NeuroTalk Support Groups - New SCS recipient, want to stay active

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- - New SCS recipient, want to stay active (https://www.neurotalk.org/scs-and-pain-pumps/129922-scs-recipient-stay-active.html)

Quote:

Originally Posted by Mark56 (Post 686392)

Yep, a few righties here! Welcome! May recovery progress with great success. Oh how I look forward to a reunion of the Bionic Butt Club [oh No, the BBC!] in that hometown of yours!! Wait till we gat one planned for across the Pond!

Mark56 PJ:)

Hi again

Thanks a million for the wonderful welcome from everyone. You all sound so upbeat which is terrific, love a bit of fun in the pm:wink:

Mark56 Im actually from Ireland, whereas BBC is an English Channel. We do often get mixed up....but Im Irish and proud of it:winky:

Feeling good today after a somewhat bad night, couldnt sleep as my leg was burning but hey...today is another day....

Must go as my first new Granddaughter is on her way, 6 weeks old today!!!!

Talk later

Jackie

Independence I know

Quote:

Originally Posted by jackiekennedy (Post 686624)

Oh yes, I do know..... and well..... it is just that I am figuring you all receive Rae's favorite airwaves ever much more directly than we.:winky:back atcha!
Mark56:)

Quote:

Originally Posted by Mark56 (Post 686681)

Oh yes, I do know..... and well..... it is just that I am figuring you all receive Rae's favorite airwaves ever much more directly than we.:winky:back atcha!
Mark56:)

Hi again:Wave-Hello:

Hope you are all keeping well this lovely Friday!!! Sun is shining here, now thats a first, although it is officially our SUMMER, the weather often lags behind and forgets!!!! a MAJOR problem!!!! so it can be damp and dismal :rain: :hissyfit: so a bonus to have the sun shining :Excited:

Mark56 I hope that my previous post didnt come across as rude :hug: I apologise if it did:)

Went for a short walk today, which was soooo liberating having been stuck indoors for the past two weeks, except for my hospital visits:eek:

Im still trying to 'tweak' my stimulator. Can I ask is it right that sometimes if I move in a different direction the sensation moves to a different place. At times when Im lying down and I have it the way I want it its great, but then occasionally when I stand and walk it feels 'different' Im sure its fine.......
At the moment Ive 5 programmes but Ive been told that will be increased. Walking is 'weird' to say the least as Ive a lot of sensation in my feet which I would prefer if it wasnt. All teething problems Im sure ;)

Hope you all have a lovely evening

Jackie :grouphug:

Quote:

Originally Posted by Rrae (Post 686411)

Holy COW! :deadhorsebeat:

Thanks aLOT Mark, you made my SCS SURGE when you said 'BBC' because just 2 days ago when i got home from work, i turned my 'DishTV' on only to discover a channel straight from the BBC!!!!!
I LOVE BRITISH COMMEDY!!!
My son walked in and i looked at him as tho I'd seen God himself. He said, "wha's wrong mom".......I go "My life has changed forEVER! I have found a BBC channel!!"

Jackie!
It's SO good to have a fellow LEFTY ButtBuzzer!! By golly, we've got to show them 'righties' !!! :cool:
Your sense of humor will bring you far in this forum, not to mention life in general. Sometimes we just simply have to laugh at ourselves.
But the flip side of the coin is......(and I, personally, try to be careful of this) some folks are just in so much pain and frustration that 'humor' doesn't quite fit the bill....and that is completely understandable.

I hope you are finding your way around the forum ok.....you'll get the 'shoe to fit' in no time, and if you're like some of us, you'll begin to run to this place as a sanctitude of fulfillment.....sorta like a good 'drug' :) as in medication that is.....:p

If you have trouble keeping track of where you've posted.....you can just go to the original thread you made here in the SCS forum, because it has 'you' as the threadstarter and it can be kinda like your very own 'journal' and we'll all jump aboard your thread with much support.
Good Lord, look at Mark56! His thread has reached over 300 posts and nearing 9,000 views!!!
He's a great guy and you'll find that everyone here is just FULL of care and support, even in the midst of their own battles along the way.

