LOL, we posted at exactly the same time Jackie - ha!

Like you said, the stimulator does a FANTASTIC job of covering the horrible burning neuropathic pain in the legs..... but the back issues are a whole different thing.
I'm so sorry you can't get more relief in your back where you really need it Jackie.....
I find that swimming in our local therapy pool at our Health Improvement Center REALLY helps! It's non-weight bearing and a great way to exercise the muscles in the legs........if I walk alot, it seems to put too much demand on my legs.
Do you like to swim? It's not for everyone, but to me it's wonderful.....especially if the water is nice and warm......
And YES I break the 'rules' and leave my SCS 'ON' while swimming and treading water........I mean REALLY. Why be in pain when getting exercise.....!

I love swimming .. but at the moment it's the getting dressed whilst still damp that is the impossibility.

Oh my goodness Rae that was so weird

Im not a 'water' person really but I have gone to swimming before this, last year some time. I actually paid up front for 10 swims so that I would MAKE myself go but I have 8 left!!!!! so that tells its own story. But you know what, Im going to try it again. At the moment the weather here is miserable. Its been raining since MONDAY so I havent been out as much walking. Although I do have a treadmill in the sun room ahemwhich is rather redundant!!! But Im going to make an effort!!

I know what you mean about walking and the demand on your legs. I also get this awful heavy feeling in my lower back, like Im carrying a whole weight around my waist and this drags me down when Im walking. Hence I have to sit and rest for a while. This is a problem that at the moment the SCS doesnt address. But ......Im hopeful that someday it will ..........

As regards the rulestsk tsk....Im sure the SCS police havent gotten to your area yet. Although I have a confession too.........ahem I use my stim while Im drivingI know I know you can all pick yourselves up off the floor now....but like Rae said what is the point in having it if I cant use it while Im driving. Which can be a real pain for me. So Im hoping to change my car for an automatic REALLY soon

Ok OK!! .......... ........ me too !

So sue me!

I sure don't want to be a 'bad influence'........but I'm just bein truthful.
The 'rule books' actually DO state that we shouldn't drive with our SCS's on....for safety reasons. I guess technically the SCS 'could' surge and cause us to steer into the oncoming traffic.......yikes.
.....well in my defense.....I think I was more of a danger to society before i even HAD the SCS because of my unpredictable mood swings due to being in constant unrelenting PAIN

I think if you know how it feels when it surges and are used to it ... no problem.

Yes true. I will admit I don't drive that often but when info it generally isn't too high.

I also don't want to be a bad influence

wellllll..... If confession is good fot the soul... I too drive with my unit on. My doc is well aware of this just tells me "we don't recommend it", He was adament however, that I not drive a clutch for the first month or so due to potential for twisting
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I bet, in part, the Drs and Reps have an obligation to say this to us to 'cover their rears'......they don't want to be held liable for the SCS devices getting a bad rap if something unfortunate were to happen. It would make for some pretty ugly headlines. Which I can understand. So......'IF' something WERE to happen, they would just be able to say 'We told you so!'.....and the responsibility and blame would fall on us.

Mine usually is kept running at a pretty low level, which in most cases I don't even realize it is ON! Which is good! This means it is doing what it SHOULD be doing....and I don't have to take the higher doses of pain meds, in which case, THAT would have put me at more of a driving risk if you ask me!! .....'driving under the influence' ??

Yes Rae I do imagine it's part of the 'speak' which has to be said for the unit. My doctor and rep also said I 'shouldn't' but...........

Well as Pooh said she was told not to use the clutch now thats my biggest problem changing gear. BUT. That's all about to end because yesterday I went and bought myself a beautiful red Toyota Rav4 jeep which is automatic!!!!YAY!!! So really looking forward to getting out more. I probably will stil keep my stim on while driving. It does the job for me

Ooh Jackie .. that sounds ideal. I have a little old micra, manual and with no power steering, so each drive is a killer. Can't afford another car though so it's this or nothing.

I find reversing really hard as any kind of twisting anhow, gives me pain . . turning the wheel just does me in for the next couple of days; same as the clutch .. but I', still so glad I can do SOME driving.