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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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09-10-2010, 12:09 PM | #1 | |||
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After a year of fighting with my current stim doctor to help me, I finally have help! I love my new pain doctor and I found out that he trained her on stimulators which is funny. He was so nice and I even started crying (sorry but things were rough and pain was bad) but he was very nice and gave me some hope and options I had to get Xrays but he said I am definitely going to have surgery to get the battery fixed or replaced and also fix the pocket that is in because they think I moved it deeper in when I fell. And depending on my X-rays he will fix my leads too. We also talked about doing the paddles and he said that after this surgery if I need another revision he will get me paddles right away. He wants to put it off right now though because it is way more involved and who knows his surgery might actually fix things! So, the plan is I am seeing my stim rep next week and then 2 weeks from today I have an appt with my pain doctor and that is when we find out when my surgery will be! I am so thankful right now and so happy because I was really depressed over this. Oh yeah, he also increased my neurontin because he said she had me on a very low dose so that is good.
I know this if offtopic but-I am still worried about that situation I was talking about (it is related to domestic violence) and I am trying to help her out of it while going through all this pain stuff so it kind of overwhelmed me! But I am the type of person that will protect my family especially my mom know matter what and I just found out that stuff yesterday and I was so upset, I still am upset but I am trying to help her and keep her safe and feeling better right now. This whole situation is really hard for me because I went through it and she has before this too so it makes me very sad, angry, and upset. I am really trying to be strong for her! Anyway, just please pray for her and this whole situation because I just want her to be safe and okay! I will let you all know how things are going, but I probably won't be around too much since I have to try to do all my school work I can before the surgery and also I am focusing a lot of my time and attention in helping my mom and my family! I do still think about all of you though and my new family on here and you are always in my thoughts and prayers! I am so thankful to have found this place because it really motivated and supported me to get through all this pain and keep trying to get better care and better doctors! Take care BIG'sTara |
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09-10-2010, 01:42 PM | #2 | ||
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Absolutely delighted for you to hear this great news about your forthcoming operation. This is just great news. After all the hassle you had with all these situations and so many doctors to contend, its all falling into place. How brilliant is that. You will be a NEW woman. At least this is the first step in the right direction. Im really really really delighted for you. So our prayers are working somewhat As regards the situation with your family, I am so sorry to hear that. I will of course keep them all in my prayers and I hope that it will come to an end very soon and all will be safe and well. You are a very strong person I feel, I only 'know' you a couple of weeks and Im just overwhelmed how strong you are. Your incredible. So keep up this positivity and strength and remember there IS light at the end of this dark tunnel. I was always told to BELIEVE! Take care and look after yourself too, while you are caring for you mom and family ok Jackie |
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09-10-2010, 06:59 PM | #3 | |||
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Grand Magnate
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Hi Tara- I just knew you had to have relief, and am thrilled your appt went so very well. Surgery yes, but if things get to working well again, then that would be just wonderful.
Praying for you and for the violence issue you mentioned and ALL who are involved. Mark56 Quote:
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09-12-2010, 06:37 PM | #4 | |||
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Even though the doctor appointment went really great and I am finally going to get to have surgery, things are rough. I caught up on three classes worth of homework and that took a lot out of me. But with the situation with my mom I am having a hard time and have not been sleeping much at all. I hate these types of situations where you can't fix them and you feel so powerless. I did a good job though of being strong and not crying though and only cried when I was at home. My heart just feels like it hurts right now ! And on top of all that I still cannot get my stim charged since the last 4 days or maybe 5 I don't remember....and even though I am definitely having problems with it the doctor said it should be able to charge even though it would take awhile. I hate when my stim does not work because it affects everything and I of course ran out of pain meds (they didnt give me very many at all and I even cut them in half!) so back to being in horrible pain again I hope my surgery comes very very soon because this is so miserable! I am not sure if I said this in my last update but the doctor will be fixing my "pocket" that holds the stim in since he thinks it is way too deep. The next two weeks are going to go by so slowly....but its okay I am still going to keep focused that I am going to be better and will have a brand new stim too Hope you all have a great week! Take care'sTara
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09-12-2010, 08:50 PM | #5 | |||
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Grand Magnate
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There you are - letting your true colours shine
despite these waves of tribulation you face. Keeping focused on the 'prize'....... This takes true strength, of which you have shown time and time again. So very inspiring, Tara Always Praying Rae |
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09-12-2010, 11:16 PM | #6 | |||
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Grand Magnate
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Dear Tara- You so shine with the strength of resolve, of fortitude, of dedication not to let something or someone beat you down. You stood up as inspiration to us, weathering the storm with your family issues, catching up on schoolwork for that all important piece of sheepskin that comes on graduation day, for your husband, who supports you in your endeavors, for all of US whose lives come into your care so that you wish us a good week when your weekend was hard.
May your appointments fall into place soon, may the meds necessary to help you reach correction of the stim be dispensed, and may YOURS be a better week, my friend, Caring and ASAP, Mark56 PJ |
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09-13-2010, 09:36 AM | #7 | ||
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Please God that the next two weeks will fly by for you and that your situation will be resolved You do deserve it! Havent been able to post for a couple of days as NT was down So just catching up today Jackie |
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09-13-2010, 11:57 PM | #8 | ||
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Member
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Tara, can't your new pain dr. give you some pain meds. to keep you going till surgery? Or how about going back to your internist and getting him/her up to speed on what's going on and maybe he/she would give you enough pain meds. to get you through the next few weeks till surgery. Just a thought. Hate to see you have to tough it out when there's pain meds. out there that could help.
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