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-   -   New member seeking advice (https://www.neurotalk.org/scs-and-pain-pumps/117256-seeking-advice.html)

KatTru 04-19-2010 11:11 AM

bpkaper, I understand about your husband "being on the fence" about an SCS. I, too, wasn't looking forward to having another procedure that probably wouldn't help. But my pain spec and phychiatrist told me that if I didn't try I would always wonder if an SCS would've alleviated some of my CRPS pain. I thought it thru, and the pain was bad enough I was getting very badly depressed and felt hope was completely gone. So I told myself I couldn't lose anything since I'd lost hope. I was educated about the SCS and the surgery, saw a video, spoke with a rep from Medtronic and had the implant done. Mine was a success story. The SCS did help and, altho I still have a ton of pain, some days are better because of my decision. I knew that going into surgery it may not work for me. I didn't have hopes of it really working.
I pray for you and your husband, and that he makes the right decision for him and you. Go to the medtronic website, learn all you can, then talk to him. SCS's either work for the patient, or they don't. But not trying is saying there is nothing left. There is always hope as I have learned.

miserable in wyomin 04-19-2010 11:54 PM

dear seaking advise
 
I am a new member to this site, as of this evening. A welcome team member sugested I share with others my story about my scs, and now I cant seam to stop reading and sharing my story. I hope I can bring some comfort to your family in this verry trying and frustrating time. I got rsd from from a spinal surgery 6 years ago. As a single mom it was tough to take the medication to controll the pain. finally after 2 years i was approved for the spinal cord stim (scs). I went in for the trial also scared to death as my sister also has rsd, but the other one than I have. If your husband has ever had them use the tens unit on him at pt, well thats the best explanation of how the scs feels to me. I LOVE my scs, within 2 months I was off all medication, and have been for three years now. While the scs doesnt work for everyone, I would encourage you to at least give the trial a shot. If i can further answer any questions or concerns yall may have I would be happy to do so...:)

Rrae 04-20-2010 09:28 PM

Thank you for the 'Success Stories' !
 
http://dl9.glitter-graphics.net/pub/...c6oez1lkq4.gif

It's SO good to see people come here and take the time to share the 'good' outcomes!! People are coming here every day looking for feedback and alot of the time it seems as tho mostly the negative stories is what gets imprinted on the forum......There ARE success stories as well and they need to be heard!

It is true that the SCS is not for everyone, but if it weren't for reading these success stories, I'm afraid too many people would be absolutely terrified to even TRY it!
So, thank you for sharing! :hug:


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