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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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09-08-2010, 01:55 PM | #1 | |||
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I finally got through to that pain doctor's office (the one that had originally dumped me because of all the phone calls they made) and I have an appointment set for Friday morning! I have not been to a pain doctor (besides my stim one) so I will be a little nervous. I am so thankful though because someone cancelled at the last minute leaving this opening for me and if not, it would have been the end of October when I would be able to see someone! I am so glad that I (even though I was scared) ended up calling them again and was able to get in. This is a really good place to go to because its a teaching hospital and are way more advanced in stims than my current doctor is! This is really a blessing and I am not going to take it for granted I am feeling so much more optimistic 'sTara
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09-08-2010, 07:41 PM | #2 | |||
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Grand Magnate
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Looks like some answered prayer is unfolding before us!!
HALLELUYEAHH! Thank you for sharing this!! Tara, you've hung on to your faith and things are manifesting in wonderful ways! I pray that these visits will spark some good aggressive treatment for you and you can begin to get your life back so your ambitions can be carried out! You are a true GEM!! Rae |
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09-08-2010, 11:51 PM | #3 | |||
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Grand Magnate
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Feeling that prayer may be going in a positive direction here, and grateful you now have that appt you so SO need.
As our friend, Rae shouted- Hallelujah!!!! Mark |
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09-09-2010, 07:38 PM | #4 | |||
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Hi everyone, I had a bad day today. I ended up losing feeling in my leg and I fell and knocked over my tray table which meant medicine and water went everywhere Plus I am really sore because it was on the side where the stim is I also found out about a family situation that is really bad (and scary) but I cannot talk about it (just say some prayers).
I am so glad that I am going to the doctor but I am really REALLY nervous! I know its because of all the bad treatment I have had lately and also the problems with their office too. I guess it is just scary because he is my only hope I was also up til 3 am doing homework so I am very tired and stressed! Anyway, thank you all for the support, I will be back tomorrow with an update (hopefully a good one). Take care 's Tara |
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"Thanks for this!" says: | Mark56 (09-09-2010) |
09-09-2010, 08:39 PM | #5 | ||
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So sorry to hear about your bad fall, and on your bad side too, Hopefully you are beginning to feel a little better (can you take some of the pain meds. your internist gave you?)
We're all be praying for you (and already are) that your appt. with this new dr. will go good and that you'll FINALLY get the help that you need. I remember the days of staying up late doing homework...you probably feel like a wet dog |
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09-09-2010, 10:02 PM | #6 | |||
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Grand Magnate
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for Sure!!
Mark56 |
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09-10-2010, 03:58 AM | #7 | |||
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I sure hope your appointment went good today. I can't wait to hear. And jeez I'm sorry about the fall and the problems with family. It seems like there's always something. I'm saying prayers. God bless. Hugs, Leesa
__________________
recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
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09-10-2010, 12:09 PM | #8 | |||
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After a year of fighting with my current stim doctor to help me, I finally have help! I love my new pain doctor and I found out that he trained her on stimulators which is funny. He was so nice and I even started crying (sorry but things were rough and pain was bad) but he was very nice and gave me some hope and options I had to get Xrays but he said I am definitely going to have surgery to get the battery fixed or replaced and also fix the pocket that is in because they think I moved it deeper in when I fell. And depending on my X-rays he will fix my leads too. We also talked about doing the paddles and he said that after this surgery if I need another revision he will get me paddles right away. He wants to put it off right now though because it is way more involved and who knows his surgery might actually fix things! So, the plan is I am seeing my stim rep next week and then 2 weeks from today I have an appt with my pain doctor and that is when we find out when my surgery will be! I am so thankful right now and so happy because I was really depressed over this. Oh yeah, he also increased my neurontin because he said she had me on a very low dose so that is good.
I know this if offtopic but-I am still worried about that situation I was talking about (it is related to domestic violence) and I am trying to help her out of it while going through all this pain stuff so it kind of overwhelmed me! But I am the type of person that will protect my family especially my mom know matter what and I just found out that stuff yesterday and I was so upset, I still am upset but I am trying to help her and keep her safe and feeling better right now. This whole situation is really hard for me because I went through it and she has before this too so it makes me very sad, angry, and upset. I am really trying to be strong for her! Anyway, just please pray for her and this whole situation because I just want her to be safe and okay! I will let you all know how things are going, but I probably won't be around too much since I have to try to do all my school work I can before the surgery and also I am focusing a lot of my time and attention in helping my mom and my family! I do still think about all of you though and my new family on here and you are always in my thoughts and prayers! I am so thankful to have found this place because it really motivated and supported me to get through all this pain and keep trying to get better care and better doctors! Take care BIG'sTara |
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09-10-2010, 01:42 PM | #9 | ||
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Quote:
Absolutely delighted for you to hear this great news about your forthcoming operation. This is just great news. After all the hassle you had with all these situations and so many doctors to contend, its all falling into place. How brilliant is that. You will be a NEW woman. At least this is the first step in the right direction. Im really really really delighted for you. So our prayers are working somewhat As regards the situation with your family, I am so sorry to hear that. I will of course keep them all in my prayers and I hope that it will come to an end very soon and all will be safe and well. You are a very strong person I feel, I only 'know' you a couple of weeks and Im just overwhelmed how strong you are. Your incredible. So keep up this positivity and strength and remember there IS light at the end of this dark tunnel. I was always told to BELIEVE! Take care and look after yourself too, while you are caring for you mom and family ok Jackie |
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09-10-2010, 06:59 PM | #10 | |||
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Grand Magnate
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Hi Tara- I just knew you had to have relief, and am thrilled your appt went so very well. Surgery yes, but if things get to working well again, then that would be just wonderful.
Praying for you and for the violence issue you mentioned and ALL who are involved. Mark56 Quote:
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