SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 08-29-2010, 09:48 AM #1
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Exclamation Charles Jenkins new SCS Implant

I know, I am not Charles, but wanted to help him get started on posting what I hope for him and others will be a helpful site for abdominal pain pump implant wannabees, newbies, and oldies. Charles and all have much to share, so here is a place. Charles, can you kick off with a lead in on your surgey and post surgery experience?

Praying all will be well,
Mark56 PJ
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Old 08-29-2010, 12:57 PM #2
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Thumbs up Welcome Charles

Quote:
Originally Posted by Mark56 View Post
I know, I am not Charles, but wanted to help him get started on posting what I hope for him and others will be a helpful site for abdominal pain pump implant wannabees, newbies, and oldies. Charles and all have much to share, so here is a place. Charles, can you kick off with a lead in on your surgey and post surgery experience?

Praying all will be well,
Mark56 PJ
Hi Charles

Welcome to this fantastic site. You will find it so beneficial as I have and I too am a newbie........

Im a middleaged lady from Dublin Ireland. I have Failed Back syndrome due to surgeries with neuropathetic pain in both legs and back.

I too have had an SCS implanted. It was done on the 5th August, so Im just 3 weeks over it now. Yes the first few days are very painful and it is necessary to rest up as much as you can. Also be careful with bending, twisting, jerking, sudden movements etc. And dont shower!!! dont want to get those wounds wet or your IPG either.
I read from your post in the sticky thread that you havent your Stim turned on, Im not sure if thats regular. I had mine turned on the day after my surgery. My rep came first thing in the morning and he showed me how to regulate it etc.

At the moment I am having good relief from my stim. It works fantastic on my legs and upper legs, however, I need to have it turned up to try to get my lower back covered. I have 5 programmes at present. I have emailed my rep and was told that they will be able to give me some programmes for standing, walking, lying down so that I can have all areas covered.

I wish you a speedy recovery and hope that you too will get the relief that so many of the posters here are experiencing. Please read their testimonies also as there are some magnificent stories of some magnificent people.

Hope this is of some help...
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Old 08-29-2010, 01:17 PM #3
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Default Yooo Hoooo!

Charles!!!

Where are you!
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Old 08-29-2010, 02:22 PM #4
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Default New scs

OK this is the real charles jenkins, Rae and Mark56 was so helpful in my decision on trial and Permanent SCS only way to repay is pass it foward Just had implant done on the 25th had major stomach pain and spent a day in emergency room for nothing except peace of mind with today being the fifth day thing are better most of stomach pain is gone and pain in mostly confined to back and incision site, wife says i am a wimp when it come to pain I am scheduled to turn on september 9th I assumed their would not be that much pain after surgery, but i had major, major pain days 2 & 3 maybe because I am a wimp no problem with procedure in/out same day sent home, probably ate too much after procedure that cause some of my pain, i enjoy eating and i had to go from 11:30 p.m. to 3:30 p.m. without food or drink


Quote:
Originally Posted by Mark56 View Post
I know, I am not Charles, but wanted to help him get started on posting what I hope for him and others will be a helpful site for abdominal pain pump implant wannabees, newbies, and oldies. Charles and all have much to share, so here is a place. Charles, can you kick off with a lead in on your surgey and post surgery experience?

Praying all will be well,
Mark56 PJ
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Old 08-29-2010, 02:42 PM #5
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thanks for info i finally took a shower yesterday my rep wants me out of my acute pain period in order to get good program set for me, I think its a control thing, she was on vacation when I went thru trial, I'm ok with it, sounds like a plan so how is the weather in ireland? I am 56 years young you live someplace where i would like to visit meet quite a few people from ireland when I live in Germany for 10 years


Quote:
Originally Posted by jackiekennedy View Post
Hi Charles

Welcome to this fantastic site. You will find it so beneficial as I have and I too am a newbie........

Im a middleaged lady from Dublin Ireland. I have Failed Back syndrome due to surgeries with neuropathetic pain in both legs and back.

