Oh Mary!
You have inspired many, let me be the first to say!
I too have horses and am so grateful to have met you as you were getting this life-changing experience. I prayed and prayed that the pump would be a success, so you can ride again.
Thank you for sharing your experience!!

I have done the trial SCS and will be getting the permanent put in on Feb 24th. I knew as soon as they turned the unit on while in the O.R. that it was gonna work for me. I have nerve damage to both legs and the 'tingling' covered over the burning pain I've been dealing with for upwards of 5 yrs.

I asked the Doc about the pain pump and he flat-out refuses to do them. Why? Because of the 'commitment' ! He actually said and I quote "Nope, because then you'd have to marry me" ! What a guy.
He's pretty arrogant. If it weren't for the fact that he's so good at what he does, then I'd definately be looking elsewhere.
I'm up against the wall with this, so I will submit to it and pray for the best.

I'm anxious to hear of other's testimonies, good or bad. I feel very strongly that people need to hear both sides of these. It's a very invasive and expensive procedure and alot of these docs (mine) seem to think they are a dime-a-dozen. It is a hard decision to make, but Like Mary says, we just want our lives back. !
That isn't too much to ask now IS it!

Rae

Hi! I have had my SCS for almost a year. It works well for the pain in my foot and leg. Although it does that I am now feeling lots of pain in my back around all three surgical sites. I had the battery moved because it was not comfortable in my mid backon the right side. It is now above my waist line on same side, but know it sticks out worse and tons more pain than the first site. I have an appointment the 24th. to discuss the possible moving or removing or what ever the doctor thinks. Will see and let u know the status of it.

Thank you for jumpin on board !
I'm sorry you are dealing with this pain at your incision sites.
This is a big concern to me as I will be getting mine implanted on the 24th (same day as your appt) and I have heard several others stating the same thing.

PLEASE keep us updated ! You outta start a whole new thread on this issue ! I'm anxious to see what your doc has to say about this.
Well, anyway, I will keep you in my thoughts and prayers and hope something will improve so you can continue to get the pain relief from the SCS.

Truly Caring
Rae

I will be watching in the future, Feb 24 date, to see how well you do. I will take all my good, safe and lucky vibes and send them your way. ......
I don't want what happened to me happen to you.

Sending my hugs for the future.............DAWN

You are so great to chat with!
Just wanted to let you know that the post you responded to is from a few years back. I had my implant in Feb of 2010. I see how tricky that must've looked since the 24th of Feb is right around the corner!

I'm doing great with my unit! It covers the horrible burning neuropathy/RSD in both legs by about 70%. I still take pain meds for breakthru pain. I'm just so very sorry that you had a bad experience with yours . You deserve the best possible pain management out there and I hope your doctors are working with you to find other means of pain control.

Thanks for the visitor message! And thanks for accepting my friend request!

Talk soon!
Rae

Geepers Rae, I just found this post by you. I feel like an idiot........I need to look at the dates on the post........glad you are NOT having surgery this week?
Dawn G

Cut yourself some slack, girl! We ALL do that! You are not an idiot .
I'm glad I'm not having surgery either!!

My SCS failed immediately. I have been in agony since the implant and had it removed 45 days later. I will have problems for the rest of my life now in addition to my neuropathic pain which the SCS was supposed to help.
Having the stim was the worse decision I ever made. Had the docs told me there was a chance of permanent damage to my spinal cord, I never would have done it.

Knowing disclosures as I do regarding medical procedures there must have been some disclosure to you regarding the risks involved by the principal surgeon, the anesthesiologist, the surgical facility in which the procedure was performed..... In the very least the psychological profiling which would have been mandated prior to the procedure would have been filled with questions determined to ferret your potential for realization of risks inherent with the procedure, its potential outcomes, your expectations.

Gently realizing you are, as reported, living life with intractable and horrible pain compounded by injury it is so very unlikely you could have been admitted to the surgical suite as the patient of the hour had you not signed off to statement after statement through which you were informed of possible outcomes. This I have lived so very many times as a patient, the language of the dire consequence potential risks is very nearly burned into my mind's eye.

Things sometimes turn out very much for the bad affecting us. I, for instance, bear permanent nerve damage which will prevent me from doing a good many things I used to know as taken for granted. For you, I so very much hope somehow, in some way, at some time, a means to resolve your situation will become apparent and doable.

I care

Hi Mark........I know of the risks for any surgery that you sign off for. What happened to me was atypical and related only to the SCS. The docs have no idea what happened or why. ..I went home and vomited for 12 hrs. Unknowingly this displaced my wires, and the unit when turned on was stabbing me on the sides of my chest. I began having shaking chills, then I felt like a furnace.
My hands and feet felt as if they were being smacked on concrete. .........I stopped using it after a week when my neuropathic pain got worse........the tech and I saw the doc, found the wires migrated and he sent me home only using the one good side. ..............but it just got worse every time I turned it on which was only a few more times. ...then I started having problems with weak legs and walking.......................so after 45 days it was removed. .......I am living with those symptoms, which were all from the SCS.................my issues are not the normal risks you take with any surgery........I could understand a stroke or cardiac event.........but not this......the horrible unrelenting muscle spasms are the worst