes....

KS
Hello, my name is Kim. I just joined this forum. I had my SCS implanted Aug. 2014. I agree that the trial one did more in terms of pain relief than did the permanent. I find a small amount of relief from this device. My problem now is that the RSD has spread to my Right foot (original point of origin in Left/dominant hand) and now may also be affecting my tailbone. I am unsure what to do now. I really don't want to go through the surgery and healing again for a small amount of relief but at the same time I need some sort of relief. My pain doctor has said there is really nothing else he can do other than install a pain pump. If you have any advise for me I would really appreciate it. I just feel alone in all of this and have no idea where to turn. Thanks. Kim
kservello is offline   Reply With QuoteReply With Quote
Old 07-25-2017, 09:51 PM #89
Sadie77 Sadie77 is offline
Newly Joined
 
Join Date: Jul 2017
Posts: 1
5 yr Member
Sadie77 Sadie77 is offline
Newly Joined
 
Join Date: Jul 2017
Posts: 1
5 yr Member
Default SCS problem

I had my permanent SCS implanted about 3 months ago for a pelvic nerve entrapment. Although it works for pain it is causing some sort of interference with my body. From the start I've noticed a decrease in urine output and large amount of abdominal edema when the stim is on. This is my third time turning off my stim, each time having the reversal of symptoms. I've been off for 1.5 weeks now and have resumed normal urination and bloat is down. Has anyone else had this problem? My Dr has not done a SCS implant for this nerve before and doesn't know why my SCS is doing this.
Thank you for any help
Sadie77 is offline   Reply With QuoteReply With Quote
Old 10-16-2018, 04:55 AM #90
MT2237's Avatar
MT2237 MT2237 is offline
Newly Joined
 
Join Date: Jul 2016
Location: Omaha, NE
Posts: 1
5 yr Member
MT2237 MT2237 is offline
Newly Joined
MT2237's Avatar
 
Join Date: Jul 2016
Location: Omaha, NE
Posts: 1
5 yr Member
Default SCS Complications

My wife had the SCS Burst rechargeable for about a year. It worked okay in the beginning but not as well as her initial ketamine treatments but that doctor retired so this was the only route available with the doctors here. After about 10 months, her CRPS leg started going out on her and she noticed the stimulator was not as effective. 12 months in, her battery overheated (much like a cell phone battery) and burned her from the inside. Since then, she has been having worsening bowel issues and cannot pass stool on her own. The battery was removed and replaced the the SCS non-rechargeable but was only turned on for a short time. The battery is a lot bigger and seems to be making the bowel issues even worse than before. We found a different doctor who will go back to the ketamine treatments that had originally worked for her. She will be having the current battery taken out.
MT2237 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SCS vs. pain pump msdilbert2 SCS & Pain Pumps 27 11-06-2010 12:06 PM
getting pain pump and maybe a new job lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 4 01-17-2010 01:01 AM
It official, ;pain pump here we come lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 4 11-10-2009 02:52 AM
Pain pump frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 3 09-27-2007 03:23 PM
pain pump AJSG Reflex Sympathetic Dystrophy (RSD and CRPS) 12 03-13-2007 12:12 PM


All times are GMT -5. The time now is 03:30 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.