I too have had an SCS implanted. It was done on the 5th August, so Im just 3 weeks over it now. Yes the first few days are very painful and it is necessary to rest up as much as you can. Also be careful with bending, twisting, jerking, sudden movements etc. And dont shower!!! dont want to get those wounds wet or your IPG either.
I read from your post in the sticky thread that you havent your Stim turned on, Im not sure if thats regular. I had mine turned on the day after my surgery. My rep came first thing in the morning and he showed me how to regulate it etc.

At the moment I am having good relief from my stim. It works fantastic on my legs and upper legs, however, I need to have it turned up to try to get my lower back covered. I have 5 programmes at present. I have emailed my rep and was told that they will be able to give me some programmes for standing, walking, lying down so that I can have all areas covered.

I wish you a speedy recovery and hope that you too will get the relief that so many of the posters here are experiencing. Please read their testimonies also as there are some magnificent stories of some magnificent people.

Hope this is of some help...
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Old 08-29-2010, 04:42 PM #6
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Smile There You Are

Charles-

There you are!!! Glad you could get on and begin to introduce yourself! This is exactly how this wonderful place works, and your information will tend to be more visible now than buried in a Sticky where places, URLs, links are supposed to go.

Anyway, it is great to see that as you progress moment by moment, hour by hour you will survive the acute pain piece to receive that all important program for your device. Then is when the real help from your device begins..... and for me it has been nothing short of awesome!!

Germany! Where were you? I went to school a bit thereabouts, picked up language and the like. YEARS ago. There was no [as Rae would say it] silver in my hair then.

Feel better soon!
Mark56 PJ
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Old 08-29-2010, 06:34 PM #7
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Thumbs up Way to go Charles~

Thank you Mark for starting his thread!

Congrats on your implant Charles. Allow yourself the time you need to get out of this 'acute phase' <<--- good terminology

We are here for you, cheering you on, a shoulder to lean on, an ear to bend.....all that good stuff.

So glad you are here!
Any time you have something you'd like to talk about, just ad a post to this thread of yours and it'll bump this thread to the top, we'll all see it, and all your experience will be in one easy-to-find thread yayyy!

Take care of yourself and do the 'baby steps'.... i know that is so hard for you tough guys to comprehend but please just take extra special care of yourself so you can heal up right!

Caring Always,
Rae
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Old 08-30-2010, 10:02 AM #8
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Thumbs up Keep it up Charles!!

There you go...... healing! Keep up the good work. BABY STEPS just as Rrae said. Gotta go easy. Day by day, hour by hour it will improve! Promise.

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Old 08-30-2010, 12:24 PM #9
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Quote:
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There you go...... healing! Keep up the good work. BABY STEPS just as Rrae said. Gotta go easy. Day by day, hour by hour it will improve! Promise.

Mark56

Yes how true those words are!!!! but sometimes Im finding it VERY long indeed. Especially today, when the sun is splitting the trees here, (now thats rare here in Ireland) we do get our seasons mixed upand all I want to do is GET OUT in the garden and enjoy!!!!.......only four and a half weeks left

As the song goes I WILL SURVIVE!!!!
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Old 08-30-2010, 03:18 PM #10
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Mark56 you must know us old soldier types, I never ever learned to pace myself, old gun ho soldier and usually jump in with both feet and take off like its a contest, so those word you are saying pace yourself keeps reminding me i am not 25 any longer. Today have been a good day for most part kinda wish I had my unit turned on to help with back pain i am experiencing it a sharp stabbing pain, but most of my stomach pain is gone. I was in
Heidelberg and Schwinfurt germany from 1983 to 1993 loves that place almost stayed their and retired, travel quite a bit with family while we were their for ten years

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Charles-

There you are!!! Glad you could get on and begin to introduce yourself! This is exactly how this wonderful place works, and your information will tend to be more visible now than buried in a Sticky where places, URLs, links are supposed to go.

Anyway, it is great to see that as you progress moment by moment, hour by hour you will survive the acute pain piece to receive that all important program for your device. Then is when the real help from your device begins..... and for me it has been nothing short of awesome!!

Germany! Where were you? I went to school a bit thereabouts, picked up language and the like. YEARS ago. There was no [as Rae would say it] silver in my hair then.

Feel better soon!
Mark56 PJ
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