SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 11-11-2010, 10:16 AM #1
twinmom twinmom is offline
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Thumbs up My journey to SCS

I thought I would start a new thread with my progress now that I am getting closer to my trial. In the past 2 weeks I have met with my pain DR. (who I LOVE) followed by X-RAYS (lots and lots of them), blood work, psych eval, MRI and am scheduled for 2 diagnostic medial branch block injections on 11/15 and 11/17 with a follow up on 11/22 to go over all test results and schedul my trial......who knows I may have an SCS by CHRISTMAS!
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Old 11-11-2010, 05:00 PM #2
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Thumbs up Good For You!

Great Idea!
Having your own thread like this makes it easier for us to 'find' you to see how your progress is coming along and to ask questions.....it's also good for YOU because you'll be able to look back on your posts and see how much your quality of life has improved along the way!

When I look back on some of my earlier posts, I realise how bad off I really was BEFORE I got my SCS! I've come a LONG way in this past year!
When we are living from day to day, we don't really appreciate how much of an upswing we are on until we go back and look at the 'old days'....

It would be fantastic if you could get yours before Christmas!......also in case your insurance deductibe starts over at the beginning of the year.....you wouldn't have to meet a new deductible.

You'll get plenty of great support around here!

Rae
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Old 11-12-2010, 05:54 AM #3
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Oh it'll be exciting if you do. I'm wondering if they will allow my daughter in to take photo's of my op so that I can put them on here to help people.
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Old 11-12-2010, 09:19 AM #4
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prior to my accident I had a full, busy life. My accident was on February 26, 2009. I was in the hospital for a very long time and have had 1 eleven hour surgery. When I came home from the hospital I lived in a hospital bed in our living room but have since switched to a special electric recliner that has special foam to form around my body and and adjusts just like a hospital bed. I spent about a year completly blitzed on pain meds; duragesic, vicodin, valium, soma, gabapentin, lyrica, mirapex, etc. etc. etc. and I had every kind of side effect you can imagine. I was so blah all the time that I was missing my boys childhood and I was becoming desperatly depressed by both the pain and physical limitations. After I decided to stop all meds I knew that my life would become more difficult as my ability to multi task or even focus while in pain is minimal but I also knew that my ability to be cranky or "complain" was going to disappear too as I was making the choice to come off all meds. I have learned not to complain or even bring it up because it is sort of a given that I am in pain and I came to believe that I would always be in pain and would have to find a way to co-exist with it however when I am really hurting I have a REALLY hard time not being cranky and bitchy and having this forum and the ability to talk about my pain and commesurate with others who know just what I am talking about is an absolute GODSEND and has helped me feel less alone in my pain and has helped me better cope with my crankiness. I have learned so much on this forum and I thank you all SOOOOOOOOOOOOOOOO MUCH!!!
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Old 11-12-2010, 02:03 PM #5
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Twinmom its good to hear your story and that you find this forum helpful. It is amazing. Its great to speak with people that know EXACTLY what you are going through and can associate with each other.

I do hope you get an early Christmas pressie with your SCSfingers crossed
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Old 11-12-2010, 08:03 PM #6
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Hi Twinmum
I am like you hoping to have my trial and implant before xmas. it is booked at the moment for 2nd and 9th of december just waiting to make sure all paperwork is completed. when i read your post i did so with gritted teeth , i cant imagine being able to even say good morning to my kids without my pain relief so i really admire you for how you are copping with your pain. i hope you get your trial before xmas!! my hope from getting the scs implant is that i can become more part of my kids life in the playground , more hugs, playing etc rather than the spectator i have become over the last two years. my accident happened at the end of my pregnancy but kids are great and they do give us the courage to keep going to get through this.
keeping my fingers crossed you get your christmas wish to.
jenna
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Old 11-13-2010, 06:15 PM #7
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Rrae, you are such angel!!!
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Old 11-15-2010, 10:01 AM #8
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HMMMMM. Well as I expected, there are going to be some delays with my SCS trial. I was supposed to go in today for the first of 2 medial branch blocks that were to be diagnostic procedure to assist with lead placement for the SCS trial. I had to wait until this morning to call them and I will have to postpone my appointment until after I see my ortho and get my permanent casts. As I said in my other post my fractures are "non-displaced" and if they dont remain that way I will need surgery and my legs are onlyin temporary casts due to the swelling so before I can go in for a procedure I must first have an okay from my ortho and have my permanent casts. So the "waiting continue........... hang in there with me
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Old 11-15-2010, 12:46 PM #9
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Unhappy bummed out

Well, poop! i just talked with my pain doctor and unfortunately I will have to wait until my legs are healed completly before I can go forward with the medial branch block injections as they use steriods in those injections and steriods can cause delayed healing in broken bones.......... I am guessing that I just added at least 6 weeks to my wait time. and that is kinds of a big bummer. I see the ortho today@ 1:30 and will have the facts then I suppose.......bummed out
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Old 11-15-2010, 02:07 PM #10
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Quote:
Originally Posted by twinmom View Post
Well, poop! i just talked with my pain doctor and unfortunately I will have to wait until my legs are healed completly before I can go forward with the medial branch block injections as they use steriods in those injections and steriods can cause delayed healing in broken bones.......... I am guessing that I just added at least 6 weeks to my wait time. and that is kinds of a big bummer. I see the ortho today@ 1:30 and will have the facts then I suppose.......bummed out

Twinmom what a bummer indeed. Im soooooo so sorry for all that is happening to you. Its just so unfair. I hope that you heal as quickly as possible and get to that trial asap.
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