Originally Posted by chiron (Post 676711)

Hi all, i have being redirected to this topic and have read all your interesting posts. I have a friend who went through all the presurgery procedures before the implantation of a SCS here in Ireland only to find out that the the health insurance co. wont cover the cost of the SSC device itself [only the implantation].Here in Ireland, SCS cost varies between $20,000 and $40,000.I would like to know the cost in America.It is for the L4 and leg area. many thanks.

Originally Posted by hugg724 (Post 676921)

Well my psych evaluation is complete. I was in and out of the office in 45 minutes. He was really a nice guy. He did say I am depressed. DUH, YA THINK? lol I laughed and said if you have chronic pain that affects every aspect of your life and it doesn't depress you, I would bow down to that person if I could bend lol He told me if I was still feeling depressed after I recovered from the implant procedure, please come see him. Sure, I will get right on that as soon as he gets a polka dotted elephant for me to talk to!

Anyway, he is going to make sure the report/approval is in my pain docs hand before my appt next Tuesday. I think from there, they send that in to the insurance company for pre-approval? The trial isn't scheduled until they get the approval, right? Or is all of this done for the permanent if the trial works?

Originally Posted by Rrae (Post 677165)

:rolleyes: I love your outlook.......(i thought the polka dot elephant was supposed to be included with our care-package) :)

Yeah, i think it's all protocol for the permanent implant.....
The psyche eval, as you know, is mainly to rule out a couple of things....
such as a somatoform disorder? or to make sure you aren't a dependent drug-crazed junkie expecting the SCS to solve all of the answers to the universe. ....... Mine was doing fine, until 'they' decided PLUTO is no longer an official planet! :eek: Now my programs are all messed up!! :rolleyes:.....
....and i won't EVEN make mention of what this has done to 'URANUS' ?!
omg, it's obvious i've overdone the coffey bit again this morning.

One piece of red tape at a time...... :hug:

Originally Posted by Rrae (Post 677165)

:rolleyes: I love your outlook.......(i thought the polka dot elephant was supposed to be included with our care-package) :)

Yeah, i think it's all protocol for the permanent implant.....
The psyche eval, as you know, is mainly to rule out a couple of things....
such as a somatoform disorder? or to make sure you aren't a dependent drug-crazed junkie expecting the SCS to solve all of the answers to the universe. ....... Mine was doing fine, until 'they' decided PLUTO is no longer an official planet! :eek: Now my programs are all messed up!! :rolleyes:.....
....and i won't EVEN make mention of what this has done to 'URANUS' ?!
omg, it's obvious i've overdone the coffey bit again this morning.

One piece of red tape at a time...... :hug:

Originally Posted by Mark56 (Post 675513)

Hi Jami! I am thrilled you chanced to come here and post such worthwhile questions regarding one of the more radical surgeries offered for treatment of chronic pain available in medicine. This thing called SCS for those of us whose issues are spinal.... spinal cord stimulation.

Being a veterean of the operating table so much so that it is almost nauseating to contemplate, I was brought into awareness of SCS a couple years ago. I looked briefly at it, read the risks of surgery, KNEW I did not want another surgery, and went UH UH, this is NOT for Mark. No way, no how, no no no no NO!! Sure, friends had told me of the surgery and its effect on family members or other friends they knew. I was closed. NOPE, not gonna listen. I was afraid to have another in my list of spinal adventures. My fear..... it was a heightened fear of the possibility of something going wrong, you know the fine print part, no not the death part, the Oops, you are now paraplegic part. I felt at risk. I felt harmed sort of by the system that was supposed to have helped alleviate the issues with which I struggled. I was frightened.:eek:

Fast forward to January of this year. Finally, having suffered chronic nerve pain for over half a decade and frankly being sick and tired of the life of side effects with morphine and such, I actually listened with favor when my wife, Cleo, said "Here, read this about spinal cord stimulation. It might help." The article was about the ANS EON Mini unit. I read the article. Became enthralled. Read more, researched ALL I could possibly find. We had an appointment scheduled with my physiatrist anyway, so we went in article in hand, and asked what he thought. He said something to the effect "You are the perfect patient among all of my patients for whom this is meant." I was hooked. We watched the video. I spoke with and emailed with patient amabassadors who had the unit. We prayed about it. The answer was clear..... live with pain as I had or proceed. We said yes! :Dancing-Chilli::Dancing-Chilli: [Reminds me, I still have to learn the Salsa for Cleo]