You'll love this place!
Consider yourself officially 'bonded' :circlelove:

Rae
'Lefty' :)

Hi Rae :Wave-Hello:

Apologies I didnt get to answer your post yesterday I had to dash as my granddaughter arrived with her mum. She is just six weeks old and a joy to have in our family. Unfortunately, Ive to be careful when lifting her so you can imagine its HARD to keep away:winky:

This is such a great place. You know SCS is not that well known over here in Ireland and Ive researched a lot before I had it implanted and do you think I could find any forums in Ireland, nope. So its great to be part of such a wonderful bunch of people who have all gone through the same experiences as me. At least if I need to have a moan or just want to chat about how I feel I now know where to go:grouphug:

Now I know that when Im speaking bout my SCS that YOU all know what Im feeling and what Im talking about . Its hard to describe how that feels. My family look :confused: when I explain the sensations :winky:

Tell me where are you from and in terms of time how many hours 'behind' are you from Ireland..........

Look forward to lots of chatting with you all:hug:

Jackie:circleoflove:

No 'apologies' necessary here my friend!

Nooooo, not t'all. !
We just kinda 'wing it' along, you know?

And HEY! ConGRATS to you! The granddaughter how precious!!
This gives us yet ANOTHER thing in common! I will be a first-time "Nana" come late November! I am absolutely thrilled!
Only difference is he's a HE, not a SHE.......but I'm sure we'll still have much to chatter about having this in common! :)

Yes, the time difference..... hmmm.
I'm trying to figure this out. Right now as I post it is Friday August 20 at 7 o'clock pm........so what time does that make it for you? Are you technically a day ahead of us orrrr.....? gosh, how does that work?? :confused:
I KNEW I shoulda paid more attention in Geography! :o
I am (Literally!) smack DAB in the middle of the US of A ! Literally!

One of our dear friends here is from Australia! She is so precious! AND devoted to this forum! She actually makes herself available to anyone here who may have trouble sleeping and just 'needs to talk'. She is a gem! Her name is Koalla, she is one of the team moderators.

This place was made just for you Jackie! I can see this plain as day!
And YOU no doubt will be a complete blessing to us! :hug:

All the mystery is gone

Oh Rae- Cool about the forthcoming birth, and a grandson! The mystery is GONE!! I remember when our twins were born, that ultrasound gadget was still an EXPENSIVE and rarely used except, when they wanted to confirm we had twins and not a child and huge cancerous tumor running ragged in there. We learned gender when out they came a week after we knew they were twins. HaH!!!!

Now Jackie, sniff sniff.......... naw, I am not offended, just trying to communicate effectively with you. I know Rae likes that comedy from across the Irish Sea, only thought the comedic line of the Bionic Butt Club would hit home.

Oh, and Rae, I think, but don't hold me to it, that Jackie is somewhere around 7 hours ahead of us timewise [are you Mountain time zone in your part of that Kansan wilderness Rae?]

Rode my bike today....... huff, huff.

More later,
Mark56:)

He said the 'K' word!!!
you know.....SOME people equate people from 'K'...:) to be a wee bit on the "Toto ate the Map",......as in, 'out to lunch'.....as in 'toys in the attic'...

But NOT ME!! http://dl7.glitter-graphics.net/pub/...q4dj20d7by.gif

Noooope, I certainly have NEVER ate a map in all my life! :)

And yes, i read that you were on the bike today! Actually, i was typing you a 'mom-like' rant at the same time you were sharing with us the wonderful monumental day this has been by riding the maiden voyage bike! WOW!
Very inspiring!
I set my alarm to get my flabby AS$ to the therapy pool first thing in the morning!!

.......and i'm assuming u noticed the little hint i threw at you regarding that of horse maintenance ? ehemm. :cool:

Quote:

Originally Posted by Rrae (Post 687197)

Not wanting to be too forward on that point [and your rant was well accepted and noted-did you see my response?] I do know caring for a horse is a major undertaking, not the least of which would be providing room to run, stables and the like. We would have much to do by way of preparation on this end. So now, did you see my pm to you?

Mark56:winky:

I've been so caught up in typing up this SCS forum!
I did NOT notice the little jiggy up yonder in the corner of the screen notifying me of a message! :o hold on.....lemme put the phone down......

It's been four weeks today since my implant. I have been wearing knee braces on both knees for the past ten years and, like a security blanket, I have had a difficult time giving them up. I finally went the entire day without wearing them and I walked quite a bit. I weaned myself off a pretty strong dose of Lyrica, and also Savella, and all pain medications. I am still a bit creeped out by the bulge above my butt, and I find it difficult to touch. But I am becoming less and less aware of it. The mini surges when I change positions have been decreasing day by day. So I assume that means scar tissue is forming. All of a sudden I have stopped feeling so fragile and I am feeling more positive about trying mountain bike riding in four weeks. The real test of the SCS will be after riding, when the knees hurt so much I had to give it up for up to two years at a time. My next checkup is in about three weeks.