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-   -   My journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138076-journey-scs.html)

twinmom 11-15-2010 10:01 AM

HMMMMM. Well as I expected, there are going to be some delays with my SCS trial. I was supposed to go in today for the first of 2 medial branch blocks that were to be diagnostic procedure to assist with lead placement for the SCS trial. I had to wait until this morning to call them and I will have to postpone my appointment until after I see my ortho and get my permanent casts. As I said in my other post my fractures are "non-displaced" and if they dont remain that way I will need surgery and my legs are onlyin temporary casts due to the swelling so before I can go in for a procedure I must first have an okay from my ortho and have my permanent casts. So the "waiting continue........... hang in there with me:)

twinmom 11-15-2010 12:46 PM

bummed out
 
Well, poop!:hissyfit: i just talked with my pain doctor and unfortunately I will have to wait until my legs are healed completly before I can go forward with the medial branch block injections as they use steriods in those injections and steriods can cause delayed healing in broken bones.......... I am guessing that I just added at least 6 weeks to my wait time.:yikes: and that is kinds of a big bummer. I see the ortho today@ 1:30 and will have the facts then I suppose.......bummed out:thud:

anon21816 11-15-2010 02:07 PM

Quote:

Originally Posted by twinmom (Post 716346)
Well, poop!:hissyfit: i just talked with my pain doctor and unfortunately I will have to wait until my legs are healed completly before I can go forward with the medial branch block injections as they use steriods in those injections and steriods can cause delayed healing in broken bones.......... I am guessing that I just added at least 6 weeks to my wait time.:yikes: and that is kinds of a big bummer. I see the ortho today@ 1:30 and will have the facts then I suppose.......bummed out:thud:


Twinmom:hug: what a bummer indeed. Im soooooo so sorry for all that is happening to you. Its just so unfair. I hope that you heal as quickly as possible and get to that trial asap.

Rrae 11-15-2010 05:53 PM

Yep that's a bit of a downer
 
SO SORRY!
Your body has been thru some huge trauma with what happened over the weekend......
We'll just do our best to make the best of this yes?
Priority is to concentrate on those legs healing......and to do whatever they recommend to avoid blood clots, etc.

I can't imagine ANYbody being able to actually go thru with the SCS trial with what you are facing right now......
The weeks WILL pass and we'll all still be here......so just stick with us and we'll bide the time.

Try to keep your chin up.....
We're here for ya if you just need to vent......let it rip :o

Caring
Rae
:grouphug:

Yukiko1980 11-17-2010 03:07 PM

I am scheduled for the SCS trial on Nov 23. I am nervous and kinda excited and afraind to hope. I had the SNB in October and it was good for about 10 days. I hope this works for bothof us as well as it has for the others in this thread.

Saffy 11-17-2010 03:48 PM

I told my clinical physcologist about this site yesterday, and she was very impressed ... I told her I wished I could pass it on to every person who comes though the door of the Hospital I am under as you have all been, not only a huge help, but a huge inspiration too!

Rrae 11-17-2010 10:49 PM

Hello Yukiko!
 
Quote:

Originally Posted by Yukiko1980 (Post 717129)
I am scheduled for the SCS trial on Nov 23. I am nervous and kinda excited and afraind to hope. I had the SNB in October and it was good for about 10 days. I hope this works for bothof us as well as it has for the others in this thread.

Welcome to this wonderful forum! It's great to have you!
I'm sorry you suffer from RSD tho! :(

It's a good 'sign' that the SNB injection worked so well for you! That's a good indicator that you'll benefit from the SCS (according to my Dr)......
I only got 1 day relief from the nerve block, but I am very happy with my SCS.
It's a good thing we can do a trial before making this big decision.!

There seem to be so many folks getting the SCS these days! It's becomming way more commonplace than it once was.

Hopefully your trial will prove very successful for you so you can get back a quality of life.
Start a new thread so we can 'find' you easier here amongst all the posts! The support here is fantastic and we are constantly learning from one another.

So glad you are here!
Rae
:hug:

Saffy 11-18-2010 03:44 AM

Counting down the days with you xx

twinmom 11-28-2010 11:47 PM

I have been reading and catching up on everyone. I have had family in town for the holidays and limited internet access but I have missed you all terribly. Not much has changed for me, I am still in a holding pattern. I can not move forward with my SCS trial or nerve blocks until my legs are 100% healed. My right foot is doing fine and does not bother me at all but my left leg is a HUGE nuisance, the cast sucks and the added limp it causes me further aggravates my back and I am just stuck with it for now. I hate that I will be in this cast for 10 or 12 weeks and I hate even more the fact that it hasnt even been 3 weeks yet!!! I will keep you all posted.

anon21816 11-29-2010 08:39 AM

So good to hear from you!
 
Hi Twinmom.....its good to hear from you. Im so sorry that all isnt well with you yet. And only 3 weeks gone!! It must be just awful for you trying to keep positive and I must say I commend you immensely :hug: I pray that you will have relief from that left leg:mad: and that the weeks will pass quickly so that you too can benefit from the trial and implant....

Take care

Jackie :hug:


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