Why sure....
 

[QUOTE=Sarah Mae;688168]Kathy,

First of all, can I just say that I LOVE your username? What a good reminder--and one that I so much needed today. I need to push through these hard times and keep smiling. What a blessing you have been already in this one little message--even down to your username! :)

What an interesting thing to happen in the middle of a post! I write in my CaringBridge website almost daily--and I have started writing in a word processing program. Too many times I have accidentally closed the internet browser or gone idle for 2 hours (which is the limit for the site--then your entry goes poof unless you copy and paste it). Thank you for taking the time to come back and respond--that means a lot.

I'm sorry that the SCS has not been a good experience for you. Have you tried anything else, such as a pain pump? Are you getting any sort of relief? That would be tough to go through all of that only to find out that it does more harm than good. I don't respond to pills because of my gastric bypass surgery, so I am praying like crazy that the SCS is the answer for me. I can't get relief any other way. We'll see, I guess. Only time will tell. I definitely know that there is a possibility that it will not work for me, and though I don't like the idea of going through it all, I'm glad they do the trial first.

I hope that it works for me--but your story is a good reminder that it may not. If it doesn't work, I will have to seek out other options, though at this point, it doesn't sound like I have many. I'm curious to find out what you have tried and if anything is working for you.

Is it okay if I pray for you? You seem like such a sweet woman, and I am so thankful already for you! I look forward to getting to know you more! :hug:

Sarah Mae..I would love for you to pray for me..OMG..that would be wonderful..AND you like my used name..?? Well, it comes from my heart in that I trully believe we must hold hope and love in our hearts and begin from there... My favorite to do is share a smile or do something nice, like unexpected when others could use a life..It warms my heart... Great medicine.. simple and free!

Continue to move forward with your trial SCS and stay positive.. things always workout for the best...have faith and keep looking forward..the rest will take care of it's self... As far as myself..no pain pump, still have my SCS implant in my left hip area... but I have had many blocks and pain meds up the wa-zoo (can I say that?)..accupuncture..patches.. on and on..And my PM Dr. has sent me to Dr. S in Philadelpgia..he asked me to have the 5 day 'sleep' for Ketamine but my ins. will not play along with me so I am not even entertaining that thought..so I take each day as it presents itself, medicine free and keep smilin..the best I know how!!

You sound darling..Allow me to help you and please..there are no crazy questions when it comes to RSD!!! Its an ugly animal!!

love, Kathy:hug:

NOW I learn
 

Actually, we used the baby ones for me. Cheaper, I think, but I smelled like....... you got it.:D

Mark56 PJ:)

Sarah Mae..


I would love for you to pray for me..OMG..that would be wonderful..AND you like my used name..?? Well, it comes from my heart in that I trully believe we must hold hope and love in our hearts and begin from there... My favorite to do is share a smile or do something nice, like unexpected when others could use a life..It warms my heart... Great medicine.. simple and free!

Continue to move forward with your trial SCS and stay positive.. things always workout for the best...have faith and keep looking forward..the rest will take care of it's self... As far as myself..no pain pump, still have my SCS implant in my left hip area... but I have had many blocks and pain meds up the wa-zoo (can I say that?)..accupuncture..patches.. on and on..And my PM Dr. has sent me to Dr. S in Philadelpgia..he asked me to have the 5 day 'sleep' for Ketamine but my ins. will not play along with me so I am not even entertaining that thought..so I take each day as it presents itself, medicine free and keep smilin..the best I know how!!

You sound darling..Allow me to help you and please..there are no crazy questions when it comes to RSD!!! Its an ugly animal!!

love, Kathy

You guys are all so wonderful. I have read all the replies that I haven't responded to (this last round), just haven't felt up to writing much. Currently working on an entry for my CaringBridge website that I started last night--but I got so incredibly sick that I had to cut it short and head to bed.

But know that I am thankful for each and every reply, every bit of advice, every prayer, every minute you spend replying and talking to me, all the support, etc! I'm grateful for this website and all the wonderful people here. And I am indeed praying for each of you (whether you like it or not! haha... no, really though, if you don't believe/like to have others pray for you, let me know and I won't... but those of you who do believe in the power of prayer--I have you covered!). Thanks for everything--you guys truly are a blessing from God! :grouphug:

I'll take em...
 

..your prayers... AND heres a hug for you in return.:hug:

Love Kathy

Oh how I missed it
 

Kathy- I missed the full import of your earlier post on this thread regarding full body RSD, and I, too, so like your handle- keep smilin! You see, my sis, Terri, is full body RSD, double amputee after a knee surgery, much like your situation. I posted in the RSD forum quite a while back on her behalf and for the proposition that NO MATTER WHAT SHE IS DETERMINED TO KEEP SMILIN. We hope to be able to go visit her and Mom, who live across the street from one another soon, as I get farther away from the post surgery thing myself. You would like Terri. She is cool, doing wheelies on her electric wheelchair [too much morphine I am sure], but the morphine just doesn't seem to help her anymore.

So, here is my thing...... prayer is my life connection with the Father and pray already for Sarah, I will add you in as well. You, Sarah, Terri, and a host of others come into my prayers as we each have that opportunity to lift one another up. Such a cool means of reaching out and it is so helpful!

You are super in your outreach to Sarah!

Sarah- Here is a Happy Monday greeting for you! I sure enjoyed our chat the other nite! We will do it again, right?

Prayin' [One of my favorite songs is Somebody's Prayin]
Mark56:)

Absolutely we will do it again!

I'm waiting for the results of my bone scan. We did it to find out if there was a possibility of RSD because of the pooling in my legs turning them dark purple... but now (as I said in my post on the PN forum), I think I figured out why I have the pooling.. but I didn't find that out until my bone scan was already done. I have no idea how long it takes to get those results... but when I get them, I can schedule another appointment with my pain management doctor and move forward.

Thank you..Mark and Sarah
 

I so appreciate you both thinking of me.... I am sorry Mark, for your dear sister, Terri to be battling our mysterious monster called RSD.. I know we need to keep it at bay..however possible..The simplest is be thoughtful and take care of eachother..The other is to pray for eachother in order to greet the next day..and Keep Smilin....its so important and it warms my heart!!!

Love, Kathy:grouphug: