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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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07-22-2010, 05:18 PM | #11 | |||
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Grand Magnate
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Hi Tara-
Afternoon here in Colorado, and I just caught up on your posts. It is thrilling and heart warming to read the determination within your spirit, and to learn you are a musician too boot!! Allright! Music is a big thing in our family. Just last weekend when we went upcountry by Pikes Peak, my wife, Cleo, marched in the Gold Rush Days parade enjoying her saxophone. Such fun. Maybe next year I can join with my trombone. Who knows? You gotta just hand it to some folks who seem to look with jaundiced eyes at those of us who must, at least for now, use helps like canes, walkers, wheelchairs..... On the other hand, I have met a good deal many who are "out of the way" helpful. It seems to come in both flavors, yes? We carry my wheelchair around in the back of the car for those walks a bit too far.... the walks when the cane just won't do. Even so, look at the use of the walker as a help "for now" knowing you are protecting your health until remedies can be tried to put you back on track. PLUS, you can probably take a stroll in the Store of Rae, a fictional gallery of humor, smilies, and whoopies with which any of us can adorn our walking aids!! Sure, putting a smiley face balloon or two on your walker may set you apart as a person of indomitable personal strength on your campus. Can't hurt. Your spirit inspires Tara! Just look around you on the forum. We are all in awe of your strides with stim, the struggles, the work to overcome, all with a heart born to teach! I, for one, feel grateful you have shared your issues with us, for there is much to learn as a stim user new to the Bionic Butt club as my other friends call us. Found myself wondering out loud in quite a lightning storm the other day whether Bionic Butts are more at risk of lightning strike than so called "normal" people. Prayin for you up here at high altitude, Mark56 PJ |
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07-26-2010, 04:49 PM | #12 | |||
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take care, tara |
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07-26-2010, 07:16 PM | #13 | |||
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Grand Magnate
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Yea Tara!! Way to go! Yep, my wife, Cleo, is also a Decorative Artist, currently working on birdhouses and birdfeeders for a gallery, so I can truly Connect with you on your husband's talent AND his willingness to DOLL UP your walker. So good!! Yep, I have had people ask me, "um..... well..... uh..... does it make you feel conspicuous or somehow embarassed to use the cane or walker?" Wow, what a question! And this from folks who do know me, and know me well. Answer, NO, I can't feel the earth so well anymore, and need the cane for proprioception or to lean on it if I tire or the wheelchair because I just can't go far enough. Embarassed? I don't think so.
Now as for singing, yep, I have sung for most of my life, starting out in children's choirs, working into the specialty performance groups in high school and college, loving it, and most especially finding peace in singing praises in church [unless those tears that come to my eyes interfere as the spirit moves]. So, I am glad you found your voice to sing in front of the students and adults as you did to a good end in the mark you received for your teaching demo. Here's a healthy measure of hope and prayer that your tests and such work out to the good since you have had to borrow your Mom's computer. Hoping and praying as well that you can make it through these difficult times with pain as you await the 9 Aug appt with your neurologist. Further that the workup which will be done will help to eliminate issues and zero in on whatever it is that is spiking your pain! We are so glad you found us here as well! You bring much to us; plus, we are here just as you remarked.... for one another. All the best, Mark56 |
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07-28-2010, 12:19 PM | #14 | |||
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07-28-2010, 12:42 PM | #15 | |||
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Grand Magnate
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Well Hi Tara! So glad your walker project turned out great. That is cool, and it strengthens a marriage for the partners to pull together on such a project. What a blessing, huh? I know from personal exp since my wife and I have almost crossed the 37 year mark.... just next month. Reckon we oughta have a party. Yep!
So 29 and a walker.... well, you know when it enables mobility, a walker is cool. Especially when artistically modified. I'll bet a good many people would go in for such a device. Being 56 and a cane and wheelchair user has been my thing, as you know. Interesting how some folks look at a user as, well, someone less human. Especially in airports. Disdain on their faces. I know, I have been there so many times. But you know, the coach of whom I have written was a former football star and is now wheelchair bound. My uncle was a peach and apple orchardist and spent the last 40 plus years of his life wheelchair bound because of a thief's bullets. Me, well, I am a user because of someone who was too hurried, not paying enough attention on a freeway.... the other two guys who ran into me. So, having gone from being an athlete at 6'2" and over 250 to a hobbled cane using wheelchair driving fella isn't great fun, but, it brings spirit to my heart. You too, if you want some. You see, you are still so very much at the beginning of your life, that you can take and grow that spirit to show others the person inside is every bit the blessing to others despite some difficulties. It can happen. It's working with me... Pulling for you here in Colorado, Mark56 Last edited by Mark56; 07-28-2010 at 09:34 PM. |
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07-28-2010, 09:15 PM | #16 | |||
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Grand Magnate
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Mark,
you leave me speechless half the time! Your words are like true medicine for the soul! .......you should see me attempting to make it up the stairs with a basket of laundry.......i actually DO use the 'laundry basket' as my 'walker' and take it one step at a time. ! ....I'm still on the lookout for a really cool looking 'walking stick'.....cane.... it'll serve not only to help me along, but i want to be able to use it as a poker to smack certain people with it (like the little ol' ladies do ) |
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07-28-2010, 09:42 PM | #17 | |||
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Grand Magnate
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Oh, and I had a little typo in the last few sentences of my post, so I fixed it. If you are going to swell my head so doggone big, I had better try to get it right, ya know? Raising cane..... Mark56 PJ |
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