The Trial came 13 May. Two very tiny POKES if you will, by about the largest gauge needle known, to insert the leads, no incisions really, the leads were sutured to better assure they stay put, and I was sent home with wires taped securely to my back and a generator strapped to my waist with a velcro enclosure. I was IN HEAVEN. I sobbed, not because I hurt, rather, because I felt no pain, NO PAIN. My wife asked how I felt and I cried due to the joy. The picture the fumpy Ken doll with grey hair and tears running down its cheeks. JOY AT FEELING NO PAIN! It seemed a miracle.:yahoo:

Sure, I could not shower for the week of Trial. The hair got rank. Sponge bathing was OK for the other necessaries. Lifiting my hands above the head, a no no. You see, the wires were just kind of laying there in the dural space next to the spinal cord and the only thing holding them in place were the sutures at the exit through my skin. So I behaved. Wanted that benefit as best I could get it, and it was soothing, glorious, wonderful, a Gift from GOD as though He had placed those wires in place. That week charted out at 70% to 100% pain relief for me in my situation; not necessarily what everyone gets, but for me, a keeper. I wanted the real McCoy. Oh, how I hated it on 20 May at the end of trial when they removed the wires, the unit, that lifeline which had been thrown to me. But gone it was, pending insurance approval of the permanent implant.:thud:

So, here I was, a patient fully read up on the ANS, who had actually recieved a Boston Scientific Trial [you can read about that in my thread on ANS EON MINI], you know when you are there in the prep area waiting for the Trial surgery and the rep comes in and says, "Hi, I am So A. So from Boston Scientific!" I did a double take! I told him he must be in the wrong room, wrong patient, I was supposed to see the ANS guy. NOPE. Some flub up... in the military they refer to it as a SNAFU. :shocked: Oh well, after answering 30 minutes of questions, we proceeded with the Boston Scientific unit. Best decision we were led to make in our lives. Wondrous.

I HATED THE WAIT FOR THE PERMANENT. OK, that is out. Now you know. Hardest wait you will make if the Trial goes very well. It passes. We ALL help you through that part. Really!:circlelove::grouphug: So many here sent messages of encouragement during that time, a blessing that humbles.

29 June, implant of the permanent. A four and a half to five inch incision at about T8 for me to allow for the laminectomy to enable insertion of the paddles. A smaller incision at the right hip on me to make for the pocket to receive the generator. The most painful part is that channel they make through the tissue to bring the wires connecting all of the works. But, you know what? I know, I KNOW it was well worth the pain, not nearly as painful as my discectomy/laminectomy/fusion, and more rapidly recovered. Here we are two weeks post op, and I have withdrawn from the post op pain meds prescribed IN ADDITION TO MY CHRONIC PAIN MEDS. There is some discomfort yet at the incision sites, but it is passing and not requiring the percocet chaser to my morphine chronic pain med. Showering was allowed two days post op.

Last Friday, we calibrated my generator to me and from that moment it has run 24 hours a day. Via the remote, I set the little guy at different levels or programs depending on how I feel, or when I go to bed, just turn it down low. It works!!!!!!!!!!!!!!!! :yahoo:

Five days without ANY NERVE PAIN. NONE! Went out into the middle of our street last evening and shouted at the top of my voice Praise GOD, I FEEL GREAT! I feel I owe it all to Him. The very develpment of this wondrous technology. I am humbled.

Today, we went to my physiatrist for a follow up post op. Told him the above. He was thrilled beyond measure!! Now we are working to wean me off of the pain management meds. I have a schedule. With God's strength, I am committed. My wife and I have so much hope for a life restored in large measure due to this miracle invention.

I understand everyone is different. Results will vary. But, for me this brings promise of a miracle worked in a life that was whiling away from one med dose to the next, much sleeping in between. That is not life, it is subsistence. As for me, I want life.

Now that I have probably exceeded the limit of anyone's tolerance or the posting size on NT, please let me assure you that you cannot ask too many questions. Any of us is willing to chime in to the best of our ability.

Time for me to take a nap,
Doctor's orders you know,
Don't overdo post op,
Praying for you in your approach to Trial!!:smileypray:
Mark56 PJ:):hug:

Originally Posted by charles jenkins (Post 680119)

:confused: i have read a lot about SCS I am in trial now I am so unsure the trail is very postive, but I am concern about permement installation because of all the negative coments, have not seen a lot of postive comnent about SCS thanks for the leap of faith still wondering if I am gonna